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Lonely and in need of advice

I am a 36 year old female,I have unilateral cerebral palsy, a heart murmur,endometriosis, anemia (so tired and breathless now) arthritis in my hands,feet,ankles and shoulder, depression ,anxiety ,emotionally unstable personality disorder and PTSD. Up until a year ago I also had arteriovenous malformation , which caused high risk of stroke and high risk of anurysm ,luckily radiation got rid of the tangle of vessels in my brain. I struggle everyday mentally and physically. I have been in and out of mental health hospitals for the last 20 years and in and out of general hospitals all of my life (age 36) I haven't enjoyed life for so long, everyday is so painful both mentally and physically , has anyone any suggestions on how to make life more comfortable ? Easier to manage ? I have just had a wetroom installed so that makes showering easier being able to sit down. My joint pain from arthritis is bad now the weather has got colder. I try to tell myself I should order my groceries to help me manage better so I haven't go to struggle to carry things ,but anxiety over delivery always prevents me ordering , I never used to get anxiety that bad before . I only have one friend really, and she has social phobia ,but I try to visit her. If I can get out I manage a few things, but then it leaves me exhausted and in pain for hours/days. I just want to know how I can lead a normal life. I spend 95 percent of my time alone
Replies
Disability Gamechanger - 2019
You have a lot to cope with but the key thing is that you are and that shows a tremendous amount of strength and determination.
I would tackle each issue in isolation. Starting with the endometriosis. You can ask to see another G.P. and be referred to a gynaecological consultant.
We are here to support you, I know it's different to real-world interaction but it's a fantastic community with great members. Scope has a helpline you can call as well on 0808 800 3333
Keep in touch and let me know if you would like to chat.
Specialist Information Officer - Cerebral Palsy
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I am wondering if my suggestion is of any interest......
I have carers who come in and se to my personal care and they also take me out and on short breaks.
This is mostly paid for with Direct Payments and a respite fund. I do make a contribution.
To get this you first ask Social Services for a care assessment and they do their best to help.
Any good? xxx
Scope
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How often does your CPN visit? I hope you're finding your way around the community okay. There's lots of conversations in the Coffee Lounge if you fancy a chat.
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.