How to access help — Scope | Disability forum
Find out how to let us know if you're concerned about another member's safety.

How to access help

Anonnymouse
Anonnymouse Member Posts: 15 Connected
There is no help.
Diagnosed by Cmht ... 18 months ago denied therapy as "too complex" to treat, no funding for specialists so they decided to try nhs therapy. Not successful. Now discharged from all mh services.
Still want to die. 
Tried referring back. Don't meet criteria.
Discharge wasn't planned. No meeting or any paperwork.
Don't have any friends. No family.
Exist in torment every moment of every day 
Had an assessment and had direct payments for carers but couldn't find any so direct payments have been stopped.
Tired contacting social worker ... nothing since March ...

Just been left to die.

They know. We simply don't matter. 



«1

Comments

  • dolfrog
    dolfrog Member Posts: 441 Pioneering
    Hi @Anpnnymouse
    We also have a corrupt local Community Mental Health Centre CMHT 
    From our experience totally incompetent and ignorant, completely failing to understand complex issues and completely unqualified to provide the services they fraudulently claim to provide, and protected by so called administrators and local NHS management.
    I completely understand what you are saying. 
  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    Hello @Anonnymouse   Pleased to meet you welcome.

    Thank you for joining and also sharing.

    Sorry to hear this.  I do understand what you are going through.

    I have mental health issues myself.

    I am one of the community champions. We guide, advise and help members who join the community.

    @buzzer has given you some excellent links to look at and consider.

    You entitled to good mental health. If this is not happening to you then you need to speak to your GP.

    Look at other options ones being mental health charities.

    Used this one last time.  https://www.richmondfellowship.org.uk.

    They can offer floating support or outreach workers. Look at wellbeing and health.

    I have been in a similar situation to your self. If mental health services from Councils are not working or being supportive.

    Helping you and giving you the right care. Then you need to revaluate your mental health needs.

    You done nothing wrong you must remember that. You need some help and support, guidance with your issues.

    Unfortunately in many instances including my self have been told can not help.  Or offered limited time on a contract of barely a few hours a fortnight .

    The system is over loaded, under funded and many services especially some Council ones are being strict with budgets.

    Also you may not be aware also staff shortages.  Not helping . These are no excuses to the way you have been treated.

    That is what is happening.

    I found must share this often back where I started from because of certain problems and issues with services.

    Usually with myself not either being agreed. To health care plans and goals and aims.  Which I did not entirely agree to .

    Say no a lot they will remove you. In my case by letter.

    Learnt to say yes.   I do know the difficulties around that and the reluctance sometimes to admit that.

    Being an old fashioned proud gentleman.  

    So find and use mental health charities.   Which many of them do listen to you.

    The one I suggested.

    Please if I can help further or you wish to talk to me. I am always here to listen.

    Please make use of any of the links.   Provided from previous posts.

    The Samaritans I used them many times .  If I need to talk always on speed dial.

    Please if you feel suicidal speak to them the numbers. Or take yourself to hospital dial 999.

    This forum helps me a lot. Many community members are similar situations to yourself.  Happy to share and care anytime.

    You a valued member of our community.

    Please take care.

    @thespiceman

    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • Adrian_Scope
    Adrian_Scope Posts: 8,572

    Scope community team

    Hello @Anonnymouse. I’m glad you’ve reached out to us. As a member of our community, you’re important to us and I’m so sorry to hear how much you’re struggling at the moment. It can be especially hard when you feel like you don’t have much in the way of a support network. 

    You mentioned not hearing from your social worker since March. Do you have a care plan in place?

    Our members have already shared some brilliant resources with you and I’d urge you to make use of whatever ones you can. 

    If you feel like you need to talk to someone, please as has already been said, get in touch with Samaritans (116 123). If you feel like you might be in immediate danger, call 999 or go to your local hospital.

    We’re here to support you, so if you want to keep talking here, you’re always more than welcome to.
    Community Manager
    Scope

    Tell us how to make the community better for you. Complete our feedback form.
  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    Gp re referred twice. Both times cmht say don't meet criteria despite them diagnosing the admission criteria ...
    No care plan
    Not able to use telephone so charity numbers don't help as we just go silent unable to speak
    Thanks anyways. Take care.
  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    No point complaining. They just twist it so the client is at fault. They are known to lie. A consultant once told us it was our fault a cpn had a breakdown ... we apparently took so much from them they had nothing left for themselves. So we are kinda just vile in the eyes of cmht. That's why they won't take us back. 
  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    Point proved eh ... 
  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    As said ... previous two written complaints have been ignored. They know we don't have anyone who is bothered so we are just left slowly destroying our body until it quits and dies. They know. It's fully recorded. They simply are not bothered. We have tried and we have nothing left to fight with so ... 
  • dolfrog
    dolfrog Member Posts: 441 Pioneering
    No point complaining. They just twist it so the client is at fault. They are known to lie. A consultant once told us it was our fault a cpn had a breakdown ... we apparently took so much from them they had nothing left for themselves. So we are kinda just vile in the eyes of cmht. That's why they won't take us back. 
    Hi @Anonnymouse
    We have been in the same position for some years now. All of my family have Auditory Processing Disorder (a listening disability or the brain not being able to effectively process what the ears hear), which has been diagnosed at the leading hospital Great Ormond Street Hospital (GOSH). University college London (UCL), and Sheffield University (NHS Sponsored research program). I even set up and ran a suppport organisation to help the Medical Research council gain government funding for a 5 year research program 2004 -2009. 
    But the local NHS Trsut Audiologists, Speech and Language, and Psychologists who should be providing what is described as multi - discipline support just only want to hide their ignorance and incompetence, and have failed to provide any support at all for the me and the members of my family (3 sons, and my wife all of whom have APD) There has only recently been one speech and language who i have hadto educate regarding the  complex nature of our disability. Even the so called support professionals who contribute to Scope are just as incompetent and try to avoid discussing our disability. 

