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PIP very worried need advice please

Hi, I have only just found this site and in need of some advice please.I applied for PIP had a medical & scored 0 points. I had an appeal ( same evidence provided) awarded a 10 year award. I am 61 years old by the way.
I suffered a stroke, then had a tumour & following brain surgery it has left me with severe visual & balance problems, where for an hour a day I can’t see properly. I am no longer allowed to drive & have Angina & Asthma also. I get extreme headaches and falls due to my balance issues.
I am now being followed when walking my little dog, where a call pulls in the bus stop & then the same car is near my home on my return. My home is being watched too these past few weeks. This is making me feel so worried & unwell.The same car was outside my home at 11.21 last night.
I have checked my PIP forms tonight & I clearly stated I could walk but had heaviness in my chest (angina) pain & was breathless on doing so & this occurred before 20 meters & I then had to use my pump & heart spray to continue but this was not always possible.
I also put that I understood the distance you were able to walk after was irrelevant & it was whe you felt the symptoms that was important regarding the mobility claim. I also stated that I did not know if I would be able to continue walking as I can loose my vision at any time & become unwell with an extreme headache & that I really need someone with me when I go out in familiar & unfamiliar places but this is not always possible as I am widowed & live alone. I was told as long as I needed the help it not matter if I did not get the help. I was still entitled to claim.
on the award form they sent me, their reasons state for awarding me enchanced mobility is because I can only walk 20 meters but this is not true.I did not say that or write that on my PIP application. I am so worried & if I did not need PIP I would ring & cancel the award. I was so happy to receive the award at the time I did not read through why I received it.
very grateful for any advice. Thank you.
I suffered a stroke, then had a tumour & following brain surgery it has left me with severe visual & balance problems, where for an hour a day I can’t see properly. I am no longer allowed to drive & have Angina & Asthma also. I get extreme headaches and falls due to my balance issues.
I am now being followed when walking my little dog, where a call pulls in the bus stop & then the same car is near my home on my return. My home is being watched too these past few weeks. This is making me feel so worried & unwell.The same car was outside my home at 11.21 last night.
I have checked my PIP forms tonight & I clearly stated I could walk but had heaviness in my chest (angina) pain & was breathless on doing so & this occurred before 20 meters & I then had to use my pump & heart spray to continue but this was not always possible.
I also put that I understood the distance you were able to walk after was irrelevant & it was whe you felt the symptoms that was important regarding the mobility claim. I also stated that I did not know if I would be able to continue walking as I can loose my vision at any time & become unwell with an extreme headache & that I really need someone with me when I go out in familiar & unfamiliar places but this is not always possible as I am widowed & live alone. I was told as long as I needed the help it not matter if I did not get the help. I was still entitled to claim.
on the award form they sent me, their reasons state for awarding me enchanced mobility is because I can only walk 20 meters but this is not true.I did not say that or write that on my PIP application. I am so worried & if I did not need PIP I would ring & cancel the award. I was so happy to receive the award at the time I did not read through why I received it.
very grateful for any advice. Thank you.
Replies
So if I can walk ok after taking heart spray & pump but can only do it some days,say for example I may feel ok at 6 pm to walk but then up through the night with my heart or Asthma & not able to walk my little dog the next day will it matter that they applied 20 meters?. Am I going to be trouble for not reading through what they wrote? Due to the visual disturbances I experience I can’t do anything realisable, safely or repeatedly. Just so very worried.
Thank you
If you feel you are being followed contact the police with times and dates also provide them with the registration number and description of the car and driver if possible.They can at least find out who is doing this and why. It may just be a coincidence but at least they will be able to reassure you there is nothing suspicious going on.
Debsidoo x
I'm sorry you are being followed, this must be so scary! If you feel at risk then please do contact the police. Getting that reassurance should help to put your mind at ease?
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This won't be Capita / ATOS - they are only interested in profit, and this would eat into their margins; I very much doubt that the DWP have this amount of slack that they can afford to trail an individual this way.
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use this link to pop postcode in to find your neighbourhood community police team, they may have a PCSO who can drop by for an informal chat, or call 101
https://www.police.uk/
Try & be kind to one another even if we may have different views.
I wait for the outcome, this was now a month ago and no reply as yet!
Any of the descriptors should have 'reliably' attached to them, so when they say that you can walk 20m they mean 'can only walk 20m reliably'
There may be any number of reasons why you cannot walk further 'reliably' - maybe you can walk further, but not every day. Or walking further causes you pain.
