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M.E. Lyme disease co-infection of Bartonella, so much more but no NHS help other than mental health
Hi to Everyone, I'm new to the site but not to SCOPE and the M.E. Association. I have an adult son with mild cerebral palsy and my foster son now 23 yrs old was eventually diagnosed with M.E. and chronic pain syndrome 2010, He spent the majority of 4 years in bed chronically ill, lots of symptoms that did not seem associated with M.E. but all symptoms put down to M.E., Very little help/support and nothing at all when he reached 18 yrs old... 2016 mental health issues started, hearing terrifying voices and seeing horrendous images, severe depression, suicidal, rages, memory loss, totally unable to control his impulses, disappearing for weeks sleeping rough in his car eventually coming home in floods of tears not knowing where he'd been or what he;'d been doing etc. Last year I had his bloods privately tested in Germany showing him positive for Lyme disease and Bartonella, NHS test for Lyme came back clear so NHS will not treat or investigate and put all his health issues own to anger. We have had to go along the mental health route but Mental Health Team are now saying they don't think it's mental health issues instead 'anger management issues' He's desperate, new symptoms recently is a massive vein that occasionally appears from the top of his forehead down to his right eye. He needs help and proper investigation, GP refuses to send him to Neurologist, I did put GP under pressure with help from a Private M.E and Infectious disease Specialist who asked for him to be referred to a Neurologist for NMDA testing the GP just arranged bloods tested for NMDA tests which came back clear and no further investigation at all. My only income is my state pension and cannot afford private treatment. Hoping for advice/direction.