If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.
Cannot get GP to investigate further.

My lad now 23 yrs old was eventually diagnosed with M.E. and chronic pain syndrome 2010, He spent the majority of 4 years in bed chronically ill, lots of symptoms that did not seem associated with M.E. but all symptoms put down to M.E., Very little help/support and nothing at all when he reached 18 yrs old... 2016 mental health issues started, hearing terrifying voices and seeing horrendous images, severe depression, suicidal, rages, memory loss, totally unable to control his impulses, disappearing for weeks sleeping rough in his car eventually coming home in floods of tears not knowing where he'd been or what he;'d been doing etc. Last year I had his bloods privately tested in Germany showing him positive for Lyme disease and Bartonella, NHS test for Lyme came back clear so NHS will not treat or investigate and put all his health issues own to anger. We have had to go along the mental health route but Mental Health Team are now saying they don't think it's mental health issues instead 'anger management issues' He's desperate, new symptoms recently is a massive vein that occasionally appears from the top of his forehead down to his right eye. He needs help and proper investigation, GP refuses to send him to Neurologist, but putting GP under pressure he agreed to have his bloods tested for NMDA tests came back clear.
Replies
Don’t hesitate to seek second opinions. This is part of advocacy.
Have you had a look at Lyme Disease Action to see if they can advise?
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
Scope
Tell us what you think?
Complete our feedback form to help us to improve your community.
Scope
Tell us what you think?
Complete our feedback form to help us to improve your community.