Not slept all night. I am still being followed & my house is still being watched. Honestly, this is making me a bag of nerves, despite not having done anything wrong. It is now a different car but they are doing exactly the same thing. They pull in & I walk past & I see them on their ipad or large phone & then they drive off further up the road until I reach them, then they drive away. When I return home, they are parked up quite near my house.
I have not been outside the door since last Friday. Then only to attend a Hospital appointment as I have been too unwell. I am never out daily & also unable to walk my little dog daily so why am I under surveillance & why is it ongoing?
Thanks x
Someone filming you is not totally unlikely although I doubt very much it is the DWP. I know of a number of cases where disgruntled people film someone claiming benefits to show to the DWP - is there a chance someone could be doing this?
Most likely case is the cars that are parking up are coincidental, particularly if they are local cars. Maybe this is a convenient place to pull up and use a mobile phone? Whatever the case, you are not doing anything wrong and worrying is only likely to make things worse, particularly your health.
Do you have a mobile phone? if so, why not take a video of what you see and show this to a PCSO? It is worrying enough if you believe you are being followed, but even more so if you feel you are not being believed.
I am so upset & so worried I feel really unwell. I called around to see all my neighbours yesterday evening, to ask them all if they had noticed a car parking up. Where I live there is no parking allowed, there are double yellows. There are only 6 houses & we are all
spread out. We all have drives, so when a car parks up it stands out. I explained all thats been happening since July, that I was ever so worried & going to report it again to the police, this time with a video clip. The neighbour living on the opposite side to me, told me in no uncertain terms, she had reported me to the DWP back in March ( I was admitted to Hospital in March due to my heart) & said hopefully it was them watching me! She said she had received my mail by mistake, opened it by accident & discovered I was in receipt of Pip. She informed the DWP that I appeared to walk briskly past her house & seemed fit for work! I told her if she had followed me around the corner she would have seen me stopping, using my heart spray & pump before walking my little dog. Also, I am so unwell, that some days my next door neighbour walks my little dog. I am a very private person but felt obliged to list my health conditions & their severity to prove I was not a fraud. She then calmed down, apologised, saying she did not realise how unwell I was but felt angry that she had to go to work while most people abused the system.I can’t believe anyone can be so malicious. When she had visitors staying over last Xmas, I even told them they could park in my drive. I am so worried. I don’t know whats going to happen. What do I do? I received my Pip payment last week is that a good sign? Thanks x
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My home is still being watched & I have reported it again to the police. It appears to be on going. I have not been well enough to go out with my little dog since I last posted. I have also had to cancel 2 Hospital appts as I have not been well enough to travel. I have received nothing from the DWP as yet. I have looked online & can find nothing in regard to how long they can continue to watch/follow me. I have my GP ringing later as I have not been sleeping & really suffering with stress & anxiety, worrying about the DWP calling me for a compliance interview. I have to write lists of questions to ask my consultants at appointments as I forget things & can loose my train of thought in conversations. When having questions fired at me I know I won’t be able to cope x
Please contact CAB on 0344 411 1444. They will look at your situation and advise accordingly to help you get your life back on track.
I have spoken with a lovely advisor at CAB & they suggested I write a letter of complaint to the DWP. Unsure though as I do not want to fan the flames so to speak. They did say also to contact them for support/advice if I receive a letter for a compliance interview. Police are not that helpful, maybe they know the cars involved belong to the DWP & not allowed to tell me x
As you say the police won't be able to give you the keeper details for the car but it does sound like it's one of your neighbours...
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I will follow your advice & note down all the details every time I go out, which is never daily. I always use my spray & pump, when walking, although the DWP probably will not have filmed me using these.
The DWP continue to watch my home & last night, the 2nd time in a week that I went out with my little dog, they were parked on the pavement waiting for me to arrive home, then drove off as I approached my drive.
Due to other health problems,I have never walked my little dog more than 3 times in any week, my neighbour does it for me.I do not know why they continue to watch me.
I never put on my application I couldn’t walk. I said I had pain, severe discomfort & was breathless before 20 meters & had to use my meds before I continued.
I rang CAB, then I rang Welfare rights & asked if they would look over my PIP application just to put my mind at rest but they said they do not do this x
I have not been too good & still so very worried. Thank you for asking x