Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Hi I'm Lynne

Options
linlin01
linlin01 Community member Posts: 38 Courageous
Hello, I'm new to Scope so I thought I'd introduce myself.  My name is Lynne and  I've had all over muscular chronic pain, stiffness and weakness for around 13 years.  I find it difficult to lift or grasp things with my hands, and I can't walk very far, or bend to reach the floor.  

Last diagnosis I had was Chronic Pain Syndrome with a brief  'we don't know everything' from the consultant.  It's a bit of a mystery.

I try and look on the bright side and to enjoy life as much as I can.  At the moment my new kettle is making me very happy  :) Thought you might like to see it.  It looks like a trendy robot space helmet and just tips at the nudge of a finger.  You can take it off the cradle if you can/want, but I fill it at the top by pressing the white button to open the lid then pouring in water from a small jug.  The button does not need much pressure either:


Comments

  • Adrian_Scope
    Adrian_Scope Posts: 11,386 Scope online community team
    Options
    Hello @linlin01 and welcome to the community. We have our own chronic pain advisor here, so if you have any questions, please don't hesitate to ask.

    Love the kettle and I hope to see you around!
    Community Manager
    Scope
  • Connie00
    Connie00 Community member Posts: 252 Pioneering
    Options


    My Name is Connie00

      

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A very warm welcome to the Community. I trust you are having a good day today

    I myself suffer with Asthma Fibromyalgia, Rheumatoid Arthritis, CFS and FND, (functional neurological disorder) and a lung disorder which completely fails me when I have an asthma attack. so I understand what Chronic pain is like.

    So, I live most of my days in pain, I can relate to where you are coming from, sometimes it gets the better of me, and sometimes I’m not sure which one is playing up more, difficult to know, so I really have empathy for you.

    but as Adrian_Scope mentioned we do have  chronic pain advisor here so if you need to chat to someone you can either press the link which I think will help you not feel alone, or chat to me or any other members on this forum 

     

    if we can be of any further help please let us know.

    Have a good day


  • emmarenshaw
    emmarenshaw Community member Posts: 710 Pioneering
    Options
    Hello @linlin I’m Emma, one of the Community Champions. A warm welcome to the community.
  • brydiedwards
    brydiedwards Community member Posts: 31 Courageous
    Options
    Hi@linlin01! Welcome to the Scope community :). An element of my condition is that I have very short limbs and weak arm joints so lifting a full kettle has always been a struggle and leads to subluxed elbows... This kettle is genius! Thank you for sharing.
  • steve51
    steve51 Community member Posts: 7,147 Disability Gamechanger
    Options
    Hi @linlin01

    Good Afternoon & Welcome to our “Online Community”

    Yes I am also one of the Community Champion’s here at Scope.

    I have got “Chronic Pain 24/7.

    This reared it’s “ugly head” in 2005 following “Radiation Treatment”
    on my “Brain/Neck”

    No I have not been given any indication on what is causing the “Chronic Pain” 

    Please Please come back to me if you have any problems!!!!!

    @steve51


  • linlin01
    linlin01 Community member Posts: 38 Courageous
    Options
    Thanks for your kind replies everyone, you've made me feel very welcome  :)
  • Richard_Scope
    Richard_Scope Posts: 3,634 Scope online community team
    Options
    Hi @linlin01
    Great to have you join the community. I think I have kettle envy!

    Scope
    Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.'

    Want to tell us about your experience in the community? Talk to our

    chatbot

    and let us know.

  • Ails
    Ails Community member Posts: 2,256 Disability Gamechanger
    Options
    Hi @linlin01 and welcome to the Community.  It is nice to meet you and thanks for sharing with us.  I love the kettle!  It is lovely and so glad it helps you.  I look forward to seeing you on the Community and hope you enjoy your time with us.  If there is anything we can help/support you with then please just let us know.  All the best.  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Chloe_Scope
    Chloe_Scope Posts: 10,581 Disability Gamechanger
    Options
    Welcome to the community @linlin01, it's great to have you with us!
    Scope

Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.