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I'm waiting on tests but has anyone else dealing with this?
roxieb88
Member Posts: 12 Connected
Where to start... Well for years my legs from my hips to my toes have just ached constantly nothing helps n it doesnt matter if i stay in bed all day or go about my daily routine, they always hurt n ache, there ice cold too my toes are blue /purple all the time! (As i call them dead mans toes) so it hard to sleep with it but I just carried on, u know.
But over the last 2 years, my hips have started seizing up and my movement is really restricted and one more than the other, it feels like there is so much pressure in them (if u understand that) n if i continue to walk i get this horrendous pain n i physically cant move cuz the pains that bad and need to cling on to something asap! That's the point where I have about 5% movement in it, like when u walk u raise it knee but I can't do that, i just have to try n walk straight legged to the nearest seat. I have to try n put all my weight on my other leg which is causing me alot of pain in my lower back now. Plus i cant move when i get home, i just lay on my bed for the next 2 days cuz it's so painful to move. Well anyway i dnt go out anymore, I stay in for months on end as I also live up three flights of stairs n no lift so by the time I get down them my hips already hurting and getting up them is absolute agony, I just shout my way up the stairs n use my other leg to step n then pull myself up by the rails or my partner will help me.
Be nice to know if anyone else has experienced this cuz I'm currently waiting for an mri as they couldnt see anything on my xray. But my mother started having problems with her hips around my age but I don't know what she was diagnosed with as she died when I was 17 n I just never asked it was just mums got bad hips but she could barely walk by time see died. So I'm worried. Be nice to know if anyone has experienced this?
But over the last 2 years, my hips have started seizing up and my movement is really restricted and one more than the other, it feels like there is so much pressure in them (if u understand that) n if i continue to walk i get this horrendous pain n i physically cant move cuz the pains that bad and need to cling on to something asap! That's the point where I have about 5% movement in it, like when u walk u raise it knee but I can't do that, i just have to try n walk straight legged to the nearest seat. I have to try n put all my weight on my other leg which is causing me alot of pain in my lower back now. Plus i cant move when i get home, i just lay on my bed for the next 2 days cuz it's so painful to move. Well anyway i dnt go out anymore, I stay in for months on end as I also live up three flights of stairs n no lift so by the time I get down them my hips already hurting and getting up them is absolute agony, I just shout my way up the stairs n use my other leg to step n then pull myself up by the rails or my partner will help me.
Be nice to know if anyone else has experienced this cuz I'm currently waiting for an mri as they couldnt see anything on my xray. But my mother started having problems with her hips around my age but I don't know what she was diagnosed with as she died when I was 17 n I just never asked it was just mums got bad hips but she could barely walk by time see died. So I'm worried. Be nice to know if anyone has experienced this?
Replies
1. Multiple Sclerosis.....this can be difficult to diagnose. MRI and Lumber puncture are often used
2. HSP..hereditary spastic paraparesis....with your mum having similar problems..it`s a possibility.
I began with foot drop and had to swing my leg out from the hip.
I have no mobility at all now.
Dont wish to scare you with this.
Like Poppy said, unfortunately none of us are qualified to give medical advice. However, I hope the community can support you in understanding and many members who would have experienced similar things.
I really hope your MRI goes well and please do keep us updated.
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Glad I didnt scare you hun.
I`m seeing a new neuro in November. Maybe I`ll get a diagnosis. Yep, waiting for tests is the pits. Take care chick xxx