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pollyanna1052 said: I dont understand their reason....something to do with the fact that I get a respite payment.
Topkitten said: Payments towards care costs seem to be based upon only some of our outgoings but all of any sort of income and certainly do not include ANY cost for special equipment. It is not a fair system and, as all complaints are handled internally, there is little point in complaining as all mistakes, errors or inconsistencies are whitewashed and likely to get a person labelled as difficult or problematic. A few years ago I was left without a doctor or access to medication for 3 months while I argued to get the support I had been assessed as needing but not given. After getting nowhere I wrote to my MP who, after suggesting I make a considerable effort I wasn't capable of to fit in with his routine, merely forwarded my complaint back to Social Care who immediately whitewashed the whole thing and complimented the Social Worker for her efforts. I kid you not, they really complemented her for her "great efforts above and beyond". Soon after this I was labelled in their records as physically, emotionally and sexually abusive which I only found out about by accident a year later.I wish you more luck than I have had and hope things improve.TK
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