If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
DROPPED FROM CONTINUING HEALTH CARE
Options
peterpan
Community member Posts: 1 Listener
Can any one help, please with a successful strategy they have used to resolve the issue, below?
My best friend of some forty years had Polio as a child. He has just been forced off Continuing Health Care, after many years. His condition requires a care 24 x 7 Despite the fact that medical indications and M.D.'s and a Consultant opinion confirm his condition continues to deteriorate.
The two alternatives offered by his local council under the auspices of Adult Social Care (in his own home) are totally inadequate to meet his care needs
He has filed an appeal against the CHC decision and a filed a complaint against Adult Social Care, as to the way the transition has been handled. He has also contacted his Member of Parliament.
The mental and physical strain he has suffered for months, through no fault of his own, is, and remains, intolerable.
Unless the situation is successfully resolved quickly, he stands to loose all funding. He will have fire all his staff - who have worked for him for many years. and his way of life will be destroyed.
My best friend of some forty years had Polio as a child. He has just been forced off Continuing Health Care, after many years. His condition requires a care 24 x 7 Despite the fact that medical indications and M.D.'s and a Consultant opinion confirm his condition continues to deteriorate.
The two alternatives offered by his local council under the auspices of Adult Social Care (in his own home) are totally inadequate to meet his care needs
He has filed an appeal against the CHC decision and a filed a complaint against Adult Social Care, as to the way the transition has been handled. He has also contacted his Member of Parliament.
The mental and physical strain he has suffered for months, through no fault of his own, is, and remains, intolerable.
Unless the situation is successfully resolved quickly, he stands to loose all funding. He will have fire all his staff - who have worked for him for many years. and his way of life will be destroyed.
Comments
-
Hi @peterpan and a very warm welcome to the community! I cannot imagine how frustrating and upsetting this must be for everyone involved!
Is there a possibility he could move to Direct Payments which would still allow him to employ his own staff and receive the care he needs?
Here is an article about appealing a continuing healthcare decision.
Please do keep us updated and let us know if there is anything else we can do to help.Scope -
Hello
Can he use Direct Payments or not? Keep us updated. Direct Payments are a good source of funding for care services. Does he receive benefits? If he has not done so already, he should apply to get PIP. The money can be used for anything that improves your quality of life. Good luck! -
What a terribly frightening situation! Direct Payments is a possible answer...but he will need full time care and that`s going to cost.......will they pay it all> I hope so.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 767 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.