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We want to hear from YOU!
Your insights are crucial for a meaningful study on cervical screening. If you’ve ever had experience with it, we want to know what it's really like from your perspective. It’s quick, easy, and makes a real difference! To get involved - please see the attached poster below *** The above post has been moderated and checked…
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Searching for remedies
Hello Everyone, First post, so I’m sorry if I mess up! I’m searching for possible solutions to a pain problem I have. I don’t know what could be relevant, so sorry if I procrastinate. I have a chronic back pain problem that is really getting me down and preventing me from doing anything other than laying down without pain…
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Radiofrequency ablation
I have been offered Radiofrequency ablation on my lower back I wondered if anyone had had experience of this and was it worth it?
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Hello 👋 I’m Paul. I’m 48 and have been struggling with my health after I had COVID
Hello, I’m Paul. I’m 48 and have been struggling with my health after I had COVID in July 2020. I was diagnosed as having Long COVID a few months after I contracted it. Then more and more problems came. Since 2020 I’ve had persistent abdominal pain on the left side, persistent nausea, chronic fatigue and brain fog. After a…
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Orthopedic or Neurologist DDD
Just a question to anyone with degenerative disc disease. Are you being seen by an orthopedic specialist or neurologist? I've several issues going on with my lumbar spine that has included trap nerves, bulging discs and radiculopathy affecting my limb. I've been under the care of a neurologist who has performed several…
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Opportunity to participate in research: Living with cerebral palsy and pain?
Do you live with cerebral palsy and experience pain? Rebecca Taylor and her supervisor Ellen Henderson, from Ulster University would like to hear from you. The university are carrying out research project to understand the impact of cerebral palsy and pain. Sara Edwards Scope Cerebral Palsy Specialist
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Can CP get worse with age?
Hi there, I'm a 48-year-old woman with Athetoid CP, and up to now, my involuntary movements haven't been a problem, maybe the odd month or two. However, every time I drink, my head flips back, and the drink goes all over my head. It has got to the stage where I'm scared to drink even though I'm thirsty. I would really…
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Hi, my name is Fridayschild! Can my GP sign me off for a year while I get my health in check?
Hi , I have been off work for 6 months due to unexplained pain , I have been awaiting a neurology appointment for 4 months and work can not do reasonable adjustments as I don't know what is wrong with me. I also suffer with fibromyalgia on top of this and registered disabled . Work are now saying I can't return back to my…
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We want to hear from YOU!
Your insights are crucial for a meaningful study on cervical screening. If you’ve ever had experience with it, we want to know what it's really like from your perspective. It’s quick, easy, and makes a real difference! To get involved - please see the attached poster below *** The above post has been moderated and checked…
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Dissociative identity disorder
I have been recently re diagnosed as dissociative disorder f44.9 unspecified. I am receiving treatment for dissociative amnesia and dissociative identity disorder. My therapist says that the nhs are reluctant to diagnose DID as it is too expensive to treat. Has anyone else had any experiences of receiving a final diagnosis…
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Hi, my name is joneypearson! diagnosed with spinal stenosis
Hello my name is (removed as personal detail) i live in leeds i have been diagnosed with spinal stenosis i am 77 yrs old and was diagnosed around 2 years ago i take lots of painkillers but i cant find any tablets that really take the pain away im sure my family are sick of me moaning i have to wait 12 months for an…
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Hi, my name is TashaH71! My pain is unbearable my GP seems disinterested.
Hi I am new to the group. I am at my wits end. My pain is unbearable my GP seems disinterested. I am on painkillers but nothing seems to help. My knees have started giving way on me to the point I have fallen down the stairs. I can not hold anything in my hands. I am so tired I cry as i feel so alone like no one…
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Help me with PIP
Hello, So I finally got PIP, called them to ask what I was awarded and they have told me that I only standard mobility and nothing for daily living. I asked how they can say it doesn't effect me daily and the lady on the phone said the report is coming and I appeal it. I don't understand how they don't think my…
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Unexpected pain worse than foreseen pain?
I have rheumatoid arthritis. Sometimes I can accidentally catch or bump my wrist often just a low impact but the pain is horrible. Yet if I do something similar and can see it happen it is so much easier. Is there a logical reason for this?
