If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Emotional support
lou86
Member Posts: 14 Courageous
Hi
My daughter who is 9 has a progressive muscle disorder which requires her to use a wheelchair and wear AFOs day and night - still undiagnosed after 6 years of tests.
She is suffering emotionally and is really down, she is expressing self hatred a lot and has secluded herself from her friends at school and is usually by herself. I feel she really needs counselling of some sort to help her process what is happening to her but the school are fobbing me off saying it will cost over 1k to get her what she needs.
Does anyone have any advice on who i can contact to get her the help she needs before this gets any worse?
thank you
My daughter who is 9 has a progressive muscle disorder which requires her to use a wheelchair and wear AFOs day and night - still undiagnosed after 6 years of tests.
She is suffering emotionally and is really down, she is expressing self hatred a lot and has secluded herself from her friends at school and is usually by herself. I feel she really needs counselling of some sort to help her process what is happening to her but the school are fobbing me off saying it will cost over 1k to get her what she needs.
Does anyone have any advice on who i can contact to get her the help she needs before this gets any worse?
thank you
Replies
Does your daughter have a Education Health and Care Plan (EHCP)? I was just wondering what support was outlined on there if she did have one. If this isn't the case then I would look into getting one as it could allow her to access more support in school and become beneficial in the future. Here is some information about the EHCP process.
I know she might be too young, but here is some information about talking about your impairment and the social model of disability.
If you are worried about your daughter feeling down then you can make a referral to the Child and Adolescence Mental Health Service (CAMHS) where they can offer counselling or other forms of therapy.
If you need anything else then please do let us know.
I really appreciate you advice, no she doesn't have an EHCP plan, i will have a look into it. She has only just had a care plan done (which is very basic) as the school nurse and SENCO didn't have a clue about her extra needs.
I think she would benefit from some sort of therapy as she has told me that she doesn't like to tell me how she is feeling cause she doesn't want to upset me. so i always make a point to ask her questions and tell it that things won't upset me and i only want to make her feel better
If there is anything else we can do then please do let us know, we'd love to hear how you both get on.
Chloe is right in suggesting the EHCP
An education, health and care (EHC) plan is for children and young people aged up to 25 who need more support than is available through special educational needs support.
EHC plans identify educational, health and social needs and set out the additional support to meet those needs.
You can ask your local authority to carry out an assessment if you think your child needs an EHC plan.
Senior online community officer