PIP, DLA and AA
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PIP f2f at home

SaffySaffy Member Posts: 88 Courageous
edited August 2019 in PIP, DLA and AA
They are doing a home f2f assessment. I'll be on my own. Changing from DLA to PIP. I had a benefit advisor fill in my form but he didn't write very much or answer the questions fully. He asked them (as me), to refer to my last DLA claim for info.
My problems are fibromyalgia/arthritis mainly. In pain all the time with limited mobility. Get higher rates of both personal care and mobility at moment.
What can I expect and how can I get the best results? I get confused and tire easily so know I will come across as unhelpful and reluctant to answer properly.

Replies

  • BaggiebirdBaggiebird Member Posts: 5 Listener
    All you can do is try and explain.Do not do anything that is painful just because they are visitors.Offee them a cuppa but maybe they wouldn't mind helping themselves?
    You can refuse on pain grounds to do their tests like grip and stand up sit down etc
    Mine is Thirs at home and dreading it.
    Best of luck xx
  • SaffySaffy Member Posts: 88 Courageous
    Thanks, mines Friday @Baggiebird. Hope you do ok and it goes well for you with a nice, kind assessor.
  • BaggiebirdBaggiebird Member Posts: 5 Listener
    Thanku ile let you know if I'm still in one piece lol
  • April2018momApril2018mom Posts: 2,869 Member
    edited August 2019
    Welcome to Scope!
    Have you looked at the PIP guides online? DR UK do a useful one covering all aspects of the process.  https://www.disabilityrightsuk.org/sites/default/files/pdf/PIPGuidetoclaiming.pdf
  • SaffySaffy Member Posts: 88 Courageous
    OMG they cancelled my f2f assessment for Friday, how can they do that?
    I'm stressed to the roof about it all, can't sleep, can eat or think of anything else I'm so worried, and they ring and tell me the assessor can't come. How long will I have to wait now, they wouldn't/couldn't tell me.
    I can't bear the thought of all the waiting and angst again!!
    Has it happened to anyone else?
  • SaffySaffy Member Posts: 88 Courageous
    PIP assessment.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Yes, it's happened to a lot of people, including myself and i was on the way to the assessment centre when they rang me. Unfortunately these things happen and people do become ill sometimes or something else may have happened in their life. It can't be helped.

    Hopefully you won't be waiting too much longer but once a date becomes available they will contact you.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • SaffySaffy Member Posts: 88 Courageous
    @poppy123456 , goodness, how frustrating for you. On your way to the centre too. You must have been furious.
    I'm so glad I've got a home f2f as it would cost around £80 in taxis for me to go to a centre. Imagine having to pay that money and find it cancelled.😱
    As I think my claim could  end up going to appeal (hope not), I was wondering how to go about getting access to my NHS  (GP) records. I want to see what I could use as supportive evidence.
    I need to get access soon so I can get the info I need to support an appeal in time.
    Do you know how I can do this poppy?
    Also, when I got the call today to say my assessment had been cancelled for Friday, and after I had calmed down a bit, I asked the lady who phoned if I would be able to use the A4 pages (14) that I'd  just handwritten as additional info for my PIP claim form. I explained I'd been unwell and had seen a benefit advisor to fill in my form but he had done it badly, not supplying the info asked for and answering question badly. Not at all what I would have written had I been able at the time. I therefore wanted to submit fuller, personal answers of how I was affected and not how HE thought I should be affected.
    She said just to show them to the assessor when I eventually get another one, and he will add them to my claim form.
    I said I thought he could not  take them as it breached confidentiality but she disagreed, saying he would go through my form and ask question based on my answers and would treat my extra A4 pages as part of his assessment, and would take them away. She said they were always getting sent further supportive info every day. She has confused me, but I sincerely hope she's right as I'm sure my extra info gives a much clearer relevant answer to the questions than HE jotted down.
    I will be making a copy of them just in case I need one for later.
    Thanks Poppy, I'm so grateful to you for your support.
    Saffy.
    Lol, predictive text eh!! Saffy came out as Daffy. Probably right lol.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Daffy? haha that's funny! made me laugh, thanks for that!

