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Applying for PIP stage 4 kidney failure and hospital/doctors records show NHS Neglect

melissahicking2019melissahicking2019 Member Posts: 122 Courageous
Hello everybody My name is Melissa, and i am relativity new to this forum and have been helping a friend with a PIP appeal.

I myself am now going through the same process of applying for PIP and i have required all of my doctors notes and records.

My story is a long one and begins at the age of 6 when i had my 1st UTI (water infection) , upon which my mother and farther took my to my local hospital to be diagnosed with UTI and Hypertension.

However the Doctors at the hospital became annoyed with my mother persistence and they did not look after me correctly. They did put me in for an ultra sound and they did medicate me for 3 months and they did take another urine sample a year later.

However they stopped any further treatment at this point (a year after first UTI) and they never monitored from that point on and never diagnosed my kidneys failing. My doctors records show that from 1998 up unttil 2001 they never did anything for my kidneys and failed to treat me for them failing, even though we went to the doctors with the side effects of the deterioration of my kidneys and the doctors simply sent me back home without looking into the seriousness of my condition and they neglected to diagnose my failing kidneys. 

Since then in 1989 i had problems with wetting the bed and a weak bladder, constant headaches and fevers , and general ill health, however the doctors never continued to look into the possibility of a kidney problem and they simply sent me back home with my mother every time we went to the doctors.

they never took me back in for ultrasound and they never continued medications or diagnosis . It was not until 2001 when i had a serious water infection that nearly killed me that i found out that ever since the age of 6 (my 1st UTI) my kidneys had been getting weaker and more enlarged and failing, up to the point of me becoming a stage 3 kidney patient. at which point real treatment and investigations began...

I am now in 2019 being prepped for transplant and dialysis and am current at 4% kidney function in both kidneys and a stage 4 kidney patient on the highest dose of medications currently available.

My illness disables me even from getting up the stairs to goto the toilet and my life has basically been destroyed by this illness and even the doctor in 2001 stated in her records that my condition had not been correctly investigated at the age of 6 onward and that my current situation is due to the neglect of the doctors in 1989.

My mother has told me that she will never forgive the doctors for not looking into my illness correctly and monitoring my health from then onward as if they had of done and medicated me correctly from the age of 6, i would not be in this condition now. She wants mew to goto Citizens advice and take all the doctors records with me and see if there is a case for the HNS to answer too.

My concerns are that maybe we need specialist help with this matter and we should also be seeking the help of a solicitor and a health specialist.

I am hoping that this forum will be as helpful with this circumstance as it has been for my friends PIP appeal.  The people in the this forum have been really helpful and have given me and my friend the best advice possible and we eventually won the appeal with all your help.

Unfortunately this forum is for PIP so i cannot really discuss this matter correctly here but  i am currently looking for professional advice and information .

If anybody can help ,please get in touch with me and i can possibly send you copies of my notes and the paperwork ect and maybe somebody could advise me of what to do and if there is a case for neglect..

I understand if i am in the wrong place completely but i don-not know where to start. So any help and advice would be gratefully appreciated.

Yours hopefully.

Melissa.

Replies

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    I'm sorry you've been through all of that. However, we are not medically trained here so can't give you any advice regarding this. We are also not experts and most people that give advice here are claiming benefits theirself for one reason or another.

    You really do need to get some expert face to face advice regarding all of this. This link may help you find what's available for free in your area. https://advicelocal.uk/

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • atlas46atlas46 Community champion Posts: 827 Pioneering
    Hi @mellisahicking2019

    Sorry to learn of such poor care you have received from the NHS.

    You need to seek expert advice from solicitors, that deal only in medical negligence.

    They would seek expert medical advice about your case.

    Keep us informed and let us know on how you get on.

    Best wishes.
  • cristobalcristobal Member Posts: 966 Disability Gamechanger
    @melissahicking2019 - it sounds like you ought to seek legal advice from a solicitor specialising in medical negligence as this is quite a specialist area.
  • melissahicking2019melissahicking2019 Member Posts: 122 Courageous
    Thank you for your reply's.

