PIP claim for the second time round..
Hi everyone, thankyou for letting me join this group.
I was born with right sided hemiplegia and since I can remember I received the standard rate of living and the higher rate of mobility under DLA. In August 2017, I was transferred over to PIP and have my face to face assessment. When I received my decision, under PIP I was to receive the standard rate of living and no mobility. At the time, I still had use of my own adapted car for my disability (that I initially got in 2007 when I passed my driving test and bought outright 3 years later) In October last year, the car broke down and the cost of repair was in the range of £4k - a price that (a) was double the worth of the car and (b) too expensive for me to afford to repair. As a result, I sold it to a scrapage company. In November I started the process under PIP to get my mobility component reinstated. After filling out the questionnaire, supplying additional evidence and asking my local MP for help, I had my second f2f assessment on Wednesday.
As well as hemiplegia I have PTSD, anxiety and depression plus behavioural issues relating to my hemiplegia e.g oversensitivity, emotionally instability etc - I had requested a home consultation and was refused so I attended the assessment centre. I found it very overwhelming and got upset and fearful at the beginning as I felt my assessor hadnt read my questionnaire properly. She asked if I was right handed or left and I said "I feel like you haven't read my questionnaire as any health professional I have been put infront of in my life understands that (right sided) hemiplegia is a type of cerebral palsy, a neurological condition that affects muscle strength and flexibility. It would be very difficult for me to be R handed - so therefore I'm left"
She then asked if I could perform some simple movements - and I said "not today, I"m in too much pain and I didn't sleep last night" - she then said could she look at my good side? I reluctantly agreed - and before I knew it (I was going in and out of concentration, I was so stressed) she was looking at and holding my right arm and hand. My support worker who attend the consultation too pointed out that I hadn't consented. And then the assessor was aggressive and said I had. I couldn't respond. I was too stressed.
At the end of the assessment I told her that I had qualified for HR motability under DLA and the decision in 2017 had severely affected my life (I'm currently on SSP since Feb 2019) as I can't travel to my place of work without transport. I barely leave my flat and am very isolated from my normal life. I have very little family support. I feel stress and anxious waiting the decision letter. They said it would be 4 weeks.
My MP has said that her contact at IAS (used to be atos) may be able to speed up the admin side once I'd had the assessment. Has anyone had a similar experience and/or can anyone offer any helpful advice? I'm considering complaining about my assessor as her manner was so cold and formal I couldn't cope and I'm petrified that again I won't qualify for motability component. The whole thing is making me so unwell with the stress and anxiety of it all.
Many thanks for your help
- 53.1K All Categories
- 10.4K Start here and say hello!
- 4.8K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities to get involved in
- 149 Community updates
- 12K Talk about your situation
- 1.8K Children, parents, and families
- 764 Work and employment
- 579 Education
- 1.1K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 278 Dating, sex, and relationships
- 264 Exercise and accessible facilities
- 21.3K Talk about money
- 2.1K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.3K PIP, DLA, and AA
- 2.5K Universal Credit (UC)
- 4K Talk about your impairment
- 1.3K Cerebral palsy
- 676 Chronic pain and pain management
- 700 Rare, invisible, and undiagnosed conditions
- 751 Autism and neurodiversity
- 929 Mental health and wellbeing
- 298 Sensory impairments
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.