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Hard times

I have now been housebound for 18 months and even though I have been out occasionally the doctors would have a fit at the medication I need to take to do so, so I tell no one. I have been fighting losing battles with the hospital, GP's and Social Care which means I am crippled sooner than necessary, I am unable to move around at home as I should and I get virtually no assistance except a very small amount from one child out of three.
Things seem all the worse since I used to be a popular, "life of the party" sort of person and have avoided entanglements with women for their benefit rather than my own since I realized just how ill I am and would become. I am struggling with not only illness both physical and mental but also with loneliness and neglect. I know some people have suffered far longer than me and maybe not knowing anything different would make it easier to cope with but I know of no way to compensate my life to make it remotely worth living.
I often wonder if others feel the same or whether they have managed to avoid the sort of situation I find myself in.
TK
Things seem all the worse since I used to be a popular, "life of the party" sort of person and have avoided entanglements with women for their benefit rather than my own since I realized just how ill I am and would become. I am struggling with not only illness both physical and mental but also with loneliness and neglect. I know some people have suffered far longer than me and maybe not knowing anything different would make it easier to cope with but I know of no way to compensate my life to make it remotely worth living.
I often wonder if others feel the same or whether they have managed to avoid the sort of situation I find myself in.
TK
"I'm on the wrong side of heaven and the righteous side of hell" - from Wrong side of heaven by Five Finger Death Punch.
Replies
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I used to do loads of things that I can't anymore.
A neighbour has complained to the council that I can't do my garden as well.
Iv tried to find a charity that could help me with my garden I only need 2/3 times a year.
I use my garden for my.health, but now &then I need help.
Age UK. Promised for 6 months but they didn't do anything all boosting wasted my time.
May be salvation army could help me
I'll mail them
I'm stuck really. My house has only had adaptions as far as a wet room and an odd rail or two. However, the corridors and doorways are too narrow for a chair and I really shouldn't walk at all due to neurological pain at excessive levels. I don't even have ramps to get a chair in and out. I am in an unfortunate situation as regards pain medication as although I can tolerate very very high levels of opiates I cannot tolerate neural pain killers hardly at all. Consequently I spend almost all day and night in a recliner chair. I requested an assessment by Social Care in April 2018 but it wasn't done until March 2019 due to extreme continued incompetence and even then the report made no sense due to Social Care still covering up mistakes made 2 years ago. It seem these people never forget. A month ago I was reassessed by SC and they agreed I need help and need the report rewritten but I have heard nothing so I guess they never meant to do anything just shut me up.
With walking being so painful I haven't used my garden in years but at least the council keep the grass down, just wish they would get rid of the weeds on a badly laid patio,
I will try to be more forward thinking but at the moment I have pretty much given up trying.
TK
I.think it's getting to speak with the righ person.......Im still trying to find him/her
@Misscleo, sorting out the garden is an optional service and I don't think all Councils support it. It used to be free here but now is charged for. Contacting anyone in Housing Support should be enough to find out if it's available.
@herroabii, as I stated some are worse off than I as I was pretty much healthy until I was 49. In a way though that hurts me more, knowing I used to be able to do so much that I cannot do now. Being healthy meant I was able to be married twice and have three children. Unlike me though they do not support me the way I supported my Mother. Perhaps family values no longer exist?
I know I should change GP Surgery but I have been with ALL 6 local ones and had problems with them all in different ways. They are not really happy to take on housebound patients and have no procedures for it and there is also the problem with changing the source of delivery medication. I know it can be done online but my existing system involves a chemist located in the same building as my GP and who are also included in their computer system. I'm worried that if I change there could be issues and I cannot cope without the meds I can take as without them the agony persists even when lying down. So much so that I simply cannot do so. The meds might only take the edge off but that edge means that at least I can lie down mostly in little pain. Sitting, standing and walking (in that order) sends pain through the roof to levels I never understood existed. Even the ambulance "gas & air" combo is useless (I know this because I've tried it).
TK