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lozzer25
lozzer25 Community member Posts: 89 Courageous
in Cerebral palsy
Have recently started working things were going well up until yesterday my left leg has started dragging across the floor again it's so embarrassing tried all the exercises my physio gave me and even had a radox bath nothing is helping any advice would be much appreciated 
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    Hi @lozzer25
    Glad to hear that your job is going well but not so glad to hear about your leg. Are you experiencing pain in that leg? 
    I use Epsom salts in my baths as they are high in magnesium. Also, try elevating that particular leg on a pillow while in bed or on the couch.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • lozzer25
    lozzer25 Community member Posts: 89 Courageous
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    Thank you richard its my weak leg again the weak one has got to the point were it is dragging so I have to elevate my foot to walk on my tiptoes I've tried a radox bath done my exercises elevated it nothing works but because I'm up on my left the right leg is starting to hurt 
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  • lozzer25
    lozzer25 Community member Posts: 89 Courageous
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    I sleep with my left leg bent in bed my legs don't like being straight 
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    Have you considered a sports massage? I have had them before and they do help.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

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  • lozzer25
    lozzer25 Community member Posts: 89 Courageous
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    My dad is a sports therapist massages don't do anything I've had to ring the doctors to see if I can temporarily increase my baclofen like I had to do last time it happened it's so embarrassing it frustrates me I hate it 
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    I can empathise with your frustration, I really can. Does occur more towards the end of your working day?
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

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  • lozzer25
    lozzer25 Community member Posts: 89 Courageous
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    No it started on Tuesday all of a sudden on my day off just wish it would **** off I've been working on adrenaline if that makes sense when I'm at work and I think it's just ran out 
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    Working on adrenaline makes perfect sense to me. Are you worried or stressed about anything (apart from your leg)? The reason I ask is when I'm stressed or not sleeping too well my body works even worse than normal.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

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  • lozzer25
    lozzer25 Community member Posts: 89 Courageous
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    No I'm not stressed I've been the positive I've been in a long time I don't sleep very well as I can never find comfort due to tightness when I do finally go to sleep a spasm normally wakes me up 
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    Hi @lozzer25
    How are you today? Have you increased the Baclofen? I wonder if @Stayce has any ideas that could help.

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

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  • LindaButler1970
    LindaButler1970 Community member Posts: 40 Courageous
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    Hi, my right leg drags and I have foot drop all the time, what does help is my leg brace which I wear, its not a cure but helps a bit! 
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  • Stayce
    Stayce Community member, CP Network Posts: 843 Pioneering
    edited June 2019
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    Hi @lozzer25
     

    Welcome

    Thanks @Richard_Scope for tagging me into this discussion. I too find stress affects my muscle tone too. 

    Do you have a leg brace as @LindaButler1970  suggests it help a bit. I would definitely talk to your orthotist about any further adjustments that they could make to your brace to improve pain if you have one or asking your GP to refer you to orthotics if you are not currently seeing an orthotist

    I use this over a Lycra splint when mine is having a bad day, as it were. I’m not suggesting you buy it as I got mine on the NHS but it might be something to discuss with your orthotist as it can be worn with other orthotics and works to lift the foot

    http://www.beagleorthopaedic.com/products/foot-and-ankle/neurodyn-plus-foot-lift-orthosis

    Another option is a SAFO
    @LindaButler1970 what sort of brace do you have?

    I would also recommend that you see your GP or physio to make enquires about hydrotherapy in your area, particularly if you are not finding benefits from things like massage.

    Hope this helps

    Best


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  • LindaButler1970
    LindaButler1970 Community member Posts: 40 Courageous
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    My leg brace is similar to that at 
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  • lozzer25
    lozzer25 Community member Posts: 89 Courageous
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    I don't have a leg brace it seems to be righteninģ itself finally I didn't increase the baclofen only thing orthotics give me was a heel elevator and that was no use xx could what I getting be foot drop what causes it
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  • lozzer25
    lozzer25 Community member Posts: 89 Courageous
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    Feels like a current is running through my leg all the time like electric 
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    Do you have sciatica @lozzer25? 

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • lozzer25
    lozzer25 Community member Posts: 89 Courageous
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    No 
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    How are you today @lozzer25? 

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • Stayce
    Stayce Community member, CP Network Posts: 843 Pioneering
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    Yes how are you @lozzer25? 

    Perhaps you have nerve entrapment or nerve irritation, people with CP can be very susceptible to nerve entrapments due to our tight muscles. Best to check this out with either a physio or osteopath. If you are not currently under one then speak to your GP to get you referred. Best to get these things checked out, especially if it’s still problematic

    Best
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  • lozzer25
    lozzer25 Community member Posts: 89 Courageous
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    I'm going to be leaving this site soon as I have just received my mri results which have come back normal so I mustn't have cerebral palsy must all be in my head thanks for all your help over the years 
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