CARL58

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CARL58
CARL58 Online Community Member Posts: 177 Contributor
edited April 2019 in Everyday life
I'm sorry if I go harping on I've only CARL58 interest's at heart I keep hearing horror stories about ESA & pip assessments.all the specialists that he had dropped him a few years ago social services as he couldn't engage with what they wanted to do so they dropped out psychiatrist said his problems run to deep so referred  back to his gp  pediatrics I think that's the right word discharged him a few years ago as they couldn't do nothing for his osteoarthritis until he's seizure free abuse and rape counselling had to stop because it was making him Ill and very distressed there's only me & gp I've known 10yrs and seen him at worst and going downhill year by year since the brain injury he swears nearly every other word and can't stop that can't make himself understood properly gets. Frustrated becomes abusive can't control that we've tried I've cried trying to see away forward with assessment's because I know how hard it is for him every single day I can count on one hand the last time he had a reasonable day nearly 2yrs ago he couldn't even tell you what's on TV or radio never has them on as hasno interest couldn't tell you what's happening in the world sorry for going on & on sorry jen

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  • CockneyRebel
    CockneyRebel Online Community Member Posts: 5,188 Championing
    Hi Jen

    No need to apologise, we often forget that the people who support people with disabilites also need support. The very least we can do for you is to be here and listen when things start to get on top of you
  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,764 Pioneering
    Hi Jen, 

    I am sorry to hear this, how are you and carl58 doing today? Has your GP offered any other suggestions. You may be interested in getting touch with Carers UK for support.
  • thespiceman
    thespiceman Online Community Member Posts: 6,283 Championing

    Hello @CARL58 Pleased to meet you Jen.  Sorry to hear this.

    Thank you for contacting the community.  I am aware of the situation that he is in.  Having read many of his posts he had sent to the community.

    Have a heart and a lot of concern.

    The problem is that the whole system is based on identifying problems and issues finding solutions.

    Be able to deal with any underlying situation and cope , manage the illness or conditions you have.

    I do not know what to advise or suggest. There has to be some answers out there.

    My care and concern is you at the moment . Dealing with your friend.  I know it can be stressful. .

    We are here to listen.

    Please keep in touch.

    Always here to help and be supportive .

    Take care.

    @thespiceman

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