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diagnosed with fibromyalgia
Hi. I’ve just today been diagnosed with fibromyalgia after many years of going to the doctor with many symptoms. I’m feeling a little bit overwhelmed and don’t know what I should do.
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Hi, my name is activeadventurer2025! Turned down for ESA due to lack of NI contributions.
Hi guys, i am going through one of the most stressful times of my life. In the last year i have gone through so much with my deteriorating health that i truly don't know where to begin. I have suffered from COPD since age 14, and have gone onto have two massive heart attacks, and now i have got to look forward to a double…
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Merton Council has abandoned disabled tenants to suffer in hazardous homes? England
Merton Council has abandoned disabled tenants to suffer in hazardous homes? I would like urgent advice and insight from anyone who has dealt with council housing failures for private tenants, legal battles, or forced homelessness due to totally inhumane and uninhabitable living conditions caused mostly by local authority…
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Hello Everyone! I am looking to connect and make new friends.
Hi Everyone, I'm Andy, and I'm navigating life with neurodiversity. I received a late assessment confirming autism spectrum disorder (ASD), attention deficit hyperactivity disorder (ADHD), pathological demand avoidance (PDA), sensory processing disorders (SPD), and specific learning difficulties (SpLDs) like dyslexia and…
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BURNING/ELECTROCUTING/CHOPPING PAIN all the Same Time
Dear All, I have several co-morbidities, but one of the most debilitating conditions I face is Sensory Motor Polyradiculoneuropathy. My leg(Both legs) symptoms began around August/September 2023, initially as intermittent numbness in both great toes, but they progressed rapidly. By September 2023, I developed permanent…
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Hi, my name is flower_fairy66!
Hi all well I came across this site and thought the topics are interesting as I now understand that I have disabilities cronic pain depression anxiety and neurofribomatis type 1 and now I'm going to be tested for Bipolar as I'm in my 50s and feel I've never fitted in so maybe life might make sense Anyway there's a little…
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Wrist pain (scapholunate diasthesis)
Hi there I’m in my mid 40s and have developed pains in both wrists over the last five years. Most recently in my right wrist, I have worn down the ligaments between the bones. In my left wrist the bones have fused together. I had discussed surgery on my left wrist (breaking the bones, reconstructing and wiring together)…
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Hi everyone new here scoliosis and just looking for advice as to whether to seek a specialist ...
I'm new to this community even though I've been disabled for over some 30 odd years. Multiple issues over the years and adding to them as i age. Latest include scoliosis and just looking for advice as to whether to seek a specialist for this, as i gather they only treat it in the young.
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Hi, my name is aurorab! i have had post herpetic neuralgia for the past 4 months ...
i have had post herpetic neuralgia for the past 4 months following an extensive bout of shingles on my back and front torso. the relentless nature of the pain has been difficult to handle mentally, i have been on gabapenting for months, it does not work completely, it has helped with the spasmodic pain which is now just…
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Bicep Tendonitis
I have this extremely painful condition - to start with, everybody assumed that I had revolver cuff problems but after 3 years (misdiagnosed by consultants etc) - it was finally correctly diagnosed as arthritis of both shoulders - with associated bicep tendonitis - which is caused by the tendons swelling up and catching on…
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Hi, my name is Bznkzy! Telephone consultation with PIP but unable to speak on the phone
hi I’ve got a telephone consultation with pip on the 10th of march now I am not able to speak on the phone I get distressed anxious and confused when asked even the simplest of things my memory is deteriorating due to 10+ years of prescription drug abuse I have ADHD Anxiety dyslexia I have physical problems including…
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Bulging discs pinched nerves
just found this site and registered I’m struggling with lower back pain left hip and left leg pain radiates down in different areas even my left wrist and heel worse in the mornings on getting out of bed. Had a left hip resurfacing in 2013 hip area has never been pain free had X-rays etc just showed up inflammation…
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Spinal stenosis
Hello. I'm new here and would welcome any help or hints on how to endure the nerve pain caused by this condition. I am currently waiting and waiting.....for a spinal injection to relieve the pains don't think it will be anytime soon so looking for any help available. Thanks J
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Exciting Research Project. Ulster University. Your Voice on Pain-Take Part
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Exciting research project. Ulster University. We want to hear from you. Your Voice on Pain.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Exciting research project. Ulster University. Your Voice on Pain. Take part.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Searching for remedies
Hello Everyone, First post, so I’m sorry if I mess up! I’m searching for possible solutions to a pain problem I have. I don’t know what could be relevant, so sorry if I procrastinate. I have a chronic back pain problem that is really getting me down and preventing me from doing anything other than laying down without pain…
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Radiofrequency ablation
I have been offered Radiofrequency ablation on my lower back I wondered if anyone had had experience of this and was it worth it?
