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Myotonic Dystrophy now progressing very quickly

Hi everyone new to site and Mother to a daughter diagnosed with Myotonic Dystrophy in April at 28 years old symptoms have progressed very quickly and now Neuro wants her to be admitted to carry out further tests as Neuro is worried that more is going on has anyone else experienced severe symptoms so rapidly, Thanks in advance.
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Welcome to Scope!
You can ring the Muscular Dystrophy UK helpline on 0800 652 6352 or visit the website https://www.musculardystrophyuk.org/ for more information. If you need any support with advocacy, call the advocacy team on 020 7803 4800.
Hope this is useful. For appointments, my advice is to attend them with a pen so you can take notes and a short list of questions to ask the consultant as well during the appointment. Do not be afraid to ask questions either. I also suggest having a list of symptoms to refer to just in case. Good luck and keep us updated.
I hope your daughter's further testing happens soon; the waiting is often the worst bit (for you both).
Please do keep us updated and if you believe we can support you with something then please do let us know.
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I really hope things work out for you all soon.
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Sadly they do make errors with these calculations and statements.
If she doesn't have savings over £6,000 you need to get in touch with them to discuss this. It sounds as though they haven't verified her daughter onto her claim. Have you managed to get this resolved?
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