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Does anyone else have ataxia,

triciaCOOKtriciaCOOK Member Posts: 2 Listener
edited July 2019 in Neurological conditions
Looking for any one who has ATAXIA and how they manage and what treatment they have had please. 
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Replies

  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,997

    Scope community team
    Hi @triciaCOOK and welcome to the community. I believe a few of our members have Ataxia, including one of our community champions, @Ami2301.

    Hopefully she’ll be along in a bit and might be willing to talk about the condition with you.
    Senior Community Partner
    Scope
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  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    Hi @triciaCOOK welcome to the community! I have Sensory Ataxia, intensive physiotherapy has massively helped me control my Ataxia. There is no cure but finding the best ways to help you manage daily activities is important. If you have any further questions then please let me know and I would be happy to share my experience with you :)
    Disability Gamechanger - 2019
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  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Welcome to the community @triciaCOOK! I hope you are able to find people here who you can relate to :)
    Scope

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  • StickmanStickman Member Posts: 81 Pioneering
    edited July 2019
    I have Ataxia as a result from surgery to remove a brain tumour in 1974.  I think I read somewhere that there are 50 to 100 different ataxias!
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  • StickmanStickman Member Posts: 81 Pioneering
    OK, I find that going to the gym helps me reduce my ataxia.  I used to go to The Insitute of Conductive Education which also helped.
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  • SwordfishSwordfish Member Posts: 54 Pioneering
    I have Cerebella Ataxia caused by alcohol misuse, I was diagnosed by neurology  in 1994.past history cerebral haemorrhage and epilepsy post alcohol--dry for 25 years, benzodiazepines to control tremor ataxia  ( that was taken from a letter from my doctor) sent in with my M.R.   Zero points on first assessment.
    P.S. I realise some may have an issue with alcohol being the cause, never received any treatment for Ataxia 
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