Struggling — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Struggling

GeorgieOg
GeorgieOg Member Posts: 3 Listener
So before I had cancer I was as fit as a fiddle, an average day would entail an early morning gym session, a full day of helping others at work I worked along side the police in Domestic Abuse, then after work a  HIIT gym classes, I had three children as a single mom and had a healthy work/life balance.
2015 I was diagnosed with breast cancer, I had three surgeries and radiotherapy, I then developed pneumonia, and have struggled to get back to me since. So recently was diagnosed with Chronic Fatigue and have lung issues, been referred to a respiratory consultant as I have had numerous chest infections that has impacted on my breathing. 
The issue that scares me is if I do too much, I literally crash, it feels like I am trying to cope with life through a vat of treacle, I can't even walk a set of stairs without stopping. I don't have the energy to talk even on the phone, I have to sit and watch uncomplicated films, TV shows. It comes over like a huge shroud and nothing except resting for a few days will help. 
The problem is that there is no one I can turn to to get advise, my GP service is so stretched and they seem to just send you away with antidepressants, I am not depressed, I get low yes because I am a quarter of the lady I used to be. But I am not getting any advice as how to manage my symptoms. The real me is a go getting, bubbly, full of fun lady, this is not in my mind this is my body letting me down.
Can anybody advise 

Comments

  • dolfrog
    dolfrog Member Posts: 441 Pioneering
    Hi @GeorgieOg
    What you have described is an acquired disability, which can happen to anyone especially from mid life onwards. What you have described is similar to those who have a stroke, and from there on have various types of issues resulting from the stroke.
    This can include working memory issues due to the working memory overload causes by having to cope with the various issues you have described. Working memory is like the RAM of a computer, limited capacity, and it will crash if overloaded. if you have to develop and use coping strategies to do things you previously did automatically, this can overload your working memory. 
    you have described issues which could be part of Aphasia, having problems processing sound based language.
    Aphasia can be the result of brain injury, stroke, atrophy, etc. 
    I have auditory processing disorder, a genetic life long listening disability, which has similar issues to aphasia. 
  • woodbine
    woodbine Community Co-Production Group Posts: 5,251 Disability Gamechanger
    My honest advice would be to change doctors, ask around see who people might recommend, you deserve better treatment than you are being offered.
    Offering PIP advice to people with epilepsy.
  • Adrian_Scope
    Adrian_Scope Testing team Posts: 8,074

    Scope community team

    Welcome to the community @GeorgieOg. It sounds like you've been through the ringer lately. I would echo Woodbine's advice about trying to change your GP if you don't feel like your concerns are being addressed though.
    Community Manager
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
  • Chloe_Scope
    Chloe_Scope Scope Posts: 10,565 Disability Gamechanger
    Hi @GeorgieOg and a warm welcome to the community. I'm sorry to hear that things really have no been easy for you recently! I hope you are able to get the support you need soon. If you need anything then please do let us know :)
    Scope

  • pollyanna1052
    pollyanna1052 Member Posts: 2,032 Disability Gamechanger
    Yes, to echo the others, I would say try a  different GP.
    Having been a fit, capable, rushing hither and thither busy mum, to what you now describe as only a percentage of the `real` you, is something I can identify with.

    Don`t give up...and I can almost hear you shouting back at me...`hell no!` Keep asking for help...why shouldnt you get it?. I am sure you have given your best and want to return to that place.

    Best wishes.
    Pollyxx

Brightness

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.