    To request your medical records you can speak to the receptionist at your GP surgery and just request them. Some people can request them online through patient access but with my GP surgery i wasn't able to do that so i just requested them at the surgery. I simply filled out a form, signed it and less than 24 hours later they were ready to view online.

    For the extra sheets of information then it's entirely your choice whether you take the chance and try to hand them in on the day of the assessment but i can tell you that during my daughters home assessment for PIP, the HCP was unable to take with him anything i gave him because of security reasons.

    You would be much better sending them ASAP to the health assessment providers by next day delivery (please note*** not DWP) before your next face to face assessment date. Making sure you add your name and NI number to the top of each copy you send. Attach a short letter to the front asking them to add this information to your PIP file.

    Hope this helps.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Yes, i was given an envelope during my daughters assessment but the envelope was addressed to DWP. Completely pointless really when by the time DWP receive the report, they mostly go with whats written in there and award like for like.

    I do agree with the handwritten notes though.

    @Saffy i really wouldn't worry too much. I've had plenty of badly filled in PIP and ESA forms in the past from a different advice centres and i never had a problem with any of my claims. It's only my last ESA form and my daughters PIP form that i filled out myself with lots of information and real life examples. The only difference was that my daughter had a paper based assessment the last time.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • SaffySaffy Member Posts: 88 Courageous
    @poppy123456, and @ilovecats , thank you both for your welcome replies.
    Hm, what to do.
    I  could get the extra pages photocopied asap then use them for reference during my assessment but send them off asap if I'm given an envelope to do so by assessor. OR, send them off, after copying, to the health assessment providers now and hope they can read them before my assessment. I'd know better if I had an idea how long it will be before I get another date.
    Or I could cover all possibilities and get 2 copies tomorrow and send the original off to providers. The copies I can keep to use as a reference in my f2f if my original  A4 copy hasn't been processed by then, and I could send the 2nd copy in if the assessor won't take it or use it in my assessment. Or am I complicating things too much?
    OK, I'll copy them and ask the assessor if she will accept the info on them in her assessment. If she won't then I'll send them myself to the provider asap afterwards with a covering letter.
    Sorry for rambling. It helps to put things down, it makes it less confusing.
    Does that sound like a good plan?? The last bit I mean from OK......

  • SaffySaffy Member Posts: 88 Courageous
    @ilovecats,
    So do I. It's what gets me out of bed.😺

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    It's your decision but i wouldn't risk waiting for the day of the assessment. If the HCP gave you an envelope then it will be addressed to DWP and by the time they receive it, they'll most likely have received the report back. As most decisions go with the report then by this time it will be too late.

    If it was me then i'd keep hold of them and use them as notes.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • SaffySaffy Member Posts: 88 Courageous
    @poppy123456 , thanks. I'll take your advice and keep to use as notes during my assessment. 
    I've been a got them copied in case assessor wants to take the originals  with her.
    Also been to my surgery to start the ball rolling to get access to my medical records. Thought I'd do it now  as it can take a few weeks. Apparently my surgery don't have it in place for you to look at them on line and so get a physical print out for you instead. Sounds like the old pre techno way of doing things. 
    As it may need to go to appeal I want to have any supporting medical evidence asap. Fingers crossed of course it won't go that way but best to be prepared. If I wait I may not be well enough to pursue it at that time, so just forward thinking.
    It's such a relief getting all that paperwork written up. I think I might actually sleep tonight.
    Thank you for all your advice, I'd have been in a mess without it.
    Saffy.

