And this is another thing i find very odd about pip ..They will penalise someone for being able to drive yet there are people who are able to get funding for a vehicle ?
Hi, thank you Poppy for telling your story, as I'd only previously read about the latter part. I think your caring nature comes across by the countless people you answer who are often asking the same questions, yet you show great patience in answering them especially as regards benefits. I doubt if there would be enough hours in the day to express anything other than the knowledge or facts that you do get across so well. I am saddened to read that some have been more than impolite in the past, & that must be hurtful, yet still you have carried on.You raise some points I am in complete agreement with: just fill in any form doing a little each day & it's probably better trying to write a little down over a period of time than just repeating your difficulties to someone from an agency.I also found writing an 8 day diary down helpful, as mentioned above that can be helpful in deciding what to write in your forms. In my case I sent it off with my PIP form as I didn't have much medical evidence.Edit: Takes me so long to type hadn't seen Poppy's 2nd post here. We're all in this together, trying to help one another.
Hey, as Poppy said, she was just telling her story; mainly about circumnavigating benefit criteria.Please let's be kind to each other, & also reach out to understand more from each other.
@Chobbly I'll try and explain now but I'm pretty pants at explaining.So the negative things with ESA were that I was awarded ESA at one point just for having a fractured ankle and yet they never took my mental health seriously, and they deemed me fit for work twice pretty much back to back, first time I waited 12 months for the appeal, around 3 months after winning that appeal, they send me another form and again they deemed me fit after the assessment, the second time I waited 18 months for the appeal because they lost my paperwork, I won that appeal also, during this period of time I was trying to feed both myself and my Son, plus pay the bills and such. It ended up making my health worse. They used excuses like, "looked clean", "wasn't rocking in her chair". I think you saw my post about PIP? I'll link the main one below as I made two about PIP https://community.scope.org.uk/discussion/59580/pip-report
@WF2k @WhileIBreathIHope What i can see so far ,is that if you know how to use the system to your advantage, then you are at a disadvantage .Unless you have someone very knowledgeable on your side helping you with the paperwork and educating you about critera ,discriptors and how certain questions will be framed and aimed at you etc then you are also at a disadvantage .Thanks so much for your replies, i do feel this is an important issue.
@WF2kWhile i have you here ...Do you know anything concerning Enhanced premium?I receive UC single mans over 25 and LCWRAPIP is enchanced for both(zero points last sept--work that one out!)So, im not sure what premium is and whether i receive whatever it is...lol...Hopefully that makes sense..Been awake since 3 am...then dropped off at 8am-9.30am and havent felt right since...So typing is at a minimum today!
Hi @WhileIBreathIHope - I don't know if you've looked on the internet for information on 'Fibro fog;' my apologies if you have. See for example: https://www.arthritis.org/about-arthritis/types/fibromyalgia/articles/fibro-fog.php My thought is perhaps some of the descriptions there will echo with how this makes you feel & be useful in thinking how to write about it. And about the joint pain, saying you have a burning pain in whichever joints are affected should be fairly easily understood. Then add that you feel like that probably 4/5/6 days a week, whichever it is for you.There may be much better sites to look at, so you could try & few.
PIP isn't about a diagnosis, it's how those conditions affect your ability to carry out daily activity based on the PIP descriptors. Yes, i fully understand what fibro is because i have it myself. as well as other conditions. It's how your conditions affect you at least 50% of the time over a 12 month period. You need to explain in detail how your conditions affect you. Giving a couple of real life examples of what happened the last time you attempted that activity for each descriptor that applies to you.Do bare in mind that even though people do work and claim PIP, if the work you do contradicts the reasons for your claim then this can go against you when a decision's made.
@WhileIBreathIHope - Please know, I completely believe you. I have some understanding about fibromyalgia, as many people with one of my disorders (Chiari 1 Malformation) were often mis-diagnosed with fibro, so I read a lot about it, admittedly several years ago. I have chronic pain, so I know how badly it can affect a person, & how hard it is to live with.I feel everyone here is completely genuine & wish as justdon has mentioned that integrity would shine through.I'm only just beginning to realise how difficult it is for some here to complete the necessary PIP forms. The more people say, I hope the better we will be able to understand each other as I feel this very important.....& a way forward, so that people get the help they need.....both in knowing they're supported here & in completing the forms.