Hi everyone, thankyou for letting me join this group.
I was born with right sided hemiplegia and since I can remember I received the standard rate of living and the higher rate of mobility under DLA. In August 2017, I was transferred over to PIP and have my face to face assessment. When I received my decision, under PIP I was to receive the standard rate of living and no mobility. At the time, I still had use of my own adapted car for my disability (that I initially got in 2007 when I passed my driving test and bought outright 3 years later) In October last year, the car broke down and the cost of repair was in the range of £4k - a price that (a) was double the worth of the car and (b) too expensive for me to afford to repair. As a result, I sold it to a scrapage company. In November I started the process under PIP to get my mobility component reinstated. After filling out the questionnaire, supplying additional evidence and asking my local MP for help, I had my second f2f assessment on Wednesday.
As well as hemiplegia I have PTSD, anxiety and depression plus behavioural issues relating to my hemiplegia e.g oversensitivity, emotionally instability etc - I had requested a home consultation and was refused so I attended the assessment centre. I found it very overwhelming and got upset and fearful at the beginning as I felt my assessor hadnt read my questionnaire properly. She asked if I was right handed or left and I said "I feel like you haven't read my questionnaire as any health professional I have been put infront of in my life understands that (right sided) hemiplegia is a type of cerebral palsy, a neurological condition that affects muscle strength and flexibility. It would be very difficult for me to be R handed - so therefore I'm left"
She then asked if I could perform some simple movements - and I said "not today, I"m in too much pain and I didn't sleep last night" - she then said could she look at my good side? I reluctantly agreed - and before I knew it (I was going in and out of concentration, I was so stressed) she was looking at and holding my right arm and hand. My support worker who attend the consultation too pointed out that I hadn't consented. And then the assessor was aggressive and said I had. I couldn't respond. I was too stressed.
At the end of the assessment I told her that I had qualified for HR motability under DLA and the decision in 2017 had severely affected my life (I'm currently on SSP since Feb 2019) as I can't travel to my place of work without transport. I barely leave my flat and am very isolated from my normal life. I have very little family support. I feel stress and anxious waiting the decision letter. They said it would be 4 weeks.
My MP has said that her contact at IAS (used to be atos) may be able to speed up the admin side once I'd had the assessment. Has anyone had a similar experience and/or can anyone offer any helpful advice? I'm considering complaining about my assessor as her manner was so cold and formal I couldn't cope and I'm petrified that again I won't qualify for motability component. The whole thing is making me so unwell with the stress and anxiety of it all.
Many thanks for your help