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Hi, my name is RieRie!
I'm 47 with a lumbar spine injury. I'm very worried about what will happen with my benefits as I am unable to work. I have no confidence in the system after my PIP was dropped to standard 6 years ago. The thought of a tribunal is anxiety inducing to the point of just settling with what they gave me. Does anyone else feel…
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Help with disability aids
Hi, sorry if this is the wrong category I'm very new here (made an account only a few minutes ago) I've gotten a diagnosis last year and have only just warmed to the idea of using an aid, I feel a bit anxious about it and worried people in my life will think I'm exaggerating. I ideally need a cane or a wheelchair but I'm…
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Cerebral Palsy and back pain
Watch Cerebral Palsy Research Network's Webinar about cerebral palsy and back pain. It is very informative and has some practical tools for prevention as well as what to do when you are experiencing back pain
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Join us to discuss chronic lower back pain in adults with cerebral palsy
Last week, the MyCP Webinar featured Julie Stutzbach, PT, PhD and Mary Gannotti, PT, PhD, speaking about new research on chronic lower back pain in adults with CP and strategies to improve care through shared understanding of the nature of pain, communication about pain, and advocacy for treatment. Dr. Julie Stutzbach,…
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Hi, my name is DoJo!
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Hi, my name is gemslover!
Here to discuss back pain originally to help others with not being alone. I have 3 slipped discs and trapped sciatic nerve since November 1st 2024. Now it's end of may 2025 and it's been 3 weeks now since i'm pain free…. took the docs long enough! grrr! Due to lack of mobility I've discovered Gemporia the jewellery…
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Spinal Stenosis
Heading back in to spinal stenosis territory….a successful op 8 years ago,the pain has returned. Had steroid injections which worked in my left leg,but still pain in my right leg.Am due a spinal fusion in 3 months….any help please? Thanks, Joolz.
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Hypermobility new blog - BENDY NOT BROKEN!
Hey everyone! 👋 Exciting news - I've finally launched my blog, a space dedicated to navigating life as a hypermobile mental health nurse! It's all about sharing empowering tips, finding strength in our bendy bodies, and having a good laugh along the way (because sometimes, what else can you do when a joint decides to do…
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Hi, my name is davidsmall! Would like advice on how to deal with arthritis in lumbar fcet jointsn
I am suffering arthritis in lumbar fcet joints
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BURNING/ELECTROCUTING/CHOPPING PAIN all the Same Time
Dear All, I have several co-morbidities, but one of the most debilitating conditions I face is Sensory Motor Polyradiculoneuropathy. My leg(Both legs) symptoms began around August/September 2023, initially as intermittent numbness in both great toes, but they progressed rapidly. By September 2023, I developed permanent…
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diagnosed with fibromyalgia
Hi. I’ve just today been diagnosed with fibromyalgia after many years of going to the doctor with many symptoms. I’m feeling a little bit overwhelmed and don’t know what I should do.
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Hi, my name is activeadventurer2025! Turned down for ESA due to lack of NI contributions.
Hi guys, i am going through one of the most stressful times of my life. In the last year i have gone through so much with my deteriorating health that i truly don't know where to begin. I have suffered from COPD since age 14, and have gone onto have two massive heart attacks, and now i have got to look forward to a double…
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Merton Council has abandoned disabled tenants to suffer in hazardous homes? England
Merton Council has abandoned disabled tenants to suffer in hazardous homes? I would like urgent advice and insight from anyone who has dealt with council housing failures for private tenants, legal battles, or forced homelessness due to totally inhumane and uninhabitable living conditions caused mostly by local authority…
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Hello Everyone! I am looking to connect and make new friends.
Hi Everyone, I'm Andy, and I'm navigating life with neurodiversity. I received a late assessment confirming autism spectrum disorder (ASD), attention deficit hyperactivity disorder (ADHD), pathological demand avoidance (PDA), sensory processing disorders (SPD), and specific learning difficulties (SpLDs) like dyslexia and…
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Hi, my name is flower_fairy66!
