PIP f2f for adult with learning disabilities
Tony246
Community member Posts: 10 Connected
hello all
brief intro, been learning from this site and I'm impressed with the knowledge and advice given. I'm dad to my daughter who has genetic disorders than mean she hasnt matured mentally. She has a PIP f2f coming up soon although the appointment date hasnt been received yet. She currently gets DLA high rates for both. She got LCWRA on paper based assessment.
So recently I read that an appointee can speak on her behalf at the f2f and the official one is my wife but she doesnt want to do it. The plan was that I would attend with her. I wrote her PIP assessment form and just put that she would attend with a family friend, not appointee. I need clarity on what I can do.
Q1. Will I be able to speak on her behalf at the assessment?
Q2 Would it be better to just let her answer herself even if she wouldnt understand a lot of it?
Tony
brief intro, been learning from this site and I'm impressed with the knowledge and advice given. I'm dad to my daughter who has genetic disorders than mean she hasnt matured mentally. She has a PIP f2f coming up soon although the appointment date hasnt been received yet. She currently gets DLA high rates for both. She got LCWRA on paper based assessment.
So recently I read that an appointee can speak on her behalf at the f2f and the official one is my wife but she doesnt want to do it. The plan was that I would attend with her. I wrote her PIP assessment form and just put that she would attend with a family friend, not appointee. I need clarity on what I can do.
Q1. Will I be able to speak on her behalf at the assessment?
Q2 Would it be better to just let her answer herself even if she wouldnt understand a lot of it?
Tony
Comments
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@Tony246, Hello and welcome, as you know DLA and PIP are two different benefits and are accessed using a different criteria for each benefit. At your daughters assessment I would , just my opinion do a bit of both the the assessor will be able to get a better idea of your daughters abilities. Remember PIP is about your daughters abilities in preforming the descriptors in a safe, repeatable and timely manner for most of her days. The more that can be proved or demonstrated that your daughter is unable to do the descriptors then a better outcome .
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Hi,Usually unless you're the appointee then you won't be able to speak on her behalf but this does depend on the HCP on the day. Some wil allow, some won't. As your wife is the appointee then she will need to attend the assessment too so she will be able to ask the HCP at the start of the assessment. It may have been better if you had been her appointee instead of your wife.As your daughter has a learning disability then i wouldn't advise her to speak for herself because she may not understand the questions she's asked and then she won't be able to be assessed correctly.Good luck.I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help.
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@wilko thanks for the response. Doing a bit of both was what I was planning but I just wanted to make sure that this was acceptable to the assessor.
Tony -
Thanks @poppy123456 we will all be going but obviously only one of us will sit in with her. We will ask the HCP to change the arrangements if possible. My wife is getting a bit stressed out over this thats why I have done all the paperwork. In the meantime I'll have to go over the assessment form with her so that she understands the importance of desciptors incase she has to go in. I've been preparing myself for weeks over this and "think" I've got it sussed but now we have to replan
Tony -
It depends on what the LD is. I have a mild/specific learning difficulty and I always speak up for myself when I am working and at shops and restaurants too.
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My daughter has a learning disability and Autism and she would never speak for herself, infact she doesn't speak to people she doesn't know and always needs support and assistance for things like this.
I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help. -
poppy123456 said:My daughter has a learning disability and Autism and she would never speak for herself, infact she doesn't speak to people she doesn't know and always needs support and assistance for things like this.
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curiousmom1996 said:It depends on what the LD is. I have a mild/specific learning difficulty and I always speak up for myself when I am working and at shops and restaurants too.
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curiousmom1996 said:poppy123456 said:My daughter has a learning disability and Autism and she would never speak for herself, infact she doesn't speak to people she doesn't know and always needs support and assistance for things like this.
I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help. -
Welcome to the community @Tony246! I hope the assessment goes okay and please do let us know if we can do anything else yo help.
