Hi, my name is daniellelinleyx! — Scope | Disability forum
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Hi, my name is daniellelinleyx!

Hi there, my name is Danielle and I have a 4 year old girl who has cerebral palsy.
shes just recently started mainstream primary school, and also has just had Selective Dorsal Rhizotomy “SDR” surgery as well, and has made great improvements since. 
I’m new to this forum! ☺️☺️

Comments

  • Ami2301
    Ami2301 Community Co-Production Group Posts: 7,946 Disability Gamechanger
    Hi @daniellelinleyx and welcome to the community! So good to hear that the surgery has benefitted your daughter! Please let us know if you need an y help wth anything :)
    Disability Gamechanger - 2019
  • chiarieds
    chiarieds Community Co-Production Group Posts: 12,265 Disability Gamechanger
    Hi @daniellelinleyx - Welcome to the community. What a great introduction to read, that your little girl's surgery is helping her. I hope she's enjoying school too. I hope to see you around joining in the various chats.
  • Adrian_Scope
    Adrian_Scope Posts: 8,572

    Scope community team

    It's great to hear from you @daniellelinleyx. How's your little girl finding school so far?
    Community Manager
    Scope

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  • emmarenshaw
    emmarenshaw Member Posts: 711 Pioneering
    Hello @daniellelinleyx  I'm Emma, one of the Community Champions. A warm welcome to the community. I have CP as well, I'm glad your daughter is doing so well. Please keep us posted. 

    Also, Scope has a CP Advisor @Richard_Scope just incase you have any questions or need any support at all.
  • Ails
    Ails Member Posts: 2,256 Disability Gamechanger
    Hi @daniellelinleyx and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  Great to hear that your wee girl is doing so much better after her surgery.  I wish her well!  I hope she is enjoying school so far.  If there is anything we can help you with then please just ask.  All the best.  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Richard_Scope
    Richard_Scope Posts: 3,106

    Scope community team

    Hi @daniellelinleyx
    Great to meet you! How is your daughter doing after SDR. How did you find the whole process? I would love to talk with you further about it :)
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • daniellelinleyx
    daniellelinleyx Member Posts: 10 Connected
    edited November 2019
    @Adrian_Scope - my little girl really enjoys attending school, she’s made lots of new friends & the school have been really well with her additional needs & adaptions which is really good, as I do know some people find it hard finding a good school that meets the needs of individuals. 

    @[email protected]_Scope - I would be happy to chat further with you more about my daughters SDR surgery and the process, if you would like to email privately? 

    She’s recovered really well and has made amazing progress. She couldn’t sit balanced on her bum before surgery was a “W” sitter, she couldn’t walk very far without falling and she would walk on her tiptoes. She was also using a Kaye walker before surgery - she now has a single stick and uses that, but uses her Kaye walker in the playground, she still needs her wheelchair for long distances. 

    But she can now put her own socks on, she can jump, she can walk much further, her confidence has come on loads. She’s incredible, the surgeon and physiotherapists are really pleased with her progress. 

    Like I say if you would like to chat further feel free to private email me, my email address is [removed by moderator]. 

    Kind regards. 
    Danielle. 
  • Chloe_Scope
    Chloe_Scope Scope Posts: 10,557 Disability Gamechanger
    edited November 2019
    Hi @daniellelinleyx, just to let you know that I have removed your email from the community as this is not allowed, but I have passed it onto @Richard_Scope who should be in touch with you next week. :)

    So great to hear how well your daughter is doing, this is amazing!!
    Scope

  • Richard_Scope
    Richard_Scope Posts: 3,106

    Scope community team

    Hi @daniellelinleyx
    How are things going for you and your daughter?
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @daniellelucy

    Welcome it's great to meet you today ? 

    I am one of the Community Champions here at Scope. 

    It's great to see that you have already meet a number of our other members. 

    I do hope that you have got some great info /advice to date????

    @steve51
  • janer1967
    janer1967 Member Posts: 15,112 Disability Gamechanger
    Hi there I just wanted to welcome you too and glad you have found the right people to advise you

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