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Hiya from Norwich!

Aimz2shineAimz2shine Member Posts: 19 Courageous
I'm glad I found y'all! I hope to be able to meet like minded people, possibly make a friend or two, and help out any way I can with all the various DWP headaches one goes through (climbed that hideous mountain). I'm a firm believer in striving to take control of your disability, not let it control you. I personally suffer from chronic lower back pain, due to nerve impingement. The medical community have put me out to pasture, as they believe there is nothing more they can do for me (been refused surgery, as well). So I, too, am in the "grin and bear it" situation most of us are in. I hope to meet more of you on here, and will be more than happy to be a sounding board, if needed. All the best for a meaningful and productive life for everyone! 😁

Replies

  • Ami2301Ami2301 Member Posts: 7,418 Disability Gamechanger
    Hi @Aimz2shine and welcome to the community! How are you doing today? :)
    Disability Gamechanger - 2019
  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    Doing just fine, you? Just doing a bit of DIY (trying not to over do it, of course)  😁
  • Ami2301Ami2301 Member Posts: 7,418 Disability Gamechanger
    I'm good thank you, just catching up with some bits and bobs :) do you do DIY as a hobby? :)
    Disability Gamechanger - 2019
  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    Yes, I've actually just started, tbh. Like to upcycle and put my own stamp on things. Gives me a great feeling of accomplishment!
  • DerbymduckDerbymduck Member Posts: 39 Courageous
    Hello and welcome from Derby :smile:
  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @Derbymduck, cheers for the welcome! I look forward to becoming a part of, what seems like, a great group of people! 😁
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @justdon LOL! I've met you before, haven't I? 😁
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @justdon, just wished I could've given it to you sooner, when you needed it the most...
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,924

    Scope community team

    Great to have you here @Aimz2shine. If you feel comfortable sharing your upcycled creations, you're welcome to post pics in our Kaleidoscope thread here.
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @justdon, I hear you. Unfortunately, since mental health issues tend to be used by benefit cheats, there's quite a bit of scrutiny with the DWP when it comes to awarding benefits. This is what I've sussed out just on my own. What the DWP doesn't understand is, benefit cheats know how to play the game, so unless they are caught out and about, away from the assessment office, they'll keep on keeping on.
  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @Adrian_Scope, it's gonna be awhile before I can post some of my upcycling. It takes a good long time to finish a project. However, when I do, I'll post a few pics 🙂
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • Janet63Janet63 Member Posts: 1 Listener
    Hiya from Hull
  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @Janet63, hey there! Thank you for the greeting! Hope you are well! Are y'all floating from all the rain your way?
  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @justdon, pisses me off as well for the same reasons you mentioned. They are screwing it up for the people who genuinely need help. I also blame the lack of qualified assessors. I have noticed, after being reassessed for PIP after receiving it for a couple of years, that they are getting better, but still have a ways to go. I started going through the claiming process when PIP and ESA were in its infancy, so I was caught up in all the glitches that reared their heads when they rolled the scheme out. I had to go through tribunal regarding ESA, as they put me in WRAG instead of Support group. After a couple of "required" trips to the job centre, I realised how "they" do it. Squeaky wheel gets the grease, and make yourself "look" unemployable. Simple...
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @justdon, yes, everything's been fine for a few years now. Sheer grit and determination does pay off. I've always been bullheaded, which has its advantages. Also, Equal Lives had my back (no pun intended) every step of the way. Hence, why I'm always recommending them. My heart goes out to the people that are vulnerable and don't have that "fight" in them to take on the powers that be. I do wish the best for you. Keep on keeping on! Remember, they can knock you down, but they can't knock you out 😉
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @justdon, I do know exactly how you feel. I know you feel like your banging your head against the wall. I know the anxiety you feel, knowing that someone else has your future in their hands. It feels like you don't have any control over your own destiny. It does take its toll. I don't know everything you've done to fight your corner on this situation. The only advice I can give you is, inundate the DWP with any letters from your GP, specialists, and other professionals that will attest to the problems you have and how they affect you. Be that greasy wheel. Be dramatic. Make it personal to them. Don't tell them you have "good" days. Tell them every day is bad, and how bad it is. Unfortunately, being business like and talking about your "good" days doesn't work with the DWP. You have to exaggerate to get through to them. I know it's a bit "dishonest" and "embellishing", and I'm not that kind of person. I'm just telling you what I experienced. You really have to give an award winning performance to be listened to. Advocacy groups will tell you the same thing. You've got to pretty much act like your world is coming to an end, and that you are so desperate for their help to have ANY quality of life. The DWP wants evidence. Give them that through letters from professionals and your own account of how "****" your own life is. Answer every question as if it's the worst day of your life, everyday. The honest approach doesn't work with DWP. You have to play hardball. I learned that the hard way. It's horrible to say, but you're a number, not a person to the DWP. I wish you all the best, and I personally would get in touch with a disability advocacy group, just to at least get advice, even at this late stage.
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • AilsAils Member Posts: 2,268 Disability Gamechanger
    Hi @Aimz2shine and welcome to the Community.  It is lovely to meet you and I enjoyed reading your introduction so thanks for sharing with us.  It is great to have you on board and I'm sure you will make a really valuable contribution to the forum.  Lovely, friendly people on here so I am sure you will make some new friends.  I hope you enjoy your time with us anyway and I look forward to reading more posts from you.  If there is anything we can help/support you with meantime then please just let us know.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @justdon, no problem. Hindsight is 20/20, as they say. You'll get there. Things always have a way of ironing themselves out...😁
  • Aimz2shineAimz2shine Member Posts: 19 Courageous
    @Ails, thank you for the sweet welcome! I do hope to gain some useful information, as well as some good friends on here!
  • AilsAils Member Posts: 2,268 Disability Gamechanger
    You are welcome @Aimz2shine.  You will certainly find plenty of helpful members ready to give you lots of useful information and you will make lots of lovely friends too.  It is such a great, warm and friendly Community.  Lovely to meet you.  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
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