    So you are not alone, Hopefully you can get some support from the other members here, and in your home area. 
  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    Mp only forwards on our complaints to cmht. We've told him they don't respond. Neither does he.
    Guess you all think we are lying.
    Not as easy as pick up the phone and ring...
    We go mute. 
    We can't ... that simple.


    We are asking for help.
    Guess we aren't worth it then.


    Thanks anyways. 
  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    No one gets it. We don't want s tomorrow. We want it over. Tomorrow will be no different. Silence. Purr silence. Out heart physically hurts we are they sad
    We want it over
  • Waylay
    Waylay Member Posts: 971 Pioneering
    @Anonnymouse I hear you. Please please hold on a little longer. Are there any charities around you who provide help? I got help through 2 charities.
  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    Can only use email.
    Don't think any do.
    And even flag is a struggle
    Fear kicks In too quick or the voice in our head won't shut up that we are wasting services so we quit. 
    As said we are worthless. We know this. 
  • buzzer
    buzzer Member Posts: 106 Pioneering
    Can only use email.
    Don't think any do.
    @Anonnymouse
    The links and info provided earlier in this thread offer a multitude of means of contacting emotional support organisations not just via telephone helplines, there are emails addresses provided as well as text chats and specific forums to help. 

    Try & be kind to one another even if we may have different views. 

  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    as Anonnymouse said:
    Can only use email.
    Don't think any do.
    And even flag is a struggle
    Fear kicks In too quick or the voice in our head won't shut up that we are wasting services so we quit. 
    As said we are worthless. We know this. 
    Arrrggghh we've just said email is a struggle as fear kicks in and the voices in our head won't let us.

    Honestly no one here is understanding our issue. Our fault not theirs. But just goes to prove how worthless and pathetic we are. 

    We are out. Save your  posts for someone who stands a chance.
    We don't.


  • dolfrog
    dolfrog Member Posts: 441 Pioneering
    as Anonnymouse said:
    Can only use email.
    Don't think any do.
    And even flag is a struggle
    Fear kicks In too quick or the voice in our head won't shut up that we are wasting services so we quit. 
    As said we are worthless. We know this. 
    Arrrggghh we've just said email is a struggle as fear kicks in and the voices in our head won't let us.

    Honestly no one here is understanding our issue. Our fault not theirs. But just goes to prove how worthless and pathetic we are. 

    We are out. Save your  posts for someone who stands a chance.
    We don't.


    Hi @Anonnymouse
    due to my Auditory processing Disorder (APD) I am phone phobic, my coping strategies are visual lipreading and reading body language, I have problem following sound based communication that requires an instant reply,.
     It can take me hours, days, weeks months, years, to understand what someone may have said. for me email and internet forum, are the only real form of communication with others i can really use.
    I can process what others have posted in my own time, and work out the meaning of the bits i do not fully understand. .
    And I can use a word processor to use multi coloured fonts to breakdown large texts into more managable smaller chunks.
    My only support is my immediate family, my wife and 3 sons, without them I would not be here.
    And the stresses they experience due to our genetic links to our disability makes me feel worse. 
    Especially as we get no support from the so called local medical support professionals and the various support groups. 
    Using the internet I have been running a support group for those who have our disability on Facebook, which in itself can be very stressful especially the comments we get from incompetent medical professionals who bogusly claim to understand the complexities of our disability. 
    I do get to feel the same as you do, and my only support comes from my wife and sons. 

    Hopefully you will find someone to help and understand your issues and you get the support you desperately need.
  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    Find someone where ? F we can't access anything we have zero chance. Thanks anyways.
  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    Exhausted from a night of night terrors nightmares coupled with a cocktail of sleeping medications which haven't worn off as not slept. Perfect mixture for more mental torment and hallucinating .... 
    Oh well. Will talk to the same four walls ... not as if there is any respite from any of it and the wonderful knowledge tonight will probably be the same ...but thanks for asking. 
  • Adrian_Scope
    Adrian_Scope Posts: 8,572

    Scope community team

    I'm sorry you feel like we don't understand what it is you need @Anonnymouse. What is it that you think would help you?
    Community Manager
    Scope

    Tell us how to make the community better for you. Complete our feedback form.
  • Anonnymouse
    Anonnymouse Member Posts: 15 Connected
    We were essentially a prisoner for 23 years. We did not escape until we were 23 ... we don't know what we need.. have no normal life to compare it to ... that's like asking someone who lives at the north pole who is in the middle of a heatwave what do they need to deal with it. They have no clue. It's alien .. we just know it shouldn't be torture. Existing should not be this hard

Brightness

Complete our feedback form and tell us how we can make the community better.