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DROPPED FROM CONTINUING HEALTH CARE

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peterpan
peterpan Community member Posts: 1 Listener
Can any one help, please with a successful strategy they have used to resolve the issue, below?

My best friend of some forty years had Polio as a  child.  He has just been forced off Continuing Health Care, after many years.  His condition requires a care 24 x 7  Despite the fact that medical indications and M.D.'s and a Consultant opinion confirm his condition continues to deteriorate.

The two alternatives offered by his local council under the auspices of Adult Social Care (in his own home) are totally inadequate to meet his care needs

He has filed an appeal against the CHC decision and a filed a complaint against Adult Social Care, as to the way the transition has been handled.  He has also contacted his Member of Parliament.

The mental and physical strain he has  suffered for months, through no fault of his own, is, and remains, intolerable.


Unless the situation is successfully resolved quickly, he stands to loose all funding.  He will have fire all his staff - who have worked for him for many years. and his way of life will be destroyed.

Comments

  • Chloe_Scope
    Chloe_Scope Posts: 10,581 Disability Gamechanger
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    Hi @peterpan and a very warm welcome to the community! I cannot imagine how frustrating and upsetting this must be for everyone involved!

    Is there a possibility he could move to Direct Payments which would still allow him to employ his own staff and receive the care he needs?

    Here is an article about appealing a continuing healthcare decision.

    Please do keep us updated and let us know if there is anything else we can do to help. :)
    Scope

  • April2018mom
    April2018mom Posts: 2,882 Disability Gamechanger
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    Hello
    Can he use Direct Payments or not? Keep us updated. Direct Payments are a good source of funding for care services. Does he receive benefits? If he has not done so already, he should apply to get PIP. The money can be used for anything that improves your quality of life. Good luck! 
  • pollyanna1052
    pollyanna1052 Community member Posts: 2,032 Disability Gamechanger
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    What a terribly frightening situation! Direct Payments is a possible answer...but he will need full time care and that`s going to cost.......will they pay it all> I hope so.
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