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PIP decision and aphasia

Hi. My husband had strokes several years ago in his 20s. He has aphasia whuch has affected his ability to say what he means, understand others correctly, read and write.
I have been going to appointments with him for this reason for the past 18 years. Makibg sure he is giving and receiving the right information and chipping in when needed.
He cannot read so cannot manage our household budget or bills.
Following his assessment for PIP (where I was present and through the assessment at several times I explained to him what was being asked or clarified the information he was giving) he was given the enhanced care rate but the points he got were primarily for physical issues. He got 0 points for communication and 0 points for budget and only 2 points for reading (implies he just needs me to read something out to him and does not take intonconsideration that I have to simplify and rephrase in several ways)
He got 0 points for planning and following a journey which I cannot understand either ... he cannot plan an unfamiliar journey, he does not have the reading skills to manage a map or a bus timetable. The only journey he takes alone on a bus is to his dad a 10 min journey away and I take him to the bus stop. Also got 0 points for getting around which we were expecting because the threshold for this is so high.
I feel so insulted by their decision. As a young man he would love to be able to plan an outing and get on the right bus at the right time without my help.
I dont really know what to do next. He cannot read or understand all the advice on these pages himself and I cannot simplify it enough to make sure he understands the challenges and risks of appealing.
I am so frustrated that he scored points for using the toilet ( the only reason I can think of is because he pits his hand on the basin but we did not say he needed help or that it was a difficulty for him) but nothing for his communication when he has aphasia and we are completely socially isolated because of the impact of his aphasia.
I have been going to appointments with him for this reason for the past 18 years. Makibg sure he is giving and receiving the right information and chipping in when needed.
He cannot read so cannot manage our household budget or bills.
Following his assessment for PIP (where I was present and through the assessment at several times I explained to him what was being asked or clarified the information he was giving) he was given the enhanced care rate but the points he got were primarily for physical issues. He got 0 points for communication and 0 points for budget and only 2 points for reading (implies he just needs me to read something out to him and does not take intonconsideration that I have to simplify and rephrase in several ways)
He got 0 points for planning and following a journey which I cannot understand either ... he cannot plan an unfamiliar journey, he does not have the reading skills to manage a map or a bus timetable. The only journey he takes alone on a bus is to his dad a 10 min journey away and I take him to the bus stop. Also got 0 points for getting around which we were expecting because the threshold for this is so high.
I feel so insulted by their decision. As a young man he would love to be able to plan an outing and get on the right bus at the right time without my help.
I dont really know what to do next. He cannot read or understand all the advice on these pages himself and I cannot simplify it enough to make sure he understands the challenges and risks of appealing.
I am so frustrated that he scored points for using the toilet ( the only reason I can think of is because he pits his hand on the basin but we did not say he needed help or that it was a difficulty for him) but nothing for his communication when he has aphasia and we are completely socially isolated because of the impact of his aphasia.
Replies
I understand that he is already on the highest possible rate for daily living but it worries me that there is no recorded recognition of his disability ito communication and understanding of reading and finances as this may affect other benefits like ESA or even PIP when he applies again. His abilities with regards aphasia have remained the same over the years since his strokes. Sadly it is even difficult to explain these complexities to him for him to make his own informed choice because of the language difficulties.