Chronic Fatigue and UC Health Assessment

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  • PippaT1966
    PippaT1966 Online Community Member Posts: 40 Connected
    So, we have a date for the tribunal (a full 11 months after sending off the paperwork!). I have sent a letter to the court from her rheumatologist about her ADL's being affected by her severe fatigue, and her diagnosis of ME with Fibromyalgia. Does anyone have any advice of anything else to take or send beforehand?
  • PippaT1966
    PippaT1966 Online Community Member Posts: 40 Connected
    Oh, and we're still waiting for the DWP to update the online system to let us know if they are awarding her the higher award for universal credit. 

  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    Difficult to give any advice on what else to send as no one here knows exactly how her conditions affect her. Do bare in mind that PIP isn't about a diagnosis, it's how those conditions affect your ability to carry out daily activity based on the PIP descriptors and they won't be able to take into consideration any worsening of conditions.

    For the LCW decision then have you rang UC to request a copy of the report to be sent to you? This will give you some idea what the decision is likely to be because they mostly go with the report.

    Good luck with the Tribunal and do let us know the outcome.
  • PippaT1966
    PippaT1966 Online Community Member Posts: 40 Connected
    Thank you - I didn't think of requesting a copy of the report. I'll ask her work coach today.

  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    One other thing, if you're not her appointee then during the Tribunal hearing she will have to answer all the questions herself.
  • PippaT1966
    PippaT1966 Online Community Member Posts: 40 Connected
    Yes, I am her appointee, and I get my own copy of all her paperwork sent to me. 

  • PippaT1966
    PippaT1966 Online Community Member Posts: 40 Connected
    Thank you to everyone who commented - my daughter has been awarded the higher rate of incapacity benefit and told she is not fit to work or to look for work. We are so relieved, as she will get back payments which will enable her to buy a new wheelchair. We just have the PIP tribunal to get through next week!
  • Adrian_Scope
    Adrian_Scope Posts: 11,750 Online Community Programme Lead
    That’s brilliant @PippaT1966! I’m so pleased for you and your daughter. Best of luck with the PIP tribunal next week too. 
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    edited August 2019
    That's great news! Just so that those that read this don't get confused, Incapacity benefit no longer exists.

    What she's been awarded is LCWRA for Universal Credit. She'll receive an extra £336 per month from the 4th month of her claim, starting from when she sent in her first fit note.

    Good luck with the Tribunal.
  • PippaT1966
    PippaT1966 Online Community Member Posts: 40 Connected
    Yes - couldn't remember the acronym for LCWRA! She's due to get back payments to the 4th month of her claim. To give context, we first claimed in Nov, submitting a doctor's note saying she was unfit for work, then her medical assessment was in June. Found out 10 days ago what the results of this was. 

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