Finances and extra costs
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How to fund a new electric wheelchair with tiling leg’s

KrystalKrystal Member Posts: 12 Connected
edited July 2019 in Finances and extra costs
good evening all I would not normally put up any thing to do with finances, I had an electric will chair which my husband brought myself in 2016 and it’s been a good send, I have been put on the waiting list for the NHS for a  wheelchair in 2018, I am now at the point that my wheelchair has given up the ghost. I can’t us a self  propelled chair due to a constant  Tremor in my right. I have tried all avenues to try and get help to  purchase a new or second hand or to get one on finance.  If anyone one this lovely community scope page can direct me to any one or a few people that  they would no and or would could help. Many Thanks from Krystal x 

Replies

  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Krystal, I'm sorry your current wheelchair has broken, this must be extremely stressful! I will have a look and hope the community may be able to offer some guidance in the meantime :)
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    Scope

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  • KrystalKrystal Member Posts: 12 Connected
    Good afternoon to u Chloe , thank u for  your reply, I appreciate it truly I do, it’s just I can’t go out like I would meet up with my daughter and take the grandchildren to the park. It’s very hard as well as I suffer from mental health  anxiety etc but hay I just found that when I could work etc and did not have a disability that people got lots of help etc. But ever since I was diagnosed with mental illness and my spaniel Disease called Arachnoiditis. It’s been a hard slog. I just have to fight for all that I need or to help me with my Disablement .  Truly  I do appreciate your message Krystal .
  • wheeliegranwheeliegran Member Posts: 20 Connected
    I can sympathise with your plight Krystal. Put pressure on your wheelchair services as when you had one they wouldn't have moved you up the list as you were adequately able to go out. 
    Get a letter from your doctor telling them how it's adding to your stress being unable to socialise etc. 
    I really hope you are sorted with a chair soon and you can enjoy life again 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Krystal, how are you getting on with this? :)
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  • KrystalKrystal Member Posts: 12 Connected
    Hi Chloe, yes tried all finding it difficult as can’t get out on my own as no chair family all away at moment and it had, my mental health is not good due to the  situation  Not much mo I can do at moment, talked about taken me into hospital as I have tried to commit  suicide  3 times so my doctors my O/T and social work are trying to help me in to some sort of rest bit / hospital 🤭😢😔
  • emmarenshawemmarenshaw Member Posts: 712 Pioneering
    Hello @Krystal welcome to the community. So sorry to hear of your struggles. It sounds like an awful lot for you to deal with. Just know that we’ve here if or when you need our support. 
  • pollyanna1052pollyanna1052 Member Posts: 1,998 Disability Gamechanger
    I had a previous electric wheelchair, with tilt and recline and raising legs on Motability. Had you thought of this?x
  • KrystalKrystal Member Posts: 12 Connected
    Yes I have but as I had a car I can’t have both it’s a shame,  but I just was told by my O/T  yesterday that the NHS for roughly time to be seen and I have been told it’s a 26 month waiting list 😡 hay never mind what can I do x Krystal x 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Krystal, I'm sorry to hear it has had such an impact on your mental health and that the waiting list is so long, that really is crazy!! I hope the hospital can continue to support you.
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  • KrystalKrystal Member Posts: 12 Connected
    Really NHS support. I have had no support at all, went to my doctors yesterday asked her 5 Questions and she could not answer any of them 😡 in the end I had to phone my O/T and my  physio as I was told she could not answer them until such time yesterday after some sort of medical meeting ?? Never heard of that one I no that my medical team have pod meetings about my my medical  problems  And my disability problems. My O/T is coming out one day next week as she fills it is a  safeguarding   Issue, All finger crossed I want to say Thanks to all of you for all your support 👍👍👍
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,923

    Scope community team

    Let us know how you get on @Krystal. Really sorry you feel like you're going without support but hopefully the OT will help you make some progress.
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    Scope

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  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    I'm really sorry to hear this @Krystal, I really hope the OT will be able to help!
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  • April2018momApril2018mom Posts: 2,869 Member
    How are things today OP?
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Krystal, how are you doing today? :)
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  • jajajaja Member Posts: 76 Pioneering
    Hello there @Krystal

    I wondered if you knew about shopmobility. It is a scheme run by councils. They are usually in town centres. You can borrow electric/manual wheelchairs and scooters. You should be able to find their details on your local council website. It might be worth a look.

    J

  • KrystalKrystal Member Posts: 12 Connected
    Hi all u lovely people on here ❤️💙❤️so not been on here 4 over a year life been very difficult over the last year. My mobility and my lung disease does not help, as well as the mixture of my mental health ? Still wanting for my chair it’s now ready but due to Covid 19 it put everything on back burner as I say. Can I ask can anyone help with council tax benefits, we have been on U/C since 2018 I get employment support allowance, we filled in all foams extra, anyway this year a council tax bill come though and it basically said we had to pay £800,00. I made contact with them and it’s all to do with U/V credit told the council tax benefits we where getting £ 1,000 a month well what a laugh I expand to the Council tax benefits department so he asked for our payment’s from April 2019 /2020 , it has come back we have to still pay council tax which the bill is only £ 175.75 for the year but I still think this is wrong, if their is any one on here that could advise me in any way I would truly be grateful.

    Krystal x 
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,923

    Scope community team

    edited June 2020
    Hi @Krystal! Sorry you're still waiting on your chair, but good news it's finally ready! I hope it won't be too much longer until you have it.

    As each council handle Council Tax Support differently it's quite difficult to offer advice on it. Most councils now require people to make a contribution even if their only income is from benefits.
    If you think their calculations are incorrect it would be worth you asking them for a statement showing the income they have used in their calculations and going through it to see if anything should have been disregarded or isn't correct.
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Really hope you get your chair soon @Krystal
    Community Partner
    Scope

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