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CIDP AND KNEE REPLACEMENT. Did you have any problems? Suggestions welcome.
Hi. I have CIDP & am getting IVIG monthly. I need a knee replacement & am wondering if anyone on here with CIDP has had a knee replacement. Did you have any problems? Any suggestions? Thanks
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Hello 👋 I’m Paul. I’m 48 and have been struggling with my health after I had COVID
Hello, I’m Paul. I’m 48 and have been struggling with my health after I had COVID in July 2020. I was diagnosed as having Long COVID a few months after I contracted it. Then more and more problems came. Since 2020 I’ve had persistent abdominal pain on the left side, persistent nausea, chronic fatigue and brain fog. After a…
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Orthopedic or Neurologist DDD
Just a question to anyone with degenerative disc disease. Are you being seen by an orthopedic specialist or neurologist? I've several issues going on with my lumbar spine that has included trap nerves, bulging discs and radiculopathy affecting my limb. I've been under the care of a neurologist who has performed several…
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Opportunity to participate in research: Living with cerebral palsy and pain?
Do you live with cerebral palsy and experience pain? Rebecca Taylor and her supervisor Ellen Henderson, from Ulster University would like to hear from you. The university are carrying out research project to understand the impact of cerebral palsy and pain. Sara Edwards Scope Cerebral Palsy Specialist
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Can CP get worse with age?
Hi there, I'm a 48-year-old woman with Athetoid CP, and up to now, my involuntary movements haven't been a problem, maybe the odd month or two. However, every time I drink, my head flips back, and the drink goes all over my head. It has got to the stage where I'm scared to drink even though I'm thirsty. I would really…
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Hi, my name is Fridayschild! Can my GP sign me off for a year while I get my health in check?
Hi , I have been off work for 6 months due to unexplained pain , I have been awaiting a neurology appointment for 4 months and work can not do reasonable adjustments as I don't know what is wrong with me. I also suffer with fibromyalgia on top of this and registered disabled . Work are now saying I can't return back to my…
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We want to hear from YOU!
Your insights are crucial for a meaningful study on cervical screening. If you’ve ever had experience with it, we want to know what it's really like from your perspective. It’s quick, easy, and makes a real difference! To get involved - please see the attached poster below *** The above post has been moderated and checked…
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We want to hear from YOU!
Your insights are crucial for a meaningful study on cervical screening. If you’ve ever had experience with it, we want to know what it's really like from your perspective. It’s quick, easy, and makes a real difference! To get involved - please see the attached poster below *** The above post has been moderated and checked…
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Dissociative identity disorder
I have been recently re diagnosed as dissociative disorder f44.9 unspecified. I am receiving treatment for dissociative amnesia and dissociative identity disorder. My therapist says that the nhs are reluctant to diagnose DID as it is too expensive to treat. Has anyone else had any experiences of receiving a final diagnosis…
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Hi, my name is joneypearson! diagnosed with spinal stenosis
Hello my name is (removed as personal detail) i live in leeds i have been diagnosed with spinal stenosis i am 77 yrs old and was diagnosed around 2 years ago i take lots of painkillers but i cant find any tablets that really take the pain away im sure my family are sick of me moaning i have to wait 12 months for an…
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Hi, my name is TashaH71! My pain is unbearable my GP seems disinterested.
Hi I am new to the group. I am at my wits end. My pain is unbearable my GP seems disinterested. I am on painkillers but nothing seems to help. My knees have started giving way on me to the point I have fallen down the stairs. I can not hold anything in my hands. I am so tired I cry as i feel so alone like no one…
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Help me with PIP
Hello, So I finally got PIP, called them to ask what I was awarded and they have told me that I only standard mobility and nothing for daily living. I asked how they can say it doesn't effect me daily and the lady on the phone said the report is coming and I appeal it. I don't understand how they don't think my…