  • SaffySaffy Member Posts: 88 Courageous
    @Baggiebird , just wondering how your home f2f went on Thursday. I was keeping my fingers crossed for you.
    Saffy.
  • BaggiebirdBaggiebird Member Posts: 5 Listener
    Hi Saffy
    It was just one woman thank goodness.My friend had two people and felt very intimidated.
    She was here about 45 mins.To be honest I dont really know how it went. I will be requesting a copy of her report and one porky and I will be on that phone.My Daughtèr who is my Carer also felt like she didn't know how it went xx
  • SaffySaffy Member Posts: 88 Courageous
    Glad it wasn't as bad as your last one. I've heard the report can be a good indication of what the decision is likely to be, so I'm really hoping it all goes in your favour.
    Still awaiting another assessment appointment as the last one jumped ship. The longer I'm kept waiting the better, too much stress when it's imminent.
    Not sure what you can do if she lies unless you recorded it all.
    Let me know how things go.
    Good luck, Saffy.
  • SaffySaffy Member Posts: 88 Courageous
    @poppy123456.
    I've now been given a new date for my f2f, Aug 30th, unless they cancel again!!!
    Just so I'm prepared, if my PIP is refused, will my DLA be ended straight away or will I get the next payment when it's due and then stop?
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Saffy said:
    @poppy123456.
    I've now been given a new date for my f2f, Aug 30th, unless they cancel again!!!
    Just so I'm prepared, if my PIP is refused, will my DLA be ended straight away or will I get the next payment when it's due and then stop?
    Hopefully it will go ahead this time. If the worst does happen you'll receive 1 more payment of your DLA and then it will stop. It may not be a full 4 weeks though because DLA is paid 3 weeks in arrears and 1 week in advance, unlike PIP, which is paid 4 weeks in arrears.

    Good luck with the assessment! Do let us know the outcome and in the meantime if you have any more questions please do ask.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,924

    Scope community team

    Best of luck for August 30th @Saffy!
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  • SaffySaffy Member Posts: 88 Courageous
    Best of luck for August 30th @Saffy!
    Thanks Adrian. How long should I leave it before asking for a copy of the report? And who do I ask, DWP?


  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    I hope it goes well on the 30th @Saffy!
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  • JulieTuesdayJulieTuesday Member Posts: 47 Connected
    Hi Saffy I had my F2F done at home last week.  The lady was very sweet and never looked around our home even though I offered to let her see my bathroom and how I manage. She just asked to do some basic muscle tests on me sitting down and asked to see me walk about 6 steps in my living room. I think she was just checking that my words I wrote on my pip2 form were the same, it felt like a quiz to some extent. I have not asked to see a copy of the assessment as afraid to be disappointed, so I wait still on DLA and fingers crossed my next DLA payment is due next week, so I hope I get it. Good luck Saffy.  
  • SaffySaffy Member Posts: 88 Courageous
    @JulieTuesday , stressful time for you, waiting to hear, but hope everything goes well for you.
    I'll be sweating on getting my next DLA too. Assessment on 30th Aug, and my next DLA due 18th Sept.
    I've been trying to work out how on earth I'll ever manage on just my state pension. I don't expect they care about all the stress these claims cause. Oh well....
  • JulieTuesdayJulieTuesday Member Posts: 47 Connected
    I have a state pension too and thought if I don't get pip then maybe I could try for Attendance Allowance,  I'm not sure how these things work as I've never claimed for anything other than DLA. Don't get stressed I think maybe they are trying to help the oldies a bit more now as we are being forced over to PIP, it wasn't wanted and I would have thought that the state pension age should have been used to determine who goes to PIP or who stays on DLA. My DLA was indefinite and no reviews or anything, so no stress.  I'm trying to be positive.  :/

  • pollyanna1052pollyanna1052 Member Posts: 1,998 Disability Gamechanger
    I so feel for you all who have just had or are waiting for their f2f. Just got my letter in the post...my f2f is on 5th Sept...but at least it is at home!

    I did send quite a bit of evidence and was hoping, maybe naively, that they wouldnt need to see me.

    I`m 66, been on highest DLA since 2000. I have spastic paraplegia and need the help oof 2 carers and hubby for all personal care.

    Have everyone best wishes at heart
    xx
  • pollyanna1052pollyanna1052 Member Posts: 1,998 Disability Gamechanger
    edited August 2019
    I so feel for you all who have just had or are waiting for their f2f. Just got my letter in the post...my f2f is on 5th Sept...but at least it is at home!

