Cerebral Palsy and Behaviour Survey

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Richard_Scope
Richard_Scope Posts: 3,638 Scope online community team
edited October 2019 in People power
The survey is to gain information about children with CP and their behaviour from the parents perspective in order to complete our dissertation at York St John University. 
The survey will be anonymous and there is no obligation to complete the survey. 
There are some inclusion criteria which will be asked once the survey is accessed and this will either allow the parents to continue or take them to the end of the survey dependent upon their answers. 
We estimate that the survey will take approx 10-15 minutes to complete and there is a full explanation of our research project upon accessing the link. 

Thank you for your help.

Children with CP and their Behaviour Survey

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Scope
Cerebral Palsy Programme Lead

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Comments

  • forgoodnesssake
    forgoodnesssake Community member Posts: 512 Empowering
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    Very disappointed to see that there is nothing at all about communication in this survey, which to my mind makes it useless!  Sorry.  There are HUGE impacts on some of the issues they ask about here if a child has little or no functional speech and/or no decent AAC.  TBH it shows a very scant knowledge of CP, for example asking if a child "squirms around a lot" or "fidgets and can't keep still"...if they have athetoid CP that's almost a given and doesn't actually indicate anything about the sorts of behavioural issues they seem to be asking about.
  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
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    @forgoodnesssake I will pass on your valid comments to the researchers at York St.John. I will also ask for their response.

    Scope
    Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.'

    Want to tell us about your experience in the community? Talk to our

    chatbot

    and let us know.

  • forgoodnesssake
    forgoodnesssake Community member Posts: 512 Empowering
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    thanks!  I feel like a communication vigilante at times  ha ha
  • forgoodnesssake
    forgoodnesssake Community member Posts: 512 Empowering
    edited October 2019
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    double post for some reason
  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
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    We're glad to have a communications vigilante!

    Scope
    Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.'

    Want to tell us about your experience in the community? Talk to our

    chatbot

    and let us know.