    I am doing my best under the circumstances and Now that my friends appeal is over and i can concentrate on my own problems

    i will be able to do alot more investigations on my computer and hopefully i will find the right sort of forum and or advice.

    I completely understand that there is little help anybody here can offer me and im very great-full for all your help either-way.

    if anybody can offer any links or direction i will be very great-full.

    Thanks again.

    Melissa.
  • wilkowilko Member Posts: 2,206 Disability Gamechanger
    Hello, as others have said you need special advice as this looks from reading the post that a clinical negligence case could be in the making, but there is a time limit from the appreant incedence of neglect to making, starting a claim it many years but not open ended time span. If using a no win on fee lawyer agency they can take up to and mor of any compensation 35%
  • atlas46atlas46 Community champion Posts: 827 Pioneering
    atlas46 said:
    Hi @mellisahicking2019

    Sorry to learn of such poor care you have received from the NHS.

    You need to seek expert advice from solicitors, that deal only in medical negligence.

    They would seek expert medical advice about your case.

    Keep us informed and let us know on how you get on.

    Best wishes.
    Hi again

    Please read my post again, to ensure the advice I provided, is understood by you.

    As I am concerned that you believe you will be able to be provided with links to a forum or advice, to enable you to pursue a claim for medical negligence, that would be the worst thing for you to engage in.

    As I have explained you need to seek expert legal advice, who will then commission expert medical advice, to consider the merits or otherwise of a potential claim.

    Or putting it in lay terms, if you disturbs the hornets nest by your “research and investigations”, 

    Then the best Philadelphia lawyers, money can buy, will all be hospitalised with hornet’s stings and will never recover from their bites.
  • April2018momApril2018mom Member - under moderation Posts: 2,882 Member - under moderation
    edited June 2019
    You need to seek professional legal advice. There are medical injury and negligence lawyers all over the country. Once you have received high quality advice then you can pursue a claim. Please keep us posted.
    Good luck! Make sure you use a reputable trustworthy company. Read reviews and shop around. If there are any other questions on your mind, please don’t hesitate to ask them on here. 
    Do you have any copies of your records or paperwork? I keep all letters and other paperwork in a folder in a filing cabinet. Do contact the doctors and see if they can send you letters etc. Have you ever seen your own records? When I am at a appointment I ask for a copy for my own records. 
  • drewdundeedrewdundee Member Posts: 49 Courageous
    Hi there,

    Prooving medical negligence can be really hard especially over protracted peroids of time, you would have to prove that they failed to diagnose and or treat a condition, and that this has left you worse off. I hope that they are able to find you a donor kindney as soon as possible so you can focus more on your recovery.
  • bracabraca Member - under moderation Posts: 85 Pioneering
    @melissahicking2019
    I don't know about neglect by NHS so can't offer any info on that issue, 
    When you say that your Kidneys are enlarged and you are stage 4 kidney failure with kidney function 4% and being prepped for dialysis and transplant are you certain about your figures ?
    From my own experience stage 4 is up to your kidneys function reach 15% and then stage 5 when you are at end stage kidney failure and only option is to have dialysis or kidney transplant, I would say apply for PIP as conditions from this illness do affect your ability to cope with daily activities... 
  • melissahicking2019melissahicking2019 Member Posts: 122 Courageous
    my last sick note says stage 4. but my specialist tells me im in last stages and soon be on dialysis and transplant by 2020. And my kidney function is indeed 4% between the 2. But im on the highest doses of blood pressure tablets. i will soon bee fitted with the fistula for dialysis. with the hope of being transplanted as early as 2020.. I hope i will live through it all before transplant.

     Im also going through my PIP claim and im sure that after my friends disgraceful denial that i too will be sent through the same routine in order to receive  the necessary benefits. only last week did the PIP decide they was going to do a home visit after i filled in the application then rang them to tell them to wait until they received my medical evidence before making any further progression as i was hoping to receive a paper based decision given my condition and the robust evidence available..

    so i rang them to cancel and i am now sending them the paperwork.. Nice of them to wait instead they where going to deny me the right to be assessed correctly with evidence and they also denied me my rights to be assessed by paper based review.

