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Pain management clinic useless
Due to an upcoming operation in a couple of weeks I was told I had to change from my MST tablets(160mg per day) that I have been on for 15 years over to Fentanyl patches. Well the BNF guidelines state that 50mcg patch = 120mg morphine and a 12mcg patch = 30mg morphine near enough to my equivalent. BUT the pain management nurse I saw said she doesn't go by those guidelines and has her own conversion chart! She insisted that I could only be on a 50 patch with no morphine and "that was plenty, I didn't need more" who is she to say how my pain affects me? Despite my arguments and explanations she wouldn't have it. So against my better judgement I did what she said and ended up not only in agony but bedridden as I couldn't move for pain. I have a rare serious back condition and after years of being under guidance of neurosurgeons have learned what does and doesn't work for me. After weeks of battling this out with her she finally agreed to give me the extra 12 patch and my pain is now almost under control again with some added ibuprofen. My operation is in 2 weeks then once healed I want to return to MST as they suit me better. However this nurse is saying there is no way she will issue me a script for the amount I was on previously and I have to ho down to 120mg per day. This is a drop of 60mg per day. What can I do? I have spoken to my GP who just says do what she says. I am not in contact with my neurosurgeons anymore. I am getting very anxious and stressed about this. Any help appreciated.