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Hi I'm Lynne

linlin01linlin01 Member Posts: 38 Courageous
Hello, I'm new to Scope so I thought I'd introduce myself.  My name is Lynne and  I've had all over muscular chronic pain, stiffness and weakness for around 13 years.  I find it difficult to lift or grasp things with my hands, and I can't walk very far, or bend to reach the floor.  

Last diagnosis I had was Chronic Pain Syndrome with a brief  'we don't know everything' from the consultant.  It's a bit of a mystery.

I try and look on the bright side and to enjoy life as much as I can.  At the moment my new kettle is making me very happy  :) Thought you might like to see it.  It looks like a trendy robot space helmet and just tips at the nudge of a finger.  You can take it off the cradle if you can/want, but I fill it at the top by pressing the white button to open the lid then pouring in water from a small jug.  The button does not need much pressure either:


Replies

  • CressidaCressida Member Posts: 748 Pioneering
    edited September 2019
    @linlin01 those kettles are great aren't they? I've just attended a 6 week course relating to inflammatory disease and they had one of those in the kitchen! Very space age :) Welcome to this friendly forum. I'm quite new here myself. 



  • Adrian_ScopeAdrian_Scope Testing team, Scope community team Posts: 7,913 Scope community team
    Hello @linlin01 and welcome to the community. We have our own chronic pain advisor here, so if you have any questions, please don't hesitate to ask.

    Love the kettle and I hope to see you around!
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • Connie00Connie00 Member Posts: 255 Pioneering


    My Name is Connie00

      

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A very warm welcome to the Community. I trust you are having a good day today

    I myself suffer with Asthma Fibromyalgia, Rheumatoid Arthritis, CFS and FND, (functional neurological disorder) and a lung disorder which completely fails me when I have an asthma attack. so I understand what Chronic pain is like.

    So, I live most of my days in pain, I can relate to where you are coming from, sometimes it gets the better of me, and sometimes I’m not sure which one is playing up more, difficult to know, so I really have empathy for you.

    but as Adrian_Scope mentioned we do have  chronic pain advisor here so if you need to chat to someone you can either press the link which I think will help you not feel alone, or chat to me or any other members on this forum 

     

    if we can be of any further help please let us know.

    Have a good day


  • emmarenshawemmarenshaw Community champion Posts: 712 Pioneering
    Hello @linlin I’m Emma, one of the Community Champions. A warm welcome to the community.
  • brydiedwardsbrydiedwards Member Posts: 31 Courageous
    [email protected]! Welcome to the Scope community :). An element of my condition is that I have very short limbs and weak arm joints so lifting a full kettle has always been a struggle and leads to subluxed elbows... This kettle is genius! Thank you for sharing.
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @linlin01

    Good Afternoon & Welcome to our “Online Community”

    Yes I am also one of the Community Champion’s here at Scope.

    I have got “Chronic Pain 24/7.

    This reared it’s “ugly head” in 2005 following “Radiation Treatment”
    on my “Brain/Neck”

    No I have not been given any indication on what is causing the “Chronic Pain” 

    Please Please come back to me if you have any problems!!!!!

    @steve51


  • linlin01linlin01 Member Posts: 38 Courageous
    Thanks for your kind replies everyone, you've made me feel very welcome  :)
  • Richard_ScopeRichard_Scope Scope community team Posts: 2,697 Scope community team
    Hi @linlin01
    Great to have you join the community. I think I have kettle envy!
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Hi @linlin01 and welcome to the Community.  It is nice to meet you and thanks for sharing with us.  I love the kettle!  It is lovely and so glad it helps you.  I look forward to seeing you on the Community and hope you enjoy your time with us.  If there is anything we can help/support you with then please just let us know.  All the best.  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Welcome to the community @linlin01, it's great to have you with us!
    Community Partner
    Scope

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