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Just read CARL58 pip form

CARL58 Member Posts: 178 Courageous
Hi never in life have I read Such one sided form more about disabilities than mental health ,one question gets me when did you start to become Ill give dates approximately All CARL58 knows it started 20yrs and his osteoarthritis 10yrs he can't remember dates he still thinks Tony Blair is priminster how I'm I going to explain that he hasn't read a paper in year's hasn't watched TV or listened to radio in the 10yrs I've known him.as to him just aload noise I've read things to him what I think is important,it doesn't go in he just stares at you blank looking it's as if he's in another world.i do understand him in way,it's as if he's built a fortress around himself.sorry for going on it's very hard to make people understand why he's like lt,it's so frustrating at times even for jen


  • CockneyRebel
    CockneyRebel Member Posts: 5,217 Disability Gamechanger
    Hi Jen

    All you can do is try to fill in the form as best you can. If you can get supporting testamonials from Carls health care team and GP this will help. In many ways it is easier to explain the physical problems that Carl has, as you will have read on here MH problems are very difficult to put across without the input of the medical professionals.
    I do hope that some of our members will be able to give you some pointers @ilovecats maybe able to shed some light
    Be all you can be, make  every day count. Namaste
  • CARL58
    CARL58 Member Posts: 178 Courageous
    Cockneyrebel thanks for that CARL58 doesn't have a health care team for mental health there excuse which was flimsy to me,he's not a alcoholic,or drug user.his problems run to deep as he  could not engage it what they wanted to do he was dumped,to be honest in my eyes it's the abusive outbursts he has with strangers which  he  has absolutely no control over,,he ticks all the boxes so to speak but every referral they Knock back,last referral to mental health team,was his illness is so complicated we our not in a position to help this gentleman.thats a cop out to me,gp want's help for him but nobody and I mean nobody except his go are offering any form of help as he has complex needs sorry cockneyrebel it makes me so mad that the help is not forthcoming jen
  • CockneyRebel
    CockneyRebel Member Posts: 5,217 Disability Gamechanger
    Hi Jen and good morning

    I can understand how you must be frustrated and angry, i would be in your position. Carl is one of those that has fallen through the cracks of the establishment.
    If you can access Carls medical records, with his recent hospital admissions this might help, also try keeping a diary for him.
    You might also consider giving the Scope help line a ring, sometimes talking to a person can help. Of course we will do what we can on the forum but that does have limitations as to what is helpful
    Be all you can be, make  every day count. Namaste
  • poppy123456
    poppy123456 Member Posts: 23,696 Disability Gamechanger

    I've read some of your threads but it was a little confusing and wasn't sure which one to answer on so i chose this one.

    Are you his appointee? If so then during the assessment you'll be able to answer all the questions on his behalf, even though he'll need to be there too. If you're not then he'll need to answer all the questions himself,  some HCPs will allow prompting but not all will allow this.

    There's a lot to take in and understand when it comes to the descriptors. Having some understanding before filling out the form with help. This link may help you with that, it's a lot of information but well worth spending some time to read through it.  https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria#daily-living-activities

    All i can advise really is to put as much information on those forms as possible, adding 2-3 examples of what happened the last time he attempted that activity for each descriptor that applies to him.

    For example, washing and bathing.. does he need prompting to do this? If so then tell them this and what would happen if you didn't prompt him. My daughter has a learning disability and she needs assistance to be able to do this because she doesn't understand the temperature of the water. Quite a lot of times she's gone into the shower and it's been far too hot, so she's shouted out to me or her sister and then we have to go into the bathroom to assist her. If no one was there then she could have had an accident with the hot water. She scored 2 points for this.

    Dressing and undressing. Does he need help with this? Maybe he needs prompting/assistance to select the right clothing? or does he need prompting to change his clothes? If so then explain what would happen if you didn't prompt him for this? Maybe he would wear the same clothes everyday?

    You can ring DWP to request an extra 14 days to return the form. Don't forget to send evidence to support his claim because they very rarely contact anyone for this. If he has evidence to support his mental health then send that too. Remember, PIP isn't about a diagnosis, it's how those conditions affect your ability to carry out daily activity based on the PIP descriptors.

    There's never enough space on those forms either so use extra paper if you have to. Make sure you add his name and NI number to each piece.

    Lastly, remember you'll only ever hear the bad stories and very rarely the good ones. Those that have an award they're happy with have no questions to ask, so we don't hear their story.

    I've never had any problems claiming PIP and neither did my daughter and her conditions are invisible but the evidence i sent and the information i put on the form meant she very recently had a paper based assessment and was awarded Enhanced for both parts.

    Good luck.
  • CARL58
    CARL58 Member Posts: 178 Courageous
    Poppy123456 thanks for that it's really helpful, alot he can't do it's difficult,I can't go into it on here in detail,but he can't mix or socialise with the same sex,due to past events he can't control his behaviour he'll get abusive and lash out,he went through a very bad childhood all I can say,it still affects him to this day & all I can add it was very traumatic.has had me in tears you just wish you can do more,if I have to explain that on this form and he reads it, just the mention of the past sets him off and it's really sad,seeing him so distressed it's something he will never get over.jen


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