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PIP f2f for adult with learning disabilities

Tony246Tony246 Member Posts: 8 Connected
hello all

brief intro, been learning from this site and I'm impressed with the knowledge and advice given. I'm dad to my daughter who has genetic disorders than mean she hasnt matured mentally. She has a PIP f2f coming up soon although the appointment date hasnt been received yet. She currently gets DLA high rates for both. She got LCWRA on paper based assessment. 

So recently I read that an appointee can speak on her behalf at the f2f and the official one is my wife but she doesnt want to do it. The plan was that I would attend with her. I wrote her PIP assessment form and just put that she would attend with a family friend, not appointee. I need clarity on what I can do.

Q1.  Will I be able to speak on her behalf at the assessment?
Q2  Would it be better to just let her answer herself even if she wouldnt understand a lot of it?

Tony

Replies

  • wilkowilko Member Posts: 2,300 Disability Gamechanger
    @Tony246, Hello and welcome, as you know DLA and PIP are two different benefits and are accessed using a different criteria for each benefit. At your daughters assessment I would , just my opinion do a bit of both the the assessor will be able to get a better idea of your daughters abilities. Remember PIP is about your daughters abilities in preforming the descriptors in a safe, repeatable and timely manner for most of her days. The more that can be proved or demonstrated that your daughter is unable to do the descriptors then a better outcome .
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    Usually unless you're the appointee then you won't be able to speak on her behalf but this does depend on the HCP on the day. Some wil allow, some won't. As your wife is the appointee then she will need to attend the assessment too so she will be able to ask the HCP at the start of the assessment. It may have been better if you had been her appointee instead of your wife.

    As your daughter has a learning disability then i wouldn't advise her to speak for herself because she may not understand the questions she's asked and then she won't be able to be assessed correctly.

    Good luck.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • Tony246Tony246 Member Posts: 8 Connected
    @wilko thanks for the response. Doing a bit of both was what I was planning but I just wanted to make sure that this was acceptable to the assessor. 

    Tony
  • Tony246Tony246 Member Posts: 8 Connected
    Thanks @poppy123456 we will all be going but obviously only one of us will sit in with her. We will ask the HCP to change the arrangements if possible. My wife is getting a bit stressed out over this thats why I have done all the paperwork. In the meantime I'll have to go over the assessment form with her so that she understands the importance of desciptors incase she has to go in. I've been preparing myself for weeks over this and "think" I've got it sussed but now we have to replan

    Tony
  • curiousmom1996curiousmom1996 Posts: 35 Member
    It depends on what the LD is. I have a mild/specific learning difficulty and I always speak up for myself when I am working and at shops and restaurants too. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    My daughter has a learning disability and Autism and she would never speak for herself, infact she doesn't speak to people she doesn't know and always needs support and assistance for things like this.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • curiousmom1996curiousmom1996 Posts: 35 Member
    My daughter has a learning disability and Autism and she would never speak for herself, infact she doesn't speak to people she doesn't know and always needs support and assistance for things like this.
    No offence but all learning difficulties like physical impairments are different for each person. Even I don’t talk to strangers... 
  • Tony246Tony246 Member Posts: 8 Connected
    It depends on what the LD is. I have a mild/specific learning difficulty and I always speak up for myself when I am working and at shops and restaurants too. 
    I think she's considered as moderate but the impact on her everyday life is massive. Needs permament support. As I said she hasnt mentally matured, she's like a young child. Loveley but vunerable.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    My daughter has a learning disability and Autism and she would never speak for herself, infact she doesn't speak to people she doesn't know and always needs support and assistance for things like this.
    No offence but all learning difficulties like physical impairments are different for each person. Even I don’t talk to strangers... 
    I never said they were the same but thanks. The reason why i made the suggestion to Tony in the first place was because he did mention that his daughter hasn't matured mentally, which suggested that she wouldn't be able to answer the questions herself. Which is just like my daughter.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Welcome to the community @Tony246! I hope the assessment goes okay and please do let us know if we can do anything else yo help. :)

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  • Tony246Tony246 Member Posts: 8 Connected
    Update on process.

    recieved letter today from DWP stateing they have all the information they need to decide if they can award PIP. Said theres no need to contact them, they'll write when a decision has been made. 