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Happy to be alive; struggling to find a US surgeon to treat a spine problem
In late October, I had pelvic floor surgery + a total hysterectomy (I'm 77 and wanted to get rid of potential cancer locations plus attend to specific pelvic floor symptoms). Surgery went fine but I soon developed a UTI that moved into my kidneys and bloodstream before I noticed (I attributed the symptoms to the surgery).…
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My occupational therapy story
Hi guys, first thanks for being here, I really appreciate it. I saw that I've been posting one issue of mine, every year. but believe me or not you are the only people I can talk to freely about my Hemiparesis problems. Since 2 weeks ago, I've started my occupational therapy again (after 2years). But the problem is that…
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Hi, my name is TubThumper!
Hello, I’m new here. I have Spinal Stenosis and have been looking for a support group for some time. I noticed something on here back from 2019 so I’m not sure if anything is still available.
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Had my first physio session in years today
After a frankly crazy amount of time without any support I finally had a physiotherapy session today and have a long term exercise regime I can follow! My motivation is quite low these days I can't lie but wish me luck 🤞
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FND and cardiac symptoms
Hi. after many years battling the system, I've just been diagnosed with functional neurological disorder, which is little understood. My symptoms include left sided weakness, tinnitus, dizziness, headaches, light sensitivity and exhaustion after walking only a few yards. I have previously been diagnosed with idiopathic…
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My carer needs help
I am disabled and my carer is my husband full time at home and he hurt his back last week and has been told to rest and not do heavy lifting but there's stuff he can't do with my care and every day tasks . what Help is available? East london Newham?
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Picking skin until it's sore
Hi I'm having trouble I can't stop picking my skin on my fingers and even putting in my mouth start first thing when I wake up and during the day I pick my skin on my fingers til it's sore or feel pain thanks Matt
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Hi, my name is Daffodil94!
I’ve just discovered Scope and am looking forward to exchanging information and ideas with you all. I'm a 71 year old Mum, grandma and friend to disabled members of my family and community. I also have my lovely cat Nova who is 3.
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Pain ?sacroiliac joint area
Hi just wondered if anyone experiences this. I have persistent pain in area of sacroiliac joint on right side going on for about a year now. Feels like it’s coming from deep within the buttock it’s does not radiate down the leg. I have one leg shorter than other and history of previous hip reconstruction surgeries 12 years…
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Mattress Recommendations for spine
Any recommendations for a double bed mattress (for a standard type bed) for those with lower back problems? I'm in need of a new mattress and am due to have spine surgery in a couple of weeks. I want to do everything to aid recovery and have a budget of around £700 (max) for either a recliner chair or mattress. I think a…
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Anyone used a Revitive machine?
Just wanted to ask if anyone has tried using a Revitive product for sciatic type nerve pain? If so, did it help relive pain at all? Wandering if this foot machine would be suitable for radiculopathy caused by nerve compression in the spine or if it would cause further irritation to an already very angry nerve. 😡. I do use…
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Morphine patches
Hey all. I am today being switched from cocodamol and naproxen to 10mg morphine patches. Has anyone one else used these and how's it worked for you?
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Hi, my name is ammeypotter13!
I’m excited to be part of this community. I’m passionate about health and wellness, particularly in the context of physical therapy and rehabilitation. I currently represent [advertising removed by moderator], where we focus on helping individuals improve their mobility and overall quality of life. In my personal life, I…
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Hi, my name is adcook! When will I receive ESA backpay?
hi , new to this. Finding it all a bit overwhelming at the moment ! 😵💫
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Fibromyalgia maybe misdiagnosed
Hey all. I was diagnosed with fibromyalgia about 8 years ago. I have widespread pain. Arms fingers back legs etc. I also had sleep disturbance and fatigue. However. Recently after a fall my pain levels have gone up massively. I went to hospital and they now believe I have a spinal injury. Which was worsened by a fall I had…
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Mental abuse and bullying the disabled in council homes
I'm reaching out to anyone else who has experienced mental abuse in a council home because this has been my experience as well. I'm on disability, have a strong passion for music production that dates back almost 20 years, have no music equipment, and my grandmother doesn't seem to care about what I do. She also seems to…
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My introduction
I'm a 77-year-old married woman living in New England. I enjoy reading and gardening. I've had multiple surgeries for various things, also some weird movement disorder no one can really classify (but it's being treated and rarely bothers me) and currently feel fine apart from my injection-related shoulder injury.