Hi all well I came across this site and thought the topics are interesting as I now understand that I have disabilities cronic pain depression anxiety and neurofribomatis type 1 and now I'm going to be tested for Bipolar as I'm in my 50s and feel I've never fitted in so maybe life might make sense Anyway there's a little…
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Wrist pain (scapholunate diasthesis)
Hi there I’m in my mid 40s and have developed pains in both wrists over the last five years. Most recently in my right wrist, I have worn down the ligaments between the bones. In my left wrist the bones have fused together. I had discussed surgery on my left wrist (breaking the bones, reconstructing and wiring together)…
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Hi everyone new here scoliosis and just looking for advice as to whether to seek a specialist ...
I'm new to this community even though I've been disabled for over some 30 odd years. Multiple issues over the years and adding to them as i age. Latest include scoliosis and just looking for advice as to whether to seek a specialist for this, as i gather they only treat it in the young.
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Hi, my name is aurorab! i have had post herpetic neuralgia for the past 4 months ...
i have had post herpetic neuralgia for the past 4 months following an extensive bout of shingles on my back and front torso. the relentless nature of the pain has been difficult to handle mentally, i have been on gabapenting for months, it does not work completely, it has helped with the spasmodic pain which is now just…
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Bicep Tendonitis
I have this extremely painful condition - to start with, everybody assumed that I had revolver cuff problems but after 3 years (misdiagnosed by consultants etc) - it was finally correctly diagnosed as arthritis of both shoulders - with associated bicep tendonitis - which is caused by the tendons swelling up and catching on…
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Hi, my name is MissPiggy69! Advice for attending pain clinic?
Has anyone got any advice for attending the Pain Clinic. I have waited a year for the appointment and don't really know what to expect.
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Hi, my name is Bznkzy! Telephone consultation with PIP but unable to speak on the phone
hi I’ve got a telephone consultation with pip on the 10th of march now I am not able to speak on the phone I get distressed anxious and confused when asked even the simplest of things my memory is deteriorating due to 10+ years of prescription drug abuse I have ADHD Anxiety dyslexia I have physical problems including…
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Bulging discs pinched nerves
just found this site and registered I’m struggling with lower back pain left hip and left leg pain radiates down in different areas even my left wrist and heel worse in the mornings on getting out of bed. Had a left hip resurfacing in 2013 hip area has never been pain free had X-rays etc just showed up inflammation…
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Spinal stenosis
Hello. I'm new here and would welcome any help or hints on how to endure the nerve pain caused by this condition. I am currently waiting and waiting.....for a spinal injection to relieve the pains don't think it will be anytime soon so looking for any help available. Thanks J
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Spinal stenosis pain relief: are nerve root injections worth it?
Hello. I was diagnosed with Spinal stenosis in Oct 24. Months on I'm experiencing more pain, I find medications reccomended have no effect. I have been referred for a nerve root injection but the NHS are quoting months before that can happen. Can anyone comment on whether the injection is of help...if so I will go down the…
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Exciting Research Project. Ulster University. Your Voice on Pain-Take Part
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Capsaicin Cream
I have had lower back pain and a trapped nerve which causes my right foot to be very numb for years. Hospital have tried various medications, injections and surgery to free the nerve, nothing has helped. So I am told that I will need to live with it!! Problem being that my right foot is getting so numb that I might need to…
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Exciting research project. Ulster University. We want to hear from you. Your Voice on Pain.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Exciting research project. Ulster University. Your Voice on Pain. Take part.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Searching for remedies
Hello Everyone, First post, so I’m sorry if I mess up! I’m searching for possible solutions to a pain problem I have. I don’t know what could be relevant, so sorry if I procrastinate. I have a chronic back pain problem that is really getting me down and preventing me from doing anything other than laying down without pain…
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Radiofrequency ablation
I have been offered Radiofrequency ablation on my lower back I wondered if anyone had had experience of this and was it worth it?