    I did send quite a bit of evidence and was hoping, maybe naively, that they wouldnt need to see me.

    I`m 66, been on highest DLA since 2000. I have spastic paraplegia and need the help of 2 carers and hubby for all personal care.

    Have everyone best wishes at heart
    xx
    sorry, just to clarify...I need 1 carer at a time..not all 3....carers do 28 hours plus 2 sleepovers a week and hubby does the rest. I am a full time wheelchair user, need hoisting for all transfers.
  • JulieTuesdayJulieTuesday Member Posts: 47 Connected
    Pollyanna, I think you will be fine, your disabilities are so great how can they refuse.  I sent masses of consultants letters with my pip application and a letter from a caregiver, same as you prayed for a paper assessment. But I think they are reviewing most of the old DLA users to try and lower our money. Well, that's how I'm reading it on this forum from other posters. It seems so negative very few post a good positive reply. I don't wish to rock the boat and ask for my assessment review in case they are too busy. The assessor lady was quite nice but did cover every single question in the PIP descriptors that I had replied to on the PIP2 form. Just checking I knew what had been written I suppose, (which I did and more!)  Because we are older there is little chance our problems/illnesses will get better and I said this to her as well. Don't worry about the assessment it's not so bad at all. 
  • pollyanna1052pollyanna1052 Member Posts: 1,998 Disability Gamechanger
    Thankyou for your kind words Julie.
    Hope you get the right result too. xx
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,924

    Scope community team

    Hi @Saffy. Leave it about a week until after the assessment to request a copy of the report. Good luck and please let us know how you get on! 
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • SaffySaffy Member Posts: 88 Courageous
  • pollyanna1052pollyanna1052 Member Posts: 1,998 Disability Gamechanger
    I`ve decided not to request a copy of my report, as it wont tell me what award I will or wont get. I`ll wait for the decision letter.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    That's completely okay @pollyanna1052. :)
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  • SaffySaffy Member Posts: 88 Courageous
    Found out it will be ATOS coming to do my f2f on Friday. Anything helpful I need to know about them?
    Anxiety getting to me now .😧
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger

    A home assessment is the same as an assessment in a centre except it's in your own home of course. Do be aware that you will be watched from the minute they arrive. You will need to verify what you wrote in the PIP2 form as well as additional information, depending on what questions you're asked. The questions will be based on how your conditions affect you.

    Good luck and do let us know the outcome.


    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • cristobalcristobal Member Posts: 966 Disability Gamechanger
    @saffy - I had mine at home.

    I found it helpful to have my application to refer to as I don't have a good memory.

    I had a binder with a page for each category - and I made notes about extra things that I'd thought of.

    I also asked the assessor if she could go through things in the order they were on the form but she didn't - not sure whether her script on her laptop wouldn't allow it, or she was trying to catch me out by jumping about all over the place...

    Mine wasn't as bad as I thought it would be - although i was a bit nervous...

  • JulieTuesdayJulieTuesday Member Posts: 47 Connected
    Hi Saffy, it was ATOS who came to see me.  I think just answer all the questions honestly and try to remember what you wrote on your PIP 2 form, my assessor jumped about from one category to another and didn't follow through as on the descriptors on the pip form. Mine was a lady and very sweet really, but after reading some of the things others have reported it did scare me a bit. I wore what I would normally wear at home and I didn't try to tidy up especially for the visit, just come as you find me. I offered tea but she refused it.  Best of luck try not to worry and just think you deserve this it's your right and you are entitled to some help.    
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Saffy, I really hope it goes okay on Friday. :)
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  • SaffySaffy Member Posts: 88 Courageous
    Thanks everyone. I'm just worried she/ he will take my confusion, slowness and forgetfulness as me trying to avoid answering questions. Hopefully it will be someone nice who is prepared to be patient with me.
    I'm also a bit worried about them snooping while I'm using the toilet. I had an assessment years ago and the guy went through my rubbish bin while I was in the bathroom. God knows what he was looking for.
  • pollyanna1052pollyanna1052 Member Posts: 1,998 Disability Gamechanger
    Thinking of you for tomorrow Saffy. Lets us know how it goes and I do hope you`re not too stressed out.

