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Pip based on learning disability and cognitive impairment

ketomumketomum Member Posts: 33 Connected
Hello all, this is my first time on the forum and I just want to know is their anyone who has applied for pip based on learning disability and cognitive impairment. My daughter is 16 and I have put in for her pip I am her appointee as she is diagnosed with a moderate learning disability. She also has hydrocephalus and has a shunt. We are currently waiting for an assessment. I just want to see if anyone has been in the same situation and whether they could share their experiences with the pip process. I know every child is different but just want to know what to expect. Thanks in advance.

Replies

  • ketomumketomum Member Posts: 33 Connected
    Hello all, this is my first time on the forum and I just want to know is their anyone who has applied for pip based on learning disability and cognitive impairment. My daughter is 16 and I have put in for her pip I am her appointee as she is diagnosed with a moderate learning disability. She also has hydrocephalus and has a shunt. We are currently waiting for an assessment. I just want to see if anyone has been in the same situation and whether they could share their experiences with the pip process. I know every child is different but just want to know what to expect. Thanks in advance.
  • wilkowilko Member Posts: 2,300 Disability Gamechanger
    Hello and welcome, as I am sure you know pip is not awarded on a disability, diagnosis or illnesses that you have but on your abilities to function, preform the pip descriptors in a safe, repeatable and timely manner, so as you filled in the application form you as your daughters appointee will be well aware this what the accessor will be seeking to clarify at the face to face assessment at home or  an assessment center. Be on your guard think before you answer as some unrelated conversations will or can be taken as facts without you realising.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    Most people have a face to face assessment, so expect one of those. As you are her appointee then you will be able to speak on her behalf during any assessment but she will also need to attend as well.

    My daughter has a learning disability and Autism but and claims Enhanced rate for both parts of PIP but you can't compare 2 people. it really depends how her conditions affect her.

    Good luck.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • ketomumketomum Member Posts: 33 Connected
    Thanks you all for such helpful replies. My daughter is 16 but really functions like a child who is aged between 5-6 years old. I am just worried as I heard so many stories of the accessors lying and fabricating reports. I’m happy that I am to talk for her but I’m also happy for them to talk to and see my daughter as they will be able to see her cognitive ability for themselves. Thanks again
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @ketomum and a very warm welcome to the community. I wish you the best of luck and please do let us know how you get on or if there is anything else we can do to help. :)
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  • ketomumketomum Member Posts: 33 Connected
    @Chloe_Scope thank you so much for such a warm welcome. We are still waiting for a f2f assessment date. I phoned them last week and they said if I don’t hear something by the 9th of December 2019 I should call again and I will be given the number of the accessors who are dealing with my daughters case. We live in the West Midlands 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    No problem at all @ketomum! Unfortunately there appears to be a backlog in most areas so it's hard to say how long you will be waiting for a date. I really hope it isn't much longer. :)
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  • ketomumketomum Member Posts: 33 Connected
    Hello all, I just want to give a quick update regarding my daughters pip claim. I have just received a call from an accessor who has offered my daughter an appointment for 2 weeks time. My daughter has been given an home appointment although I never requested for one (Not sure if that is a good sign). I will keep you all updated as things progress  :)For area reference I live in the west midlands and pip form was received by pip on the 29th october 2019 just to give you a timescale of the F2F waiting time.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @ketomum and thank you for taking the time to update us! A home assessment is given if they believe it would be difficult for you to get to your closes assessment centre. I really hope it goes okay and if you need anything then please do not hesitate to be in touch. :)
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  • ketomumketomum Member Posts: 33 Connected
    @Chloe_Scope
    Thank you so much for the reply and all of the support. Applying for Pip is definley a stressful process. Even though I know my daughter is entitled to this benefit the process in a whole is a mind field. I have to say its forums like this that really help take the edge of a little, and allows me to see that others are in the same situation. The advice I receive on here is so helpful and reading other people stories also helps to prepare myself and my daughter on the next steps to take. I will update as soon as we have had the assessment. fingers crossed it all goes well. Thanks again
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @ketomum, I'm so glad the community has been able to support and advise you. Please do let us know if there is anything else we can do to help and I'll keep my fingers crossed for you. :)
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  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    A home assessment doesn't mean anything other than it's in the comfort of your home, rather than an assessment centre.

    If you're her appointee then you'll be able to answer all the questions on her behalf, with the exception of a few questions at the end of the assessment. If you're not her appointee then she will need to answer them herself but you maybe able to prompt her but this will depend on the HCP on the day.

