News and opportunities
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Have you ever experienced long waiting lists or battled for SEN support services?

SENspecialistSENspecialist Member Posts: 5 Listener
edited July 2019 in News and opportunities

HAVE YOU EXPERIENCED LONG WAITING LISTS OR BATTLED FOR SEN SUPPORT SERVICES?

I am currently collecting data for my MSc Psychology dissertation module. If you are a mother of a child with developmental delay aged 1-7 years, please consider contributing to my research on the impact of delayed early intervention on parents self-efficacy. If you know of a mother of a child with a developmental delay please share the below link.

PLEASE COMPLETE BY 10-15 MINUTE SURVEY!https://blss.eu.qualtrics.com/jfe/form/SV_3VQ59WxcNMdtHgx

Long waiting lists are often a barrier to SEN support services for assessment, treatment and/or diagnosis. My research will examine the experience of mothers, who often become their child's main early interventionist. I essentially want to understand what it is like for a parent during this waiting period and through this research, to provide a clearer narrative of the parent's voice in special educational needs advocacy.

I will also be completing a series of interviews with parents and you can contact me at [email protected] if you are interested.

Replies

  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    edited July 2019

    Welcome to the community @SENspecialist and I wish you all the best with your dissertation research! I have not long completed mine (also in Psychology) so hope it goes well!

    The above post has been moderated and checked by the Scope Community Team. 

    Posts in the Events, research and opportunities is the only board that permits the publishing of an email, contact number or survey link. 

    Our website contains links to third parties’ websites for your information only. We have no control over the content of those sites or resources and we don’t endorse or accept liability for the content of them.

    Read the full Terms and Conditions  and the Community Guidelines.

    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • SENspecialistSENspecialist Member Posts: 5 Listener
    Thank you! I am a bit panicked as my uptake on the survey is very low but it's such a crucial subject!

    I have re-posted in the recommended section and thank you for your good wishes. 

    Kind Regards

    Kerry
  • dolfrogdolfrog Member Posts: 440 Pioneering
    I have done the survey.
    The problem in the UK is ignorant and incompetent so called support professionals who are years out of date regarding understanding the real issues and failing to provide any real support. 
  • SENspecialistSENspecialist Member Posts: 5 Listener
    Thank you so much for completing the survey! I am sorry to hear this has been your experience. 

    My aim is to provide a greater voice for parents who are often not listened to or taken seriously.

    Sadly, the uptake for this survey has been incredibly low which is disappointing as I have shared with so many parent groups. If you know of any other parents who could complete it, I would be very grateful. 

    I am also conducting a series of interviews, so please do not hesitate to contact me if you would like to share your experience! My email is [email protected]

    Kind Regards

    Kerry


  • April2018momApril2018mom Posts: 2,869 Member
    This is a important issue. I have filled out the survey too
  • dolfrogdolfrog Member Posts: 440 Pioneering
    SENspecialist 
    All of my family have a clinical diagnosis of having some form of the 4 Types of Auditory processing Disorders, which are totally ignored by the so called support professionals especially those in the education system. 
    The temporal type of auditory processing disorder is the main underlying cause of he developmental dyslexia symptom, what the dyslexia industry call a phonological processing deficit. 
    Another problem is speech and language who do not want to understand that Specific Language Impairment (SLI) now being marketed as Developmental Language Disorder (DLD) is also part of auditory processing disorders. 
    This all about so called support professionals massaging their egos and income, and failing to understand and provide the required support and understanding.
    And then there are the incompetent audiologists who only want  to sell hearing aids. 
  • April2018momApril2018mom Posts: 2,869 Member
    It happens to families like ours all the time. We waited several weeks to acquire braces for Little Man. We also spent several hours and days trying to access therapy for him too. Same thing applies to many of our hospital appointments with doctors. 
  • SENspecialistSENspecialist Member Posts: 5 Listener
    Thank you for completing the survey! I am up to 11 responses and I need at least 100. 

    I am grateful that you have taken time to share your experiences and confirms why this research is so important. There is virtually no research on the impact of the delays to access services and so it needs to be flagged up for things to change. 

    Please keep sharing and hopefully, I will meet the quota to include the data in the analysis. 

    Kind Regards

    Kerry
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Good morning @SENspecialist, unfortunately the only section where survey links and email addresses are allowed on the forum is Events, research and opportunities board. Due to this I have had to remove your reposts. I have added your post onto the unanswered section of the forum and I hope this will allow more member to see it. :)
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • SENspecialistSENspecialist Member Posts: 5 Listener
    Ahh!! sorry, I thought I had reposted but thank you for doing this!!! It is much appreciated. 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    That's not a problem @SENspecialist :)

    I hope you get more interest soon!
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @SENspecialist, how are you getting on with your research?
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
Sign in or join us to comment.