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CARL58

CARL58CARL58 Member Posts: 178 Courageous
edited April 2019 in Disabled people
I'm sorry if I go harping on I've only CARL58 interest's at heart I keep hearing horror stories about ESA & pip assessments.all the specialists that he had dropped him a few years ago social services as he couldn't engage with what they wanted to do so they dropped out psychiatrist said his problems run to deep so referred  back to his gp  pediatrics I think that's the right word discharged him a few years ago as they couldn't do nothing for his osteoarthritis until he's seizure free abuse and rape counselling had to stop because it was making him Ill and very distressed there's only me & gp I've known 10yrs and seen him at worst and going downhill year by year since the brain injury he swears nearly every other word and can't stop that can't make himself understood properly gets. Frustrated becomes abusive can't control that we've tried I've cried trying to see away forward with assessment's because I know how hard it is for him every single day I can count on one hand the last time he had a reasonable day nearly 2yrs ago he couldn't even tell you what's on TV or radio never has them on as hasno interest couldn't tell you what's happening in the world sorry for going on & on sorry jen
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Replies

  • CockneyRebelCockneyRebel Community champion Posts: 5,259 Disability Gamechanger
    Hi Jen

    No need to apologise, we often forget that the people who support people with disabilites also need support. The very least we can do for you is to be here and listen when things start to get on top of you
    Be all you can be, make  every day count. Namaste
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  • Antonia_ScopeAntonia_Scope Member Posts: 1,783 Pioneering
    Hi Jen, 

    I am sorry to hear this, how are you and carl58 doing today? Has your GP offered any other suggestions. You may be interested in getting touch with Carers UK for support.
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  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger

    Hello @CARL58 Pleased to meet you Jen.  Sorry to hear this.

    Thank you for contacting the community.  I am aware of the situation that he is in.  Having read many of his posts he had sent to the community.

    Have a heart and a lot of concern.

    The problem is that the whole system is based on identifying problems and issues finding solutions.

    Be able to deal with any underlying situation and cope , manage the illness or conditions you have.

    I do not know what to advise or suggest. There has to be some answers out there.

    My care and concern is you at the moment . Dealing with your friend.  I know it can be stressful. .

    We are here to listen.

    Please keep in touch.

    Always here to help and be supportive .

    Take care.

    @thespiceman

    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
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