    Not had f2f though so that will be nice if its not needed. 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Tony246, thank you for updating us! I'll keep my fingers crossed for you!
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  • Tony246Tony246 Member Posts: 8 Connected
    Hi all

    Finally had a decision. Never had to have a f2f and have been awarded enhanced for daily living and mobility. There was a couple of points decisions I didnt agree with but we easily passed the threshhold and I'm not going to rock the boat by challenging them. Also no review for 10 years. 

    I spent a lot of time reseaching PIP assesments and trying to thoroughly understand how to answer the questiions. I made sure everthing was consistent and nothing contradicted. My biggest fear was the mobility answer so I wrote that first and then backed that up by using similar or same words in the daily living part.  Examples being, if you cant read then you cant travel by public transport. If you cant make financial decisions, how do you know if you have enough money to pay the fare. If you have a cognitive impairment, do you know what side of the road the bus stop is.

     I deliberately didnt mention anything about emotional distress in the daily living so that it wouldnt be relevant on the mobility which could of resulted in 10 points. There was no way I was going to give them the opportunity to interpret things differently. 

    Thats how I did it and it worked for me. I didnt even write long answers. Never filled a box or needed extra notes. Just kept it relevant and accurate
     
    As a disclaimer, my daughter has a recognised genetic disorder so I may be guilty of making it seem easier than it is. 

     But thats my experience and I hope by sharing it others may benefit.

    all the best

    Tony
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Fantastic news, thanks for sharing, we definitely need more of these good news threads.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    That's great news @Tony246! Thank you for letting us know! I agree with @poppy123456, we need to hear more stories like this! :)
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  • atlas46atlas46 Member Posts: 827 Pioneering
    Hi @Tony246

    Great result for your daughter and well done you, for making a sound claim.

    It’s always good to see such positive outcomes, for the community to see.

    Best wishes
  • kami24kami24 Member Posts: 380 Pioneering
    Good to hear. Hope you have all support you need now 
  • April2018momApril2018mom Posts: 2,869 Member
    Tony246 said:
    Hi all

    Finally had a decision. Never had to have a f2f and have been awarded enhanced for daily living and mobility. There was a couple of points decisions I didnt agree with but we easily passed the threshhold and I'm not going to rock the boat by challenging them. Also no review for 10 years. 

    I spent a lot of time reseaching PIP assesments and trying to thoroughly understand how to answer the questiions. I made sure everthing was consistent and nothing contradicted. My biggest fear was the mobility answer so I wrote that first and then backed that up by using similar or same words in the daily living part.  Examples being, if you cant read then you cant travel by public transport. If you cant make financial decisions, how do you know if you have enough money to pay the fare. If you have a cognitive impairment, do you know what side of the road the bus stop is.

     I deliberately didnt mention anything about emotional distress in the daily living so that it wouldnt be relevant on the mobility which could of resulted in 10 points. There was no way I was going to give them the opportunity to interpret things differently. 

    Thats how I did it and it worked for me. I didnt even write long answers. Never filled a box or needed extra notes. Just kept it relevant and accurate
     
    As a disclaimer, my daughter has a recognised genetic disorder so I may be guilty of making it seem easier than it is. 

     But thats my experience and I hope by sharing it others may benefit.

    all the best

    Tony
    When I filled out the application form earlier this year, I didn't provide too many details. I too spent several minutes preparing myself mentally. The questions were not difficult to understand. I did not bother to keep a diary. 
    I did not attach extra or multiple sheets of paper to the claim form either. I decided there was no way I would allow them to tell me a bunch of shocking lies. I know much more about spina bifida than they do. For supporting evidence, I mailed off one photocopy of either a report or a hospital appointment letter. 
    I handle benefits as I’m the only family member who can actually read. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger

    When I filled out the application form earlier this year, I didn't provide too many details. I too spent several minutes preparing myself mentally. The questions were not difficult to understand. I did not bother to keep a diary. 
    I did not attach extra or multiple sheets of paper to the claim form either. I decided there was no way I would allow them to tell me a bunch of shocking lies. I know much more about spina bifida than they do. For supporting evidence, I mailed off one photocopy of either a report or a hospital appointment letter. 
    I handle benefits as I’m the only family member who can actually read. 
    Wasn't that for a DLA claim and not PIP? If so then they are completely different benefits.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,955

    Scope community team

    edited October 2019
    That's brilliant news @Tony246
    Senior Community Partner
    Scope

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