Hi. after many years battling the system, I've just been diagnosed with functional neurological disorder, which is little understood. My symptoms include left sided weakness, tinnitus, dizziness, headaches, light sensitivity and exhaustion after walking only a few yards. I have previously been diagnosed with idiopathic hypersomnolence (the opposite of insomnia) and malignant vasovagal syndrome (which causes me to faint), both of which are rare conditions. The consultant however could not explain my cardiac symptoms which I suspect may in some way be connected. They can be very severe at times and include sudden bouts of breathlessness, collapsing and palpitations. I wake up several times a night with tachycardia (raised heart rate) which is sometimes coupled with breathlessness, despite sleeping sitting up which reduces the severity of the symptoms. This normally happens when in REM sleep (dreaming). I was wondering if anyone else has this unusual combination of cardiac and neurological symptoms and if one could be affecting the other? I'm unsure whether I have the correct diagnosis or not. So far I have been offered no support although I am waiting for a cardiology appointment. Thanks for your help/support.
