Fibromyalgia verses pip — Scope | Disability forum
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Fibromyalgia verses pip

Toffee
Toffee Member Posts: 251 Pioneering
edited July 2019 in PIP, DLA, and AA
Looking for people who have applied, been award, been refused to tell there story to help us all on this horrid condition. 
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Comments

  • Ami2301
    Ami2301 Member, Community Co-Production Group Posts: 7,945 Disability Gamechanger
    Hi @Toffee PIP is not based on the condition itself but is based on how your condition affects your ability to carry out daily tasks and your mobility. I hope our community members will be along shortly to share their experience with you :)
    Disability Gamechanger - 2019
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  • Toffee
    Toffee Member Posts: 251 Pioneering
    Thank you ami  
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  • MKMale
    MKMale Member Posts: 24 Courageous
    Hello @Toffee
    I have Fibromyalgia, and I was awarded PIP high rate for both components a few years ago. I will happily help if you still need people. Just let me know if and how I can help.
    Kindest Regards

    Drew 
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  • Toffee
    Toffee Member Posts: 251 Pioneering
    Yes thank you drew
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  • sheZZa
    sheZZa Member Posts: 244 Pioneering
    @Toffee
    i have fibromyalgia and several other debilitating illnesses. Four years ago I was awarded enhanced daily living and enhanced mobility. Although nothing has changed, if anything things have gotten worse, in May I was awarded standard for both.
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  • Toffee
    Toffee Member Posts: 251 Pioneering
    Ty for sharing shezza x
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  • trezash
    trezash Member Posts: 3 Listener
    Hi I have fibromyalgia I was diagnosed 3 years ago I applied for pip a year ago this January I got awarded no points at assessment and mandatory reconsideration waiting for my appeal on the 5 th of August my condition had gotten so much worse my anxiety and panic attacks have lead to two really bad falls one which resulted in me breaking my wrist iam due to go back for a second operation on the 1 st of August not looking forward to any of them fibromyalgia has really changed my life !!x
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  • poppy123456
    poppy123456 Member Posts: 31,107 Disability Gamechanger
    trezash said:
    Hi I have fibromyalgia I was diagnosed 3 years ago I applied for pip a year ago this January I got awarded no points at assessment and mandatory reconsideration waiting for my appeal on the 5 th of August my condition had gotten so much worse my anxiety and panic attacks have lead to two really bad falls one which resulted in me breaking my wrist iam due to go back for a second operation on the 1 st of August not looking forward to any of them fibromyalgia has really changed my life !!x
    HI,

    I'm sorry to hear this. Do be aware that the Tribunal won't be able to take into consideration any worsening of condition. They will only look at how your conditions affected you when the decision was made.
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  • Toffee
    Toffee Member Posts: 251 Pioneering
    So sorry to here this trezash big hugs thank you for sharing your experience x
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  • robt1066
    robt1066 Member Posts: 33 Courageous
    A lady I know got a basic daily living award for fibromyalgia.
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  • robt1066
    robt1066 Member Posts: 33 Courageous
    ... that's a PIP daily living award. 
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  • Toffee
    Toffee Member Posts: 251 Pioneering
    Ty lovcat and robt x
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  • Jurph
    Jurph Member Posts: 362 Pioneering
    I applied for PIP in January 2018. I didn't get a single point.

    I'm off to tribunal in a few weeks.
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  • Toffee
    Toffee Member Posts: 251 Pioneering
    Fingers crossed jurph maybe ppl on here can give you some advice x
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