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M / E C/F/S AND FILLING OUT PIP FORMS

To all the people suffering with these conditions i have today received from the M / E association a guide to filling in your PIP forms for a small cost, this is a must read and goes through all the descriptors and gives examples of how M/E sufferers can get their point over on each descriptor to get points.
You may worry that especially with M /E that you will not be believed so anyone out there who is about to put pen to paper on a PIP claim form purchase this guide first.
You may worry that especially with M /E that you will not be believed so anyone out there who is about to put pen to paper on a PIP claim form purchase this guide first.
Replies
But if it is especially for a group who have difficulty in getting their condition explained and you feel it is worth paying for it, then that`s a choice you are entitled to do.
It's not the cost it's just the principle...
You only get one chance to fill in the application for PIP form get it wrong by not understanding how PIP works and you end up appealing and down the dreaded tribunal road and by the time you get your hearing you have forgotten what you first told the DWP
I support several charities, use charity shops, buy charity Christmas cards etc as, I imagine, do a lot of people.
I'm happy to do so as they do commendable work.
What I'm uncomfortable with is a charity making a charge - albeit a small one - for a leaflet helping sufferers to claim benefits...
For example if Crisis were charging the homeless for leaflets giving advice about how to apply for housing then I'd drop them like a stone..
People with ME will at some point look for help from the ME association as there is no help from the NHS
Would you rather that charity not be there at all because it couldnt stay afloat because people think £3 is a ripoff in 2019?
At £3 whilst not free its still extremely heavily subsidised.
The qualifications are that there actually is one rock solid consistent approach to form filling regardless of condition and functional consequences and the only difference between guides really is to highlight the functional consequences of a specific condition; the need to record those and give examples.
I have seen the ME guide and I’ll stand to be corrected but the last time I read it it didn’t provide the most fundamental advice relevant to someone with ME/CFS around the fact that more than most other groups they will need to seek help and/or an extension of time for completion. A 2 week extension for PIP is the default upon request but essentially it’s an administrative deadline and can go well beyond that if needs be. That advice won’t be costing you £3. Nor will I charge you £3 for https://community.scope.org.uk/discussion/56365/pip-form-filling#latest