Help

lozzer25

Have recently started working things were going well up until yesterday my left leg has started dragging across the floor again it's so embarrassing tried all the exercises my physio gave me and even had a radox bath nothing is helping any advice would be much appreciated 

Richard_Scope

Hi @lozzer25
Glad to hear that your job is going well but not so glad to hear about your leg. Are you experiencing pain in that leg? 
I use Epsom salts in my baths as they are high in magnesium. Also, try elevating that particular leg on a pillow while in bed or on the couch.

lozzer25

Thank you richard its my weak leg again the weak one has got to the point were it is dragging so I have to elevate my foot to walk on my tiptoes I've tried a radox bath done my exercises elevated it nothing works but because I'm up on my left the right leg is starting to hurt 

lozzer25

I sleep with my left leg bent in bed my legs don't like being straight 

Richard_Scope

Have you considered a sports massage? I have had them before and they do help.

lozzer25

My dad is a sports therapist massages don't do anything I've had to ring the doctors to see if I can temporarily increase my baclofen like I had to do last time it happened it's so embarrassing it frustrates me I hate it 

Richard_Scope

I can empathise with your frustration, I really can. Does occur more towards the end of your working day?

lozzer25

No it started on Tuesday all of a sudden on my day off just wish it would piss off I've been working on adrenaline if that makes sense when I'm at work and I think it's just ran out 

Richard_Scope

Working on adrenaline makes perfect sense to me. Are you worried or stressed about anything (apart from your leg)? The reason I ask is when I'm stressed or not sleeping too well my body works even worse than normal.

lozzer25

No I'm not stressed I've been the positive I've been in a long time I don't sleep very well as I can never find comfort due to tightness when I do finally go to sleep a spasm normally wakes me up 

Richard_Scope

Hi @lozzer25
How are you today? Have you increased the Baclofen? I wonder if @Stayce has any ideas that could help.

LindaButler1970

Hi, my right leg drags and I have foot drop all the time, what does help is my leg brace which I wear, its not a cure but helps a bit! 

Stayce

Hi @lozzer25
 

Welcome

Thanks @Richard_Scope for tagging me into this discussion. I too find stress affects my muscle tone too. 

Do you have a leg brace as @LindaButler1970  suggests it help a bit. I would definitely talk to your orthotist about any further adjustments that they could make to your brace to improve pain if you have one or asking your GP to refer you to orthotics if you are not currently seeing an orthotist

I use this over a Lycra splint when mine is having a bad day, as it were. I’m not suggesting you buy it as I got mine on the NHS but it might be something to discuss with your orthotist as it can be worn with other orthotics and works to lift the foot

http://www.beagleorthopaedic.com/products/foot-and-ankle/neurodyn-plus-foot-lift-orthosis

Another option is a SAFO
@LindaButler1970 what sort of brace do you have?

I would also recommend that you see your GP or physio to make enquires about hydrotherapy in your area, particularly if you are not finding benefits from things like massage.

Hope this helps

Best

LindaButler1970

My leg brace is similar to that at 

https://www.everydayhealth.com/multiple-sclerosis/.../will-orthosis-help-you-walk-better...  

lozzer25

I don't have a leg brace it seems to be righteninģ itself finally I didn't increase the baclofen only thing orthotics give me was a heel elevator and that was no use xx could what I getting be foot drop what causes it

lozzer25

Feels like a current is running through my leg all the time like electric 

Richard_Scope

Do you have sciatica @lozzer25? 

lozzer25

No 

Richard_Scope

How are you today @lozzer25? 

Stayce

Yes how are you @lozzer25? 

Perhaps you have nerve entrapment or nerve irritation, people with CP can be very susceptible to nerve entrapments due to our tight muscles. Best to check this out with either a physio or osteopath. If you are not currently under one then speak to your GP to get you referred. Best to get these things checked out, especially if it’s still problematic

Best

lozzer25

I'm going to be leaving this site soon as I have just received my mri results which have come back normal so I mustn't have cerebral palsy must all be in my head thanks for all your help over the years 

Richard_Scope

@lozzer25 you don't have to leave the community. What was the actually said to you about the MRI results? An MRI scan can often assist with identifying areas of brain damage but not in every case. There is no stand-alone test for cerebral palsy,

lozzer25

Just said mri was normal nothing else another letter to leave me in limbo I feel like I've bitching and griping about nothing over the years as there is nothing wrong with my brain now I have to wean myself off baclofen which I've been taken for 6 years x

Richard_Scope

You are a valued member of our community and I don't think you have been griping over nothing. Your symptoms have a very real effect on your day to day life. It may or may not be CP but the medical professionals still have a duty to try to find a diagnosis for you. We will be here to support you as and when you need.

lozzer25

Thank you richard x

Richard_Scope

Chloe_Scope

Hi @lozzer25, like @Richard_Scope has said, there is no true MRI pattern to confirm cerebral palsy. This means that people can have a clear MRI scan and still have CP. Your symptoms are not in your head and you are a very valuable part of the community. Has the Baclofen been helping your symptoms. I really would seek medical advice about how to come off it if this is what you choose to do.

lozzer25

Yes it has its give me the mobility back in my hands and my tremors are only a small dither before started baclofen I couldn't carry cup before with my hands as they would shake having spasms when I try to cut vegetables up, I still get them now but there 99% better than what they were the baclofen has really helped me there I will seek advice from a doctor about the baclofen just wish I had a definitive answer to what is wrong yes or no that is all I want to know xx

Chloe_Scope

I'm really glad the baclofen has been able to help you so much! I know a definitive answer is what you wanted and I can definitely relate to this with my own experiences. Are you due any other appointments which might allow you to get answers?

lozzer25

No I have asked the receptionist to ask the neurologist to write a detailed report of what the findings were x

Chloe_Scope

I hope you are not waiting too long for this then

lozzer25

Thank you Chloe I don't believe it's physcosomatic i have had the symptoms since being a little girl xx

Chloe_Scope

No problem at all

Richard_Scope

lozzer25 said:

Yes it has its give me the mobility back in my hands and my tremors are only a small dither before started baclofen I couldn't carry cup before with my hands as they would shake having spasms when I try to cut vegetables up, I still get them now but there 99% better than what they were the baclofen has really helped me there I will seek advice from a doctor about the baclofen just wish I had a definitive answer to what is wrong yes or no that is all I want to know xx

Good morning @lozzer25
How are things today? 
I thought about what you posted above and it reminded me of another member that I have working with over the last month. They have been trying to help their son get a diagnosis of CP for the last 5 years. He has eventually been diagnosed with FND (Functional Neurological Disorder). FND, sometimes referred to as Functional Movement Disorder as well, presents similarly to a lot of other impairments such as CP and as a result can be very difficult to diagnose. Here is some information about it: Neurosymptoms.org
I'm not medically trained, so please discuss this with your G.P. and consultant. I hope you get answers soon.

lozzer25

Thank you richard x