    Having said that, I expect like me, you will be. Mine`s in 2 weeks. Take care sweetheart. xx
  • SaffySaffy Member Posts: 88 Courageous
    @pollyanna1052
    Thank you so much, I appreciate all the support.
    I'm spending this evening just reading through notes I've made to refresh my memory even though I know I'll forget it all by tomorrow, sigh!
    She/he is coming between 11 and 1, so sometime midday. I really hope it's early, I'll be even more nervous if I'm kept waiting.
    Of course I'll let you all know how it goes, although even if I think it went well, that doesn't guarantee anything. Might get a right misery like Victor Meldrew!!!

  • SaffySaffy Member Posts: 88 Courageous
    Well, had my assessment. Due between 11 - 1 and he arrived with just 10 minutes to spare. Was gone by 1.40, so took just 50mins.
    I mentioned about my benefits advisor filling in my claims form with only the scantest of information, but he just said he had asked all the necessary questions to be able to complete his report. 
    I don't know what to make of it when he said he had everything he needed and I'd be ok. I asked what that meant and he said 'you don't need to worry, you'll be fine'.
    Not sure if that was a genuine thumbs up, or his normal parting shot to everyone. Pleasant enough guy though. A mental health professional.
    I'm so glad it's over though. Much easier than expected but don't know if that's a good or bad thing.

  • JulieTuesdayJulieTuesday Member Posts: 47 Connected
    You sound like I felt after my F2F at home, I'm pleased for you that it's over.  You will start to remember all manner of things now I expect, what can we do once it's done, just wait and see.  Good Luck.
  • pollyanna1052pollyanna1052 Member Posts: 1,998 Disability Gamechanger
    Thanks for letting us know how it went Saffy. Sounds ok, but we can never tell, but fingers crossed for a good outcome.

    I said mine is in 2 weeks....it`s not...it`s next Thursday..5th...eeekkk!
    xxx
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    They are not supposed to say anything to you regarding any outcome because it's not for them to decide. My advice is wait a week and request the report to be sent to you. This will give you some idea what the decision is likely to be.

    Good luck.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • SaffySaffy Member Posts: 88 Courageous
    Thanks for letting us know how it went Saffy. Sounds ok, but we can never tell, but fingers crossed for a good outcome.

    I said mine is in 2 weeks....it`s not...it`s next Thursday..5th...eeekkk!
    xxx
    I know, but think of it another way. That's one week less of stress and anxiety to go through. Hope it all goes smoothly for you with the outcome you hope for.:D


  • SaffySaffy Member Posts: 88 Courageous
    They are not supposed to say anything to you regarding any outcome because it's not for them to decide. My advice is wait a week and request the report to be sent to you. This will give you some idea what the decision is likely to be.

    Good luck.
    Thanks Poppy, that's kinda what I thought. I suppose he could have been indicating he'd write a helpful report for me, but I know it's out of his hands once he sends that in. I expect he says something similar to everyone. 
    I'm already looking at a MR and an inevitable appeal. My glass half empty approach make me expect the worst, and anything better is a bonus. 

  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,924

    Scope community team

    Hi @Saffy, I'm glad it was easier than you expected! Will you be requesting a copy of the assessment report next week? 
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • SaffySaffy Member Posts: 88 Courageous
    Hi @Saffy, I'm glad it was easier than you expected! Will you be requesting a copy of the assessment report next week? 
    Thanks Adrian, yes I think I will, if for no other reason than to see if the assessors comment, 'you don't need to worry, you'll be fine' actually meant anything positive for me.
    In the report copy, how will I be able to tell if it's good or bad news?
    I meant to ask him how long I would have to wait for a decision, but in my relief it was over, I forgot!!!
    I've asked at my surgery for access to my medical records, just in case I need evidence to support an appeal. I thought they would just give me a password (after establishing my ID) so I could check them online. But apparently they don't have that system available (probably too expensive to update), and said it would take about 4 weeks to get my records. Have you any idea what form my records will be available to me in? The receptionist didn't seem to know.



