Do you know what Ataxia is?

Yesterday, 26th September, was Ataxia International Awareness Day.
A recent poll showed that only 10% of the UK population have heard of ataxia, and Ataxia UK want to change this.
Symptoms
The NHS list the following symptoms for Ataxia, with it being able to affect any aspect of the body:
- balance and walking
- speaking
- swallowing
- tasks that require a high degree of control, such as writing and eating
- vision
What cause Ataxia?
Ataxia usually results from damage to a part of the brain that controls movement and coordination, but it can also be caused by damage to other parts of the nervous system.
This damage can be part of an underlying condition such as Multiple Sclerosis or Cerebral Palsy. It can be caused by a head injury or lack of oxygen to the brain.
Hereditary ataxia is caused by a faulty gene passed on by family members, who may or may not be affected.
Ataxia UK
Ataxia: What's That? booklet provides a much more in-depth look at the condition.
Ataxia is a rare group of neurological conditions that affect (amongst other things) balance, coordination, and speech. There are many different types of ataxia that can affect people in different ways.
The condition doesn't discriminate. It can affect anyone, of any age. Studies suggest there are around 10,000 people living in the UK with a form of ataxia. Some forms of ataxia are treatable, but in most cases there is still no cure.
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Replies
Thank you for sharing this with us! I agree, awareness days can be a great learning opportunity!
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Always useful to keep in mind. Just in case a community member needs some guidance, help or information.
These are useful these awareness days because not many people know about so many of these conditions, disabilities or illness.
Thanks for bringing to the communities attention.
Take care.
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
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Thank you for sharing this with us @Swordfish and you are more than welcome.
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Overall, it can be noted that Ataxia rehabilitation is very important in the treatment of Ataxia. It improves locomotion. It aims to improve balance, which is the most vital to improving gait (walking). Patients suffering from Cerebellar Ataxia can use ataxia rehabilitation as a treatment for a prolonged time to achieve greater results.
However, besides the severity of the ataxia, factors like Age and other degenerative neurological diseases present could influence how well this treatment works. It remains of paramount importance that patients suffering from Cerebellar ataxia work towards remaining in good health by engaging in physical and mental exercise programs such as the Ataxia rehabilitation, and in addition, they should sleep well, eat well, and avoid injury from falling.
The link is https://www.ncbi.nlm.nih.gov/sites/myncbi/1v9jzpUc5t6/collections/41302282/public/
PubMed is not a USA only data base, It has international research as part of its data base including UK research. The USA also has many incompetent and corrupt medical professionals and professionals bodies only interested in marketing their limited services being able to continue their career funding, and ignoring the real issues.
The problem in the UK is ignorant and incompetent medical professionals who are not adequately trained to be up to date even with UK based research.
Unfortunately some of us are more informed regarding our complex disabilities than the professionally negligent medical professionals who work in the UK who only want to hide their ignorance, massage their egos, and maintain their income provide low quality services.
So we have to learn about our disabilities and educate the incompetent UK medical professionals..
You obviously do not use PubMed that much, as they have the Free full paper access PubMed Central where they provide he full research papers especially a year after the initial publication.
They also have a very good search index system, lwhihc lists related research again which they can also provide the full access.
Or you could copy the research paper title and authors and say ask for a free copy of the paper at say ResearchGate.
The days of abstract only access is becoming less of an issue as many publishers are now providing more open access to explain issues.
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