    Good luck.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • ketomumketomum Member Posts: 33 Connected
    @poppy123456 thanks so much for your reply. The reason I made reference regarding the home visit is that I have seen many people on here fighting to receive an home assessment and many are denied so I was surprised we were offered one. I am my daughters appointee so I’m happy that I will be able to answer some questions on her behalf as she really has no awareness regarding her disability. Thanks ketomum
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You're welcome, my daughter also had a home assessment based on the evidence i sent, this was enough to be offered one, without asking. Some are also offered them automatically if there's no assessment centre close to where you live.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • ketomumketomum Member Posts: 33 Connected
    Hi everyone,  I received a phone call from who i believe was the accessor who said they are coming to do my daughters assessment within 2 weeks time. I am yet to receive a letter confirming the date and the time. Should I call PIP to to see if an appointment is on their systems?
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You will need to contact the health assessment providers and not DWP because the assessments are nothing to do with DWP and they won't know when your daughters appointment may be.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • ketomumketomum Member Posts: 33 Connected
    @poppy123456
    Thanks so much for such a quick reply. I rang the assessment centre and the appointment is on the 11th December 2019. I just didn't want the letter to arrive the day before the assessment. Thanks again
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You're welcome. You don't need the letter because you know when the assessment appointment is, which is most likely why they rang you. If you gave a mobile number then you'll receive a text message reminding you of the appointment date and time.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • ketomumketomum Member Posts: 33 Connected
    when i received the phone call last week wednesday all that was said to me that my daughter will have an appointment in 2 weeks no date or time was given to me over the phone was just told to look out for a letter. I thought maybe by today the letter with the appointment date would've turned up. So I was just concerned that the letter would arrive close to when the assessment date is and i haven't informed her school that she would be off that day or even prepared myself mentally. Thanks again
  • ketomumketomum Member Posts: 33 Connected
    Good morning all, just a quick update. Yesterday morning I received a white envelope from capita confirming my daughters f2f assessment. This morning I received a text message from Capita also confirming the assessment. I will update after the assessment. 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Thank you for letting us know @ketomum! Fingers crossed for you both!
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  • ketomumketomum Member Posts: 33 Connected
    Good afternoon, Just wanted to give you guys an update. Well my daughters f2f assessment was due this morning at 9am at home.
    Well about 8:10am I received a call to inform me that the assessment has been cancelled but I will be offered another assessment date after the caller went through the security questions.

    I was waiting for her to offer me something after christmas.

    To my surprise I was offered an appointment for tomorrow 12/12/19 at home at 8:30am.

    I said yes I will take it, as the kids are off school due to the general elections.
    So I will update you guys further once we have the assessment tomorrow( fingers crossed ).

  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,954

    Scope community team

    Good luck @ketomum. :smile:
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  • ketomumketomum Member Posts: 33 Connected
    Good morning all,

    This morning at 8:30am my daughter had her F2F assessment with Capita at home. I will try and include as much info as can but actually at the moment it's all become a bit of a blur. I think I am just Glad that it's all over in regards to the assessment part.


    The accessor arrived on time and was polite I directed her to my living room where my daughter was already sitting. She had shown me her ID at the door and also showed my daughter once she entered the living room.

    she then went on the explain what she was there to do to myself and my daughter. She then told me that even though I am my daughters appointee she will need to engage with my daughter and I am free to chirp in if my daughter became stuck.

     It soon became apparent to accessor that my daughter couldn't answer the questions as she didn't understand, so the questions soon only were directed at me for the most part.

    The questions are basically based around the pip2 form Its just upto you to elaborate on your answers. There were no trick questions, we only stayed in the living room.

    The questioning lasted just over an hour and to be honest it flew by, the accessor was very polite she even apologised to my daughter that we were talking about her as if she wasn't there.

    Overall I think the assessment went well as it showed the accessor how my daughters disability affects so I was happy for her to engage with my daughter to see the lever of her cognitive ability. I could write down all the conditions in the world but when they meet her in person they can truly see the person for themselves I just hope that this is accurately represented in the report.

    So at the end of the questioning she said she will write her report and send it to the DWP and they will make their decision. she said it may take a few weeks depending on backlogs but don't quote her as she isn't sure on time scales.

    So now is just the waiting game for the report so I can mayne workout what she will be awarded.

    If Anyone has any questions I will be happy to answer, as I said earlier its all a bit of a blur and I am sure I am forgetting something.

