I don’t know who to turn to, my question is
complex but affecting my mental health. Plus l cannot phone anyone for support
as DEAF since Meningitis young age. That along with physical disabilities means
l had been on income support then that changed over to ESA not smoothly l was
put in WRAG group but after attending WRAG they could see it was hopeless and l
eventually was put on ESA.
My long term DLA: I was notified November 2017
DLA was coming to end in four weeks l had to get 33 page form and evidence back
within 28 days it was a nightmare that has essentially destroyed my health
physical and mentally further and stripped me of confidence (what little was
left) then onto PIP, after long wait for face to face as they needed a
palyntypist to interpret for me, it lasted 2.5 hours I was traumatised fatigued
eye strain nauseous same repetitive questions already answered in forms only
difficult as I am unable to pronounce certain medication or medical terms as I
never hear them so had written them on forms as per consultants and help of Google
as to what they meant for anyone not medically trained (much like myself) the
DLA to PIP change started 2017 completed late 2018 yes months after as took
while to get interpreter I do not sign BSL.
I then was downgraded from High care and High Mobility the local CAB
said that I would not win a Mandatory revision but I really did not understand
the descriptors and it physically hurt my brain to study one question at time
and what words they needed in order they require but GP stated in new letter
for MR that I cannot walk more than 10 metres and I spent almost the full 28
days every day alone writing for several hours or typing which was both painful
and had a huge impact on my physical health. My GP did letter stating my
limitation on mobility over 10 metres which turned it into continuing enhanced
care and enhanced mobility.
This was same time my mobility car was due for
renewal so it all clashed and after initial letter stating no enhanced mobility
I had endless letters from motability about settling car amount send cheque for
ridiculous amount or surrender car and at same time unknown to me the payments
were not made so after I had mobility at enhanced rate reinstated I owed
motability operations and had to make payment plan that took 10 months to clear
The same will happen in 2021 when the review
will happen and I personally think it’s because DWP know I turn 66 in 2021 and
trying to rob me of mobility/PIP I am fraught with anxiety since last year
worried about the year 2021 as again it will be car lease up for renewal and
another collision course
DWP change over forms assessment nearly drove me
to suicide. I reach retirement age 66 in December 2021 and PIP will be reviewed
same year which l believe is intentional to knock me off PIP so it's like a
collision and since horrific trauma of PIP 9 months of hell anxiety food banks,
l need to know more or try to understand what will happen in 2021.
Nothing in local area Conservative controlled
area no concessions at local leisure centre no disabled needs they even refused
an Occupational Therapist report to install a shower for me after several
falls. The local CAB are funded by the same council so I don’t hold out much
hope for help. I tried as changing over from ESA to Pension 2021 how does that
work I see on Google that I must apply for pension but if I do could it trigger
ESA stopping I know I cannot have both but it would be good to know smooth
transition from one to another.
l live alone and I’m terrified of the
future.
I am obsessing about 2021 as l turn 66 December
12th when everyone will be closing down towards Christmas. Local council
has no disabled needs or advice centres plus l am in social housing Council and
other support advice places online will not help unless you come under their
borough. I feel like this is a tragedy waiting to happen and I’m wasting what
time l may have left on earth in fear of change over as l realise l would not
be entitled to ESA but how does pension activate and continued PIP as my car
really is lifeline l cannot use phones so to make appointments medical health
consultants l have to go in person to request reschedule and as l cant use
public transport lm terrified of losing what little independence l have. I need
to know how this it all works.
I am so stressed out l cant eat focus
concentrate l want citizens advice bureau to assist as no family helped before
so I don’t expect any help now they never call or visit they will not cover or
bridge gap between ESA ending and pension. I live from week to week best month
November when annual water rates stop until following April and l then have
water rates to put towards heating for winter which l live in terror of,
cold weather. It's so embarrassing to have nothing/nobody to catch you if you
fall
Anyone with any advice I would be grateful. Know
it’s long (apologies)
Having been through this DLA-PIP journey so far if anyone wants any advise or help with PIP questions or anything if I know I will help in any way I can, feel free to message me and I am happy to help.
Thank you for reading
