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disabledkenny Itroduction

disabledkennydisabledkenny Member Posts: 40 Connected
edited September 2019 in Welcomes and introductions
This is about disabledkenny life since conditions started at the age of 14!

I was 14 when my right knee started giving away in school & took me to hospital, they did not know what was wrong so stuck me in plaster cast from my hip to my ankle, after 3 months they removed it & told my I had oscoslaters disease (lack of cartilage tissue), at the age of 19 I saw a rheumatologist & he operated on my knee & discovered that I had osteoarthritis, a year later my hips started then my left knee, they sent me for physiotherapy & gave me pain killers. I also started with asthma so started on inhalers which helped control it.

When I was 27 in 1993 I woke up unable to move from my neck down so my ex-partner called out my doctor he said the osteoarthritis had hit my spine & sent me immobilised so gave me some anti-inflammatory tablets and with in 4 hours was able to move & start walking again, but had to give up my job as head waiter of a hotel in Oldham, I was able to claim benefits & disability living allowance (now called PIP) & got the higher rate care & motability.

1994 I had a major stroke & took 8 months to recover I was unable to move my left side & has slurred speech also for a few days was blind.

In 1997 I started my own business designing & printing business stationery for small businesses & was driving from Morecambe to Lancaster, Preston, Blackpool, Oldham & Manchester, but in November 1997 had another major stroke which took 13 months to recover from so ended back on benefits.

I started suffering from  severe depression disorder in 1998 saw a psychiatrist and stress councillor eventually medication helped me.

I had a bad fall in 1999 using my wheelchair going up a steep drop kerb I fractured my centre & lower vertebra’s & spent 3 years needing a lot of care unable to walk mostly bedridden.

From 1998 - 2012 I  had a lot of  strokes, light strokes & TIA’s in & out of hospital & discovered that I had a stroke related condition but they never named it, as they discovered that I had a stroke related condition.
In 2001 I moved back to Oldham to be near my friends.

2009 became paralysed from the chest down, spent 4 weeks in hospital, 3 months later got feeling of upper body but legs remained paralysed for a further 15 months, still to this day did not find out why.

Had a heart attack in 2014 discovered I had Super Ventricular Tachycardia condition recovered after a couple of weeks.

Started with prostate problems in 2016 on medication to help.

2017 I started with vertico I suffer from dizzy spells even when I move my head fast unable to stand to transfer on to the wheelchair.

Physiotherapist diagnosed me as having nerve damage in upper spine, waiting for MRI then appointment with Neurologist, this is caused through thinning of the discs in my spine causing the vertebra to rub together & get worn pressing onto my nerves, it causes pain & weakness in upper body.

So after all this I have mental health issues through all that my body has been through.

I am now in an electric powered wheelchair & need care I have 3 visit’s a day 8 - 9.30 am, 4 - 5 pm then 8 - 9 pm.

I run several support groups & forums on Face book, I set up & run Oldham Disabled People & Elderly Support Group also Oldham Versus Arthritis Group both meet once a month not many members as yet.

Replies

  • Adrian_ScopeAdrian_Scope Testing Team, Community Team Posts: 7,914 Scope community team
    Hello and a warm welcome to the community @disabledkenny. You sound like you've been through a lot over the years. How long have you been running your support groups?
    Senior Community Partner
    Scope

    If you have a few minutes to spare, we'd appreciate your feedback on our online community.
  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Hi @disabledkenny and welcome to the Community.  It is nice to meet you and thank you for sharing your story with us.  Oh gosh, you have been through a lot and I am sorry to hear about your health struggles.  I hope you enjoy running your support groups and am sure they keep you busy.  You have come to the right place for sharing, support and friendship and you will find many lovely people on here.  So please feel free to look around the website and join in any discussions.  I look forward to seeing future posts from you and hope you enjoy your time with us.  If there is anything we can help/support you with then please just let us know.  All the best.   :)
    Winner of the Scope New Volunteer Award 2019.   :)
  • disabledkennydisabledkenny Member Posts: 40 Connected
    Hi Adrian_Scope thanks I have been running Oldham People & Elderly Support Group since June last year & just set up Oldham Versus Arthritis Group last month had the 2nd meeting today, just myself & the area manager of Versus Arthritis & had 2 ladies & 2 men popping to see what the group is about & get information about their arthritis also gave them leaflets, so hope they will come back & possibly bring others along as well, time will tell.
  • disabledkennydisabledkenny Member Posts: 40 Connected
    Hi Ails thanks for the welcome, yes the groups keeps me busy which I enjoy doing, the ones on Facebook are active, the 2 I run in my community once a month are just 1-2 people coming along I need to get promoting them more. I look forward to posting in other discussions & getting to know everyone.
  • emmarenshawemmarenshaw Community champion Posts: 704 Pioneering
    Hello @disabledkenny welcome to the community.
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