    I am also going through the ESA claim and being assessed for work capability now too so iv got triple paperwork stress and worry to deal with along with the likenesses that DWP will do their best to put me through a years wait before awarding me my disability payments ect..

    Its a nightmare that i have just been through with a friend whom is also very ill and he too was disgracefully denied a PIP continuation even though his condition is severe and unliklley to ever get any better.

    Im sorry but i have little hope left im afraid to say.

    But thank you for your concerns.

    MEL.
  • melissahicking2019melissahicking2019 Member Posts: 122 Courageous
    Hi there,

    Proving medical negligence can be really hard especially over protracted periods of time, you would have to prove that they failed to diagnose and or treat a condition, and that this has left you worse off. I hope that they are able to find you a donor kidney as soon as possible so you can focus more on your recovery.
    Yes  your right. fortunately i have the paperwork , doctors / hospital records proving they where incompetent and wouldn't listen to my mother and they did not correctly monitor / medicate / control or diagnose kidney failure after several water infections / UTI's . instead they called my mother neurotic and sent me home after the 1st water infection because my mother kept me off school for weeks at age 6 with The symptoms showing daily.

    They sent me for a scan , medicated me for 3 month , did 1 urine sample. then left my kidneys to deteriorate for another 10 years until i had a severe UTI that nearly killed me and them it became apparent to my New doctors that the NHS and previous doctors had failed to Limit the progression and or diagnose my failing kidneys for so long that it nearly killed me when i became a stage 3. 

    The doctor who took me to the hospital in his own car after being called out in an emergency wrote in his records that my condition back in 1989 was seriously overlooked and incorrectly addressed and that this had led to my inevitable kidney failure.  The Paperwork and records show that they just left me under diagnosed after the original water infections even though my mother than after constantly took me into the doctors , to the point that the doctor to my mothers face called her neurotic and to get me back to school and stop bringing her child to the doctors.  

    My mother was so upset she requested a second opinion when the doctor began to actually shout at my mother to get out of the doctors and send me back to school.

    Can you believe it.

    Then their neglect basically killed me.


  • melissahicking2019melissahicking2019 Member Posts: 122 Courageous
    edited June 2019
    And it gets worse, at the time of my near death i claimed for incapacity benefit for a year, only to be taken off it at my next review.

    I claimed income support ever since until i became a stage 4 presently , now iv just began my claim for PIP and ESA , only to find the system is even worse now and im likely to be put through an appeal process to get my pip and ESA..

    And all because of MONEY.

    It makes me Sick.

    literally.


  • melissahicking2019melissahicking2019 Member Posts: 122 Courageous
    edited June 2019
    I have been up all night for various reasons and i have applied to speak with 2 advisers.-

     the 1st is https://www.freeths.co.uk/legal-services/individuals/

    i have seen good reviews about freeths so  i am hoping to speak with them soon about my possible case

    and i also applied with another no-win no fee thingy , but im hoping to speak with freeths

    iv got alot of investigations to do so im going to need all the help i can get

    Thank you for everybody heres help.

    I really do appreciate it.

    Melissa.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,
    I thought you were claiming universal credit and not ESA?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • bracabraca Member - under moderation Posts: 85 Pioneering
    @melissahicking2019
    There is no cure for Chronic kidney disease and Renal doctors would give you medication and lifestyle advice before end stage kidney failure happens at stage 5 and eFGR 15% ( kidney function ) If Renal doctors advised you had to go on Dialysis before Fistula is made then they can give you an emergency neck line, As for transplant they cannot predict you will have new kidney by 2020 unless one of you family or friends offers one of theirs to you as long as they are a match and this process could take 6 to 9 months.

