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MS and PIP

kelly334
kelly334 Member Posts: 9 Listener
edited September 2019 in PIP, DLA, and AA
Hi, my name is Kelly, I’m 45, married with two grown up kids ? that still live at home i was diagnosed in 2007 with rr MS  i was very lucky when first diagnosed as after each relapse after a few months I was back to normal so went down the holistic path. About five years ago I’d started to progress have more relapses and not getting back to normal but I chose to dig myself a big hole instead of dealing with it and stayed there for the next few years, then about 18 months ago I decided to tell family, friends just how bad things were, thankfully one of my very close friends booked me an appointment to see my specialist and took me and I will be forever grateful to her as I’m a very strong lady but also very stubborn ?. Medically it has been so good for me as now I’m getting the help I need. But I came out my denial hole I was told to apply for PIP and universal credit as I don’t work due to my MS, this was April of last year and I’m still waiting for a tribunal date and still waiting to be assessed for universal credits disability add on so I’ll be reading all your stories ? thank you for reading ? - clear

Comments

  • kelly334
    kelly334 Member Posts: 9 Listener
    edited August 2019
    Hi, my name is Kelly, I’m 45, married with two grown up kids ? that still live at home i was diagnosed in 2007 with rr MS  i was very lucky when first diagnosed as after each relapse after a few months I was back to normal so went down the holistic path. About five years ago I’d started to progress have more relapses and not getting back to normal but I chose to dig myself a big hole instead of dealing with it and stayed there for the next few years, then about 18 months ago I decided to tell family, friends just how bad things were, thankfully one of my very close friends booked me an appointment to see my specialist and took me and I will be forever grateful to her as I’m a very strong lady but also very stubborn ?. Medically it has been so good for me as now I’m getting the help I need. But I came out my denial hole I was told to apply for PIP and universal credit as I don’t work due to my MS, this was April of last year and I’m still waiting for a tribunal date and still waiting to be assessed for universal credits disability add on so I’ll be reading all your stories ? thank you for reading ? - clear

  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    Hello @kelly334   Pleased to meet you welcome.

    Thank you for joining and sharing.

    I am one of the team of community champions.  We guide and advise and help new members who join the forum.

    Please have a look around our website. Feel free to join in discussions.

    We are friendly, care and share.

    Please ask if we can help with anything. Please ask some one will know. A member of our community or a member of our team.

    Please take care.

    @thespiceman
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  • kelly334
    kelly334 Member Posts: 9 Listener
    Thank you, I’ve been reading so much stuff on here that’s so close to the same problems I’m having, PIp and universal credit and the way it the system doesn’t work
    the stories that I’ve read today and that’s only a handful will help me tremendously with my own claims, My PIP is at the waiting for court date for the claim I made is April 2018
    and still waiting for my universal credit to assess me for the disability part and because my husband works and get minimum wage,I’m his complete responsibility it seems, so I’ll continue looking at posts that are similar 
  • pollyanna1052
    pollyanna1052 Member Posts: 2,032 Disability Gamechanger
    Hi Kelly.
    Please to meet you.
    I`ve had my disability for almost 20 years.
    Initially I presented as typical PPMS.....had oodles of tests with nothing showing on any to back it up.
    I joined the MSUK support group, which I thought was really helpful. Have you tried it?

    However, some years later MS was discounted in favour of HSP......then that was discounted also, after a few years.
    I`m now a big fat ?

    I am just at the beginning of migration from DLA to PIP.....your benefit story is horrendous.

    love Pollxx
  • Adrian_Scope
    Adrian_Scope Posts: 8,552

    Scope community team

    Hi @kelly334 and welcome to the community. Glad to hear you're climbing out of the hole! Have you been sent a UC50 form for your UC assessment yet? Please let us know if there's anything you need or if you have any questions. :smile:
    Community Manager
    Scope

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  • kelly334
    kelly334 Member Posts: 9 Listener
    Hi Poll, it nice to meet you ?,
    hopefully you won’t need to go through all of this ridicules mess, as you’re on DLA and just switching over. They changed some of the way PIP is handled, and say it’s much easier now, I’ve spoken to my local MP and will bring my case up when parliament returns from their six week holiday ?
     Keep us all up to date with your dealings with the DWP fingers crossed you may be the start of the success stories, now our government has sorted these issues, but I’m not holding my breath that they have ☺️

    Take care

    kelly ?

  • kelly334
    kelly334 Member Posts: 9 Listener
    Hi, and thank you all for the welcome and extremely Helpful post I’ve been reading.
    yes I sent the form back over a month ago, I’ve asked my work coach how long should it take as I’ve read normally about 16 weeks after you first claim and have sick note fro your GP..but he say not, this is how long it takes.

  • Ails
    Ails Member Posts: 2,256 Disability Gamechanger
    Hi @kelly334 and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  Sorry to hear of your struggles, but glad to hear things are a bit better for you now and what a wonderful friend you have supporting you.  You will also find many supportive people on the Community who can relate to your experience.  I hope you enjoy your time on the Community and look forward to seeing you on it.  If there is anything else we can help you with then please just let us know.  All the best.   :)
    Winner of the Scope New Volunteer Award 2019.   :)
  • kelly334
    kelly334 Member Posts: 9 Listener
    I’m very lucky, both family and friends have been a great support, but I’m more than lucky when it comes to group of friends can tell me “shut up and do as you’re told “  
    As I’m confident and strong minded/willed ?. They are the only ones who could say that to me, my poor husband, and family would have got a mouthful ? and I let them know just how much I appreciate them 



  • Ails
    Ails Member Posts: 2,256 Disability Gamechanger
    Glad you have such a supportive family and friends, @kelly334.   :)
    Winner of the Scope New Volunteer Award 2019.   :)
  • Richard_Scope
    Richard_Scope Posts: 3,104

    Scope community team

    Welcome to Scope's community! It's great to have you here.  Just to get you started we have our Community Guidelines and How to Guide you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!   
    If you need anything, just let us know. 

     


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  • pollyanna1052
    pollyanna1052 Member Posts: 2,032 Disability Gamechanger
    kelly334 said:
    Hi Poll, it nice to meet you ?,
    hopefully you won’t need to go through all of this ridicules mess, as you’re on DLA and just switching over. They changed some of the way PIP is handled, and say it’s much easier now, I’ve spoken to my local MP and will bring my case up when parliament returns from their six week holiday ?
     Keep us all up to date with your dealings with the DWP fingers crossed you may be the start of the success stories, now our government has sorted these issues, but I’m not holding my breath that they have ☺️

    Take care

    kelly ?

    Hi again Kelly. yeh, it ought to be straightforward when going from DLA to PIP. But I`m afraid it isnt.
    I have my f2f assessment on Thursday. Everyone says I`ll be fine, but until I get the award letter, I`m fretting!
    How are you?xx
  • emmarenshaw
    emmarenshaw Member Posts: 711 Pioneering
    Hello @kelly334 welcome to the community. I’m Emma, one of the Community Champions who are here to help and advise should you need any assistance navigating the community or have any questions. It’s great to have you here.
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @kelly334

    Good Afternoon it’s great to meet you today ???

    I am also one of the Community Champion’s here at Scope.

    I have just come through the “DLA 2 PIP”

    My “face 2 face notice” came back looking like someone else’s.

    I straightaway sent it back highlighting the discrepancies.

    The “DWP” sent me back something that looked more like it.

    Please let me know if there’s anything that I can help you with???

    @steve51

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