  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    In report there will be dots against descriptors you should copy those into the PIP self test and at the end you'll be able to see what points, if any were recommended. Usually they go with the report.

    The HCP would most likely have told you what they tell everyone for timescales....6-8 weeks but it's nothing more than a guide.


    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Saffy, I'm glad the assessment wasn't as bad as you thought and I hope the report reflects how you think it went. :)
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  • SaffySaffy Member Posts: 88 Courageous
    Update. 
    Had a text to say DWP have received the report, so just phoned to ask for a copy. They said it could take up to 2 weeks but probably sooner.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Thanks for the update! I'll keep my fingers crossed for you!
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  • SaffySaffy Member Posts: 88 Courageous
    @pollyanna1052
    Good luck for Thursday, I'll be thinking of you. Saffy
  • April2018momApril2018mom Posts: 2,869 Member
    Good luck @pollyanna1052! Keep us updated. 
  • SaffySaffy Member Posts: 88 Courageous
    In report there will be dots against descriptors you should copy those into the PIP self test and at the end you'll be able to see what points, if any were recommended. Usually they go with the report.

    The HCP would most likely have told you what they tell everyone for timescales....6-8 weeks but it's nothing more than a guide.


    Hi @poppy123456 , could you please tell me if there is a link to the PIP self test you mention? I want to look through it before my report copy arrives. Thanks, Saffy.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Not one of my favourite links but here you go. http://www.mybenefitsandwork.co.uk/pip/indexxx.php

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,924

    Scope community team

    Hi @Saffy, how did you get on with the self test? It's important to be critical and ensure you understand the descriptors as it's quite common for people to mark themselves higher than an assessor might. Hopefully your report will arrive quickly so you can get a rough idea of what has been recommended. :)
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    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • SaffySaffy Member Posts: 88 Courageous
    Not one of my favourite links but here you go. http://www.mybenefitsandwork.co.uk/pip/indexxx.php

    Oh, why what's wrong with it. Is there a better one?
  • SaffySaffy Member Posts: 88 Courageous
    Hi @Saffy, how did you get on with the self test? It's important to be critical and ensure you understand the descriptors as it's quite common for people to mark themselves higher than an assessor might. Hopefully your report will arrive quickly so you can get a rough idea of what has been recommended. :)
    I think it would be wrong to get too optimistic on my own testing, as you point out, the assessor might not be so generous. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Saffy said:
    Not one of my favourite links but here you go. http://www.mybenefitsandwork.co.uk/pip/indexxx.php

    Oh, why what's wrong with it. Is there a better one?
    The reason is because if you don't fully understand the PIP descriptors then it's very easy to over score yourself. So many people think they should score x amount of points for an activity but it's not always possible to score those points.


    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • SaffySaffy Member Posts: 88 Courageous
    @poppy123456
    Thanks for the 2nd link, I think it will be far better to use this when I get my assessment report copy.
    I agree that it's easy to over rate yourself on the descriptors, mainly through not understanding them properly, so I'm very grateful for your help. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    To add up any recommended points, it's easier to use the PIP self test but to have more of an understanding of the descriptors then read that link.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • SaffySaffy Member Posts: 88 Courageous
    Update. After my f2f at home Aug 30th I had a text Sept 3rd to say the assessors report had been received. I phoned to request a copy and was told it could take 2 weeks 
    I've been waiting patiently since then, and yesterday, Sept 19th I had a letter dated Sept 13th  to say they now have everything they need to make a decision and I don't need to do anything.
    So.....Does that give any indication of how long it will be before I hear of the decision. And also, is there any point in chasing up the assessment copy now. It seems a bit pointless if a decision is imminent?
    Thanks, Saffy.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    The letter is just a standard letter they send everyone and doesn't really mean anything. A decision can still take 8 weeks after this letter.

