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Year anniversary

amzry20amzry20 Member Posts: 1 Listener
Heya Everyone.
My names Amelia and Today I have earnt my one year anniversary badge along with many others on here.

Im so glad to have found this social online discussion post, as I feel there is no judgemental stigma talking about life struggle I can have.

So my PIP assessment is coming up in 2020! (I know its a year away but I'm Extremely worried)
I'm so nervous!
I feel i'm not on the right rating currently but we all know the question they ask about 100 meters!
I've seen so many petitions to try and get PIP and other assessments better and fair with this question. 

See I have Hypermobility and Palindromic rheumatism (other health conditions too) this can affect me differently each day to each hour.
A 'Flare up' or Sublux (joint dislocation) can happen at any time which affects my walking about handling objects. 

Thank  you for reading!


Replies

  • Chloe_ScopeChloe_Scope Scope Posts: 10,662 Disability Gamechanger
    Hi @amzry20 and a warm welcome to the community! That's great that you have been here a year and that you have enjoyed your time on the community :)
    I can understand that the PIP process is daunting, especially when you don't feel understood. I hope when the time comes we'll be able to support you through the process. If you'd like to get involved with discussions we have a list of recent discussions here. Please do let me know if there is anything I can do to help :)
    Community Partner
    Scope

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  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @amzry20

    Good Evening and Welcome to our community/family 👪

    I am one of the Community Champion’s here at Scope.

    Please please let me know if there’s anything that I can help/support you with your “Pip Assessment”

    @steve51


  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Hi @amzry20,
    Welcome to the Community and congratulations on earning your one year anniversary badge!  Nice to meet you.  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
  • April2018momApril2018mom Member - under moderation Posts: 2,882 Member - under moderation
    Nice to meet you!
  • Connie00Connie00 Member Posts: 255 Pioneering

    Hello @amzry20-

    My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A warm Welcome to the Community.

    Thank you for reaching out to us 

    I hope you are having a good day today PIP is the Bain of everybody's life, it seems to be a lottery depending on where you live. I get very agitated when I go for the assessments, and the waiting afterward to see what you have been awarded. Well that just takes forever.

    The whole system sucks, you have to go in and tell your worst day scenario and how many days you are like that.

    If we can be of any further help to you please let us know.

     

    Enjoy the rest of your day

     

    @connie00


  • emmarenshawemmarenshaw Community champion Posts: 704 Pioneering
    Hello @amzry20 congratulations on your one year anniversary with the online community. We're all here should you ever need anything.
  • Adrian_ScopeAdrian_Scope Testing Team, Community Team Posts: 7,949 Scope community team
    Great to have you here @amzry20 and congratulations for being with us so long!
    Senior Community Partner
    Scope

    If you have a few minutes to spare, we'd appreciate your feedback on our online community.
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Awesome! I love the badges on here! 😀
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • Antonia_ScopeAntonia_Scope Member Posts: 1,783 Pioneering
    Welcome to the community @amzry20 :) Congratulations on your badge! 
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