Scope -
Update on process.
recieved letter today from DWP stateing they have all the information they need to decide if they can award PIP. Said theres no need to contact them, they'll write when a decision has been made.
Not had f2f though so that will be nice if its not needed. -
Hi @Tony246, thank you for updating us! I'll keep my fingers crossed for you!
Scope -
Hi all
Finally had a decision. Never had to have a f2f and have been awarded enhanced for daily living and mobility. There was a couple of points decisions I didnt agree with but we easily passed the threshhold and I'm not going to rock the boat by challenging them. Also no review for 10 years.
I spent a lot of time reseaching PIP assesments and trying to thoroughly understand how to answer the questiions. I made sure everthing was consistent and nothing contradicted. My biggest fear was the mobility answer so I wrote that first and then backed that up by using similar or same words in the daily living part. Examples being, if you cant read then you cant travel by public transport. If you cant make financial decisions, how do you know if you have enough money to pay the fare. If you have a cognitive impairment, do you know what side of the road the bus stop is.
I deliberately didnt mention anything about emotional distress in the daily living so that it wouldnt be relevant on the mobility which could of resulted in 10 points. There was no way I was going to give them the opportunity to interpret things differently.
Thats how I did it and it worked for me. I didnt even write long answers. Never filled a box or needed extra notes. Just kept it relevant and accurate
As a disclaimer, my daughter has a recognised genetic disorder so I may be guilty of making it seem easier than it is.
But thats my experience and I hope by sharing it others may benefit.
all the best
Tony -
Fantastic news, thanks for sharing, we definitely need more of these good news threads.
I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help. -
That's great news @Tony246! Thank you for letting us know! I agree with @poppy123456, we need to hear more stories like this!
Scope -
Hi @Tony246
Great result for your daughter and well done you, for making a sound claim.
It’s always good to see such positive outcomes, for the community to see.
Best wishes -
Good to hear. Hope you have all support you need now
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Tony246 said:Hi all
Finally had a decision. Never had to have a f2f and have been awarded enhanced for daily living and mobility. There was a couple of points decisions I didnt agree with but we easily passed the threshhold and I'm not going to rock the boat by challenging them. Also no review for 10 years.
I spent a lot of time reseaching PIP assesments and trying to thoroughly understand how to answer the questiions. I made sure everthing was consistent and nothing contradicted. My biggest fear was the mobility answer so I wrote that first and then backed that up by using similar or same words in the daily living part. Examples being, if you cant read then you cant travel by public transport. If you cant make financial decisions, how do you know if you have enough money to pay the fare. If you have a cognitive impairment, do you know what side of the road the bus stop is.
I deliberately didnt mention anything about emotional distress in the daily living so that it wouldnt be relevant on the mobility which could of resulted in 10 points. There was no way I was going to give them the opportunity to interpret things differently.
Thats how I did it and it worked for me. I didnt even write long answers. Never filled a box or needed extra notes. Just kept it relevant and accurate
As a disclaimer, my daughter has a recognised genetic disorder so I may be guilty of making it seem easier than it is.
But thats my experience and I hope by sharing it others may benefit.
all the best
Tony
I did not attach extra or multiple sheets of paper to the claim form either. I decided there was no way I would allow them to tell me a bunch of shocking lies. I know much more about spina bifida than they do. For supporting evidence, I mailed off one photocopy of either a report or a hospital appointment letter.
I handle benefits as I’m the only family member who can actually read. -
April2018mom said:
When I filled out the application form earlier this year, I didn't provide too many details. I too spent several minutes preparing myself mentally. The questions were not difficult to understand. I did not bother to keep a diary.
I did not attach extra or multiple sheets of paper to the claim form either. I decided there was no way I would allow them to tell me a bunch of shocking lies. I know much more about spina bifida than they do. For supporting evidence, I mailed off one photocopy of either a report or a hospital appointment letter.
I handle benefits as I’m the only family member who can actually read.
I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help. -
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