    It's definitely still worth ringing again to request the report, while you're on the phone you can ask if a decision's been made.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Saffy, I hope you are able to get this clarified soon. :)
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  • SaffySaffy Member Posts: 88 Courageous
    Hi @Saffy, I hope you are able to get this clarified soon. :)
    I'm going to call them on Monday. Thank you.
  • SaffySaffy Member Posts: 88 Courageous
    The letter is just a standard letter they send everyone and doesn't really mean anything. A decision can still take 8 weeks after this letter.

    It's definitely still worth ringing again to request the report, while you're on the phone you can ask if a decision's been made.
    I'll ring after the weekend. Maybe I'll get the copy in my post tomorrow 
  • SaffySaffy Member Posts: 88 Courageous
    I've just received a copy of my f2f home assessment for PIP. They had to send me a 2nd copy as I didn't receive the first.
    It's full of holes you could drive a bus through but it's his word against mine so no point fighting.
    He said I told him I was having a bad day. Lie. I deliberately said it was a good day so would know I was feeling ok and not at my worst.

    He says I have no restrictions on my licence so have adequate cognitive ability. No mention of the fact I haven't driven for over 20 years and couldn't if I tried now. He didn't even ask me if I could drive!

    He says my glasses are effective when I'd just told him I'd just had cataract surgery and my vision was very poor and was awaiting an appointment with optometrist.

    Says I wasn't wearing my hearing aids although I told him I can't as they make me nauseous as they irritate my vegas nerve.

    Did not appear tired. Huh! I told him I was really tired and usually had a sleep at that time, 1pm.

    He said I could get in and out of the bath with assistance. Actually, I don't have a bath, only walk in shower.

    The thing that annoyed me most was him stating I walked to the toilet and back with a stick and can walk around the house! It's a tiny bedsit with bathroom only 5 steps away. He did not ask me to walk anywhere so has no idea how far I can walk, yet says I can go more than 20 metres.

    On his report he's given me 11 points for daily living and 10 points for mobility. Both just 1 pt short of the enhanced rate. 
    I'll have to wait for the decision letter, but provided I'm awarded standard rate for both components, is it worth me going for MR?  Oh, and he recommended review in 2 years.
    What do you think?
  • worried33worried33 Member Posts: 399 Pioneering
    edited October 2019
    When you go for MR/appeal it should be on the basis you know you fit the missing descriptors not just because its an option, if you didnt get descriptors you believe you should have and are prepared to risk a worse decision been made then by all means go for it, making sure to explain why those descriptors apply to you.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Saffy, I am sorry the report it so inaccurate! Are there any descriptors that you feel you should have got and didn't because of the inaccurate information on the form?

    This could give you grounds to appeal. However, this is completely your decision. If you feel happy with the result and don't want to go through the appeal process then it is completely okay to leave it.

    If you do decide to appeal then please do let us know if there is anything we can do to help. :)

    Congratulations on getting standard rate. 
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  • SaffySaffy Member Posts: 88 Courageous
    Hi @Chloe_Scope, thanks for replying.
    I think the main reason I'm so upset is because he put me down on the Moving Around part for descriptor d when I feel I should have got e. meaning I would have got enough points for the enhanced rate of mobility. 
    As you know, in descriptor d. it says I can stand and move more than 20 metres using an aid but no more than 50 metres. This is so untrue and he had no way of knowing how far I can move!
    I walked with my stick the 7 steps it takes from my chair to use the bathroom, then returned. He did NOT ask me to walk anywhere else. I was expecting him to see how far I could walk along the communal corridor (I live in sheltered accomodation) but didn't ask. Given this was his only observation of me walking, how could he reach that decision? My son let him in so I didn't answer the door to him and he let himself out 
    He says "she does not report any difficulties/need for stopping within her house and very short distances "etc.  This is a tiny bedsit and nowhere within it takes more than 8 steps. It's not anywhere near the size of even a small house!!! How can he just make a guess when so much depends on it??  There's no way I could walk 20 metres.
    The other main point that I'm angry about is his repeated statement throughout the report, "she reports that today is a bad day in terms of good and bad days". Rubbish! When he asked me how I was feeling that day I said, "I'm not feeling too bad today actually" and smiled at him. I wanted him to understand today was better than usual.
    Ok, it may have been a genuine case of him not hearing me properly, but as the report continually refers to it being a bad day for me it totally misrepresents how my disability affects me. I told him I don't have good days as I'm always in pain (which he mentioned in the report), but that some days are better than others (which he didn't mention in his report).
    I don't know whether explaining all this on the MR form would make any difference.
    I'm pleased it looks like I may get the standard awards, especially as I know some people get nothing, but I'm angry about the errors he's made that will affect me.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    edited October 2019
    Pointing out the errors in the report will not help your PIP claim because DWP and the Tribunal will not be interested in any of those. They will only be interested in where you think you should have scored those points and your reasons why.