     As for PIP good luck as I do know from experience that symptoms from end stage kidney failure do affect a persons ability to cope with daily living activities.:)
  • melissahicking2019melissahicking2019 Member Posts: 122 Courageous
    Hi,
    I thought you were claiming universal credit and not ESA?
    Yes i am. but now i i am having to do th work capability assessment. i thought this was for me to go onto ESA support group.
  • melissahicking2019melissahicking2019 Member Posts: 122 Courageous
    braca said:
    @melissahicking2019
    There is no cure for Chronic kidney disease and Renal doctors would give you medication and lifestyle advice before end stage kidney failure happens at stage 5 and eFGR 15% ( kidney function ) If Renal doctors advised you had to go on Dialysis before Fistula is made then they can give you an emergency neck line, As for transplant they cannot predict you will have new kidney by 2020 unless one of you family or friends offers one of theirs to you as long as they are a match and this process could take 6 to 9 months.

     As for PIP good luck as I do know from experience that symptoms from end stage kidney failure do affect a persons ability to cope with daily living activities.:)
    The paperwork i have from my specialist states that he has a view for me to be on dialysis & transplant list for 2020. Iv just recently been to the hospital to be educated about the procedures ect,

    we saw the dialysis patients and machines, had a chat with a guy who has the fluid in his stomach instead of the fistula and he has to empty it everyday . and we got some documents and a dvd to take home.

    my paperwork says im a stage 4 with 4% kidney function???

    thank you everybody

    MEL.

  • melissahicking2019melissahicking2019 Member Posts: 122 Courageous
    edited June 2019
    ilovecats said:
    So you started your PIP claim without all of your evidence ready then asked them to wait for you to get it?
    yes... and i wont be the first or last person to do so.

    Was there any need for such a Patronizing comment....
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,
    I thought you were claiming universal credit and not ESA?
    Yes i am. but now i i am having to do th work capability assessment. i thought this was for me to go onto ESA support group.
    No, you're claiming UC, not ESA and they are slightly different. UC pays monthly and ESA pays fortnightly. I did explain all of this in a previous thread of yours.

    The work capability assessment is to see if you have limited capability for work. Once you're assessed and a decision is made you'll either be given limited capability for work (LCW) limited capability for work related activity (LCWRA) or you'll be found fit for work.

    If the decision is LCWRA then you'll receive an extra £336 per month from the 4th month of your claim from when you first sent in your sick note.

    There's no disability premiums payable on UC.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • melissahicking2019melissahicking2019 Member Posts: 122 Courageous
    edited June 2019
    "No, you're claiming UC, not ESA and they are slightly different. UC pays monthly and ESA pays fortnightly. I did explain all of this in a previous thread of yours. "

    ok thanks for the Correction.

    I often Wonder....


  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You often wonder what? Sorry but i'm not understanding that comment.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • melissahicking2019melissahicking2019 Member Posts: 122 Courageous
    edited June 2019
    You often wonder what? Sorry but i'm not understanding that comment.
    I was thinking about that ladys patronizing comment. 
  • bracabraca Member - under moderation Posts: 85 Pioneering
    Hello @mellissahicking2019 Can you tell me if you were diagnosed with Polycystic kidney disease ? I still can't get my head round that you are now at stage 4 end stage kidney failure and your kidney function is 4% and have not yet had Fistula inserted in place for preparation for dialysis, From what I have been made aware of is that Renal consultants would not let patients under their care go below 6% before starting dialysis and still maintain that stage 4 is between 30% and 15% . you can survive with only one working kidney as what happens when you receive donor transplant as your own existing kidneys have failed and can't function properly to remove waste from body...

    As I said previously you will have problems such as constant tiredness  swollen ankles loss of appetite leg cramps light headedness from high blood pressure and all of theses plus more will affect you with daily living activities and mobility, So do apply for PIP but do remember know two people with same condition are affected the same, but do try and gather evidence from Renal consultants that will support your claim... good luck.


  • mikehughescqmikehughescq Member Posts: 5,421 Disability Gamechanger
    ilovecats said:
    So you started your PIP claim without all of your evidence ready then asked them to wait for you to get it?
    yes... and i wont be the first or last person to do so.

    Was there any need for such a Patronizing comment....
    Symptomatic of a particular world view which thinks that 

    a) you can’t get PIP without medical evidence. Even DWPs stats show that more claims are successful without than with, and, 

    b) that the only purpose of medical evidence is to support benefit claims. If only life were that simple.


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