Cerebral Palsy and Premature ageing

Clairec

Chloe_scope. Yes. She has splits she's been using them since she was I think around 3 as she first got a pair of boots to help her stand then splints. She has an appointment this Thursday with the vision team as she also has vision problems she received glasses a few months back. I am hoping that her consultant will be here also as now I have had time to think about everything I need to talk to someone about it all. 

Richard_Scope

I think it's a really good idea to talk it through with the consultant now that you have had the chance to think about everything @Clairec
It is very difficult for anybody to predict how CP will affect somebody as they grow and get older. It's important to remember that you are doing all of the right things for your daughter!

Clairec

Thank you all for your help I shall wait until Thursday amd hope consultant is there and see we're to go from there thank you. 

Chloe_Alumni

I hope Thursday goes okay for you and your daughter @Clairec, like Richard has said, it's a great time to talk things through

Chloe_Alumni

I hope today goes okay @Clairec

Clairec

Thank you that's very kind we in the hospital waiting to be seen as we speak. 

Richard_Scope

Let us know how you get on.

milliemollie

Is Cerebral Palsy linked to vision problems?
I started wearing glasses from the age of about 6. I used to have to go to clinic in the local town and they would issue me with patches to wear over my right eye,  as my left eye was lazy. 
A few years later I was going to the opticians and was told there was no sight in my left eye and it would be pointless having lens in so my left lens was plain glass. For many years this was my glasses. When I changed to the local optician, he told me that there was some sight in my left eye,  not as good as my right but still some so now I have lens in both sides. 
This year I had to have glasses for reading, so now I have two pairs, as the optician said that two separate  pairs would be better forcne than bifocals. 

Clairec

Hello milliemollie I had an appointment with my daughter with the vision team today and they told me that her vision problems are not with her eyes they are connected to her CP and the damage done to her brain she has lower visual field loss meaning when she looks straight ahead most of us will still be able to see below us anyway but she doesn't she has to put her head down to see. She also said wears glasses to. I don't know if that's any help to you xx

milliemollie

Thank you,, I just saw your post and I wondered if my sight problems were linked to CP. All my family wear glasses but they can see better than me without them. Even large letters are still blurred but they can see them fine. When I took my driving test I really struggled to see the number plate as part of the test but I was passed. Wear my glasses from getting up to going to bed. I must admit I hated wearing them when I was younger and didn't wear the patch for school as I was bullied  for walking funny anI couldn't use my right hand and arm.  This would have been another ammunition. 

Clairec

I had no idea until today that her vision was caused by the CP at all but luckily they said it shouldn't get worse as she ages but she will need extra help. Have u been diagnosed with CP also? It might be worth speaking to your GP and asking them for help xx

milliemollie

Yes apparently I was born with CP,, although my parents were never told,  I was born in 1975, my parents were told to put me in an institution as I wouldn't  amount  to much but my mum persevered and I eventually walked and talked, albeit later than others.
I actually  started this post because of the pain and spasms I'm getting. I would just like a medical professional to explain everything..
I've had blood tests for Rheumatoid Arthritis which came back abnormal but the Rheumatologist said that they  were wrong.
When I was younger,  I was taken to physiotherapists who manipulated my leg which I still remember and I still remember  going to the hospital and the doctor used to whack me on my knee with a hammer. I think it must have been to test my reflexes. 
I think when you are older you are left to your own devices. 
I hope your daughter gets all the help and support she needs.

Richard_Scope

Hi @Clairec
Did you get to ask all of the questions that you wanted to?

Richard_Scope

milliemollie said:

Is Cerebral Palsy linked to vision problems?
I started wearing glasses from the age of about 6. I used to have to go to clinic in the local town and they would issue me with patches to wear over my right eye,  as my left eye was lazy. 
A few years later I was going to the opticians and was told there was no sight in my left eye and it would be pointless having lens in so my left lens was plain glass. For many years this was my glasses. When I changed to the local optician, he told me that there was some sight in my left eye,  not as good as my right but still some so now I have lens in both sides. 
This year I had to have glasses for reading, so now I have two pairs, as the optician said that two separate  pairs would be better forcne than bifocals. 

Hi @milliemollie

Approximately 50% of children with cerebral palsy have some form of visual impairment. The severity of vision loss tends to increase with the severity of cerebral palsy. In general, visual impairments are thought to be more common in children with spastic cerebral palsy than those with athetoid or ataxic types