    Any complaints about the report should be sent to the health assessment providers. Details how to do that will be on their website.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Saffy, I can completely see why you would be frustrated and angry about this. It cannot be easy to read the report and see that things are not accurate. 

    If you do decide to take it to appeal it is about showing 2-3 real life examples about how you do meet the criteria. An example of this could be only walking in your house (with this being a distance less than 20 metres) and how it affects you to do this.

    Here is further information, which also includes the form you would have to fill in if you wanted to make an appeal.

    Please do let us know if you do decide to do this and I am sure other members will be able to offer their advice and support. :)
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  • SaffySaffy Member Posts: 88 Courageous
    Well I've had my PIP award letter and I've been given standard rate for both daily living and mobility. 
    I'm not going to fight it, I just haven't got the energy, especially as an appeal could up to a year.
    At least I've been given something so I'm glad of that.
    I'm just concerned about whether there will be a period of me being without money between DLA ending and PIP starting, the wording on the letter is confusing me.
    It says DLA ends Nov 19th. My next DLA payment is due Nov 13th, so will I lose 6 days DLA?
    PIP starts Nov 20th and they'll make a payment on Dec 12th for money I'm owed from Nov 20th - 11th Dec (22 days of pip).
    They then say they'll make a PIP payment every 4 weeks in arrears. 
    Does this mean I won't get any money for 4 weeks?
    Sorry if the answer is obvious, but my brain is fogged up and I can't think straight.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Great news. You'll receive what your owed for your DLA on 13th November because DLA is paid 3 weeks in arrears and 1 week in advance and you'll be paid up to 19th November.

    Then you'll receive your first PIP payment on 12 December which will be for 3 weeks money from Nov 20th - 11th December. Your next payment for PIP after that will be 9th January and will be for the full 4 weeks money. PIP is paid every 4 weeks, like DLA was so yes you're correct you won't receive any PIP for 4 weeks, which is the same for everyone. PIP is paid 4 weeks in arrears.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • SaffySaffy Member Posts: 88 Courageous
    Thanks @poppy123456 ,so are you saying I'll get my full 28 days DLA due 13th Nov(last payment was 16th October) plus 6 days up to 19th Nov when my DLA ends? Then I'll get 3 weeks PIP on 12th Dec, and that will have to last until 9th Jan, and from then I'll get paid every 28 days.
    If that's the case then I have understood correctly.
    I always hate it when adjustments are made around holiday times. I usually have some problem with a delay most years when the benefit increases start at the beginning of April. Just a hiccup usually but still frustrating.
    Thanks for all your help, I'd have been lost without it while all this new claim has been happening.
    I hope I've done the right thing in not challenging the decision, a lot of what the assessor wrote was misleading. I think if I'd got the energy for it I might have done so but I'm totally worn out and just don't feel I could go through any more.
    At least I got my claim approved, so should be thankful for that.
    I still think it's suspicious the way I got just one point less than I needed for the higher rates. I wonder if that's common practice! I expect most people settle for that rather than risk losing money at appeal. 
    Thanks so much Poppy.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You're welcome. Yes, that's when you'll receive payments for DLA and PIP. PIP is paid every 4 weeks. It will tell you on the award letter what day of the week to expect your payment. Everyone's payment day is different. I get mine on  Wednesday and my daughter has hers on a Tuesday.

    Only you can really decide whether or not to request the MR.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
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