Totally mindbending pain tonight — Scope | Disability forum
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Totally mindbending pain tonight

So I have fibromyalgia, dx'd about 12 years ago, symptomatic a lot longer. I get a lot of pain obviously, but I have this particular night time leg pain which is just awful and excruciating and I usually dont get any sleep at all when it happens. It's my whole legs, both of them, from my hips to my feet and they just really really hurt. Like a constant aggressive ache, only I'm not moving to trigger it, its never there after doing anything excessive and it feels worse/ different to my regular pain, it's just awful. I have to keep shifting my position and trying to relax but it's so awful as far as pains go. I'm exhausted, I'm trying to support my mum and can barely support myself even with our partner being around.  I'm not worried  specifically, its "just" the fibro, I just NEED to relax, stop my legs absolutely killing me. Not being able to sleep at all creates complete non functioning the next day....anyone else get this with fibro?? I'm going out of my mind!!!


  • EmmaB
    EmmaB Member Posts: 263 Pioneering
    Hi @StarryShapes
    I'm writing an article about pain management for a magazine at the moment... I came across these two websites which you might find helpful:
    I think there is a major shift in thinking about pain and it can help to have a greater understanding of how it works ie how it escalates if left to its own devices and with ineffective treatment.
    I hope you might find the websites of interest and better still helpful. 
    I'll post a link to the article on this message board when it comes out but that's not until Jan 2020 which sounds very futuristic to me!
    Best wishes.
  • Chloe_Scope
    Chloe_Scope Scope Posts: 10,545 Disability Gamechanger
    Hi @StarryShapes and a very warm welcome to the community! I am so sorry to hear that you are experiencing high pain levels, especially when trying to sleep!

    How are you feeling today?

    I too experience chronic pain, although not fibro, and can relate to what you have said here. I am sure it will also resonate with other members and I hope you will be able to find peer support here on the community. :)


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