    Thank you to everyone who has given me advice and also to those who have shared their stories, all has really been helpful.

    Ketomum xx
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I'm glad it went well and it's all over now. Wait a week and ring DWP for a copy of the assessment report to be sent to you. This will give you some idea what the decision is likely to be because they mostly go with the report.

    As it's very close to Christmas now, you probably won't receive the report until after Christmas, along with the decision.

    If you're not happy with the decision once it's made you'll have 1 month from that date to request the MR.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • ketomumketomum Member Posts: 33 Connected
    @poppy123456, Thanks so much poppy I am hoping I will be able to get the report quickly but as you rightly said christmas may delay things.

     I am so glad that part of it is over and I pray that we get the correct decision.

     You always find yourself thinking maybe i should've have answered  certain questions differently but I am overall happy with how it went.
     
    Thanks again.

  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,954

    Scope community team

    Well done to you both on getting through it @ketomum. Try not to worry too much about it over Christmas and if it doesn't go the way you'd hoped, there's many knowledgeable members on here who'll be happy to try and advise you through the appeal process. :smile:
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  • ketomumketomum Member Posts: 33 Connected
    Good Morning all, I hope we are all well.

    I just want to give you all an update. On Friday I called up to request for a copy of my daughter's assessment which was roughly a week ago. I was told yes the report is back and pip will put one in the post and maybe look out for it after the Xmas because of the Christmas post delay etc..

    To my surprise the PA4 arrived today I couldn't believe it I am actually still in shock. I stared for a little while at the envelope and just said myself to open it and let's see what was said. The report was was pretty accurate as I glanced over it.

     I then ran to my laptop, well walked as I am currently recovering from a chest infection lol...  and did the pip test to see what points the assessor has given to my daughter.


    My daughter has been awarded 23 points DAILY LIVING
                                                        12 points MOBILITY (planning and following journeys)

    It also says there is to be no requirement to arrange a review of this claim as significant change is unlikely, I assume that means her award maybe ongoing?? I'm not sure.

    I couldn't have asked for a better outcome and a better accessor.
    please if anyone has any questions I will be happy to answer them if I can.

    I hope everyone has a great Christmas and a great New year!! xx

    Ketomum
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    This is the best news ever @ketomum!! The biggest congratulations an wishing you and your family a lovely Christmas.
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  • ketomumketomum Member Posts: 33 Connected
    @Chloe_Scope Thanks so much I am still in shock. Although I know my daughter is entitled to PIP you just read about to many injustices in the system. Merry Christmas to you and your family I can't believe how fast it crept up this year, but looking forward to the new year. Thank you, everyone, for their advice.
  • CressidaCressida Member Posts: 785 Pioneering
    @ketomum congratulations on getting the award and thanks for posting. Great news!
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    As you've received the report which recommends Enhanced for both parts with no review, you will still need to wait for the decision to be made but they mostly go with the report. No review would indicate a 10 year award as that's the maximum award you can receive for PIP. Hopefully a decision won't be too much longer.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • ketomumketomum Member Posts: 33 Connected
    Good afternoon everyone, Just want to come and give an update on my daughter's application for PIP. We are still waiting for the final decision, we are 8 weeks since F2F assessment and 7 weeks since the DWP received the accessors report back.

    I called yesterday for an update and was told it's still with the decision-maker.
    I was asked if I would like to speak with a decision-maker who could explain in a little more detail on what the delay could be I said yes. The decision-maker explained that there is currently a backlog and that is what the hold up is. The decision-maker also informed me that they are currently working on assessments from November and I would have a few more weeks wait as my daughter assessment was in December.

    So I guess we just have to keep waiting.....

  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,954

    Scope community team

    I'm sorry you're still waiting @ketomum. Fingers crossed it won't be much longer now. Please let us know when you hear anything. :)
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  • ketomumketomum Member Posts: 33 Connected
    Thanks so much @Adrian_Scope I hope the wait will not be not much longer either. Honestly, waiting for the brown envelope is the worst part  :) 

  • ketomumketomum Member Posts: 33 Connected
    Good afternoon all,
     
    I just want to come and give you all an update on my daughters PIP application. All-day I had this niggling feeling to call to see if a decision had been made but I just decided no I will wait until the end of the week, but the feeling wouldn't go. So I decided to call this afternoon.

     I was expecting to hear the same old message that it was still with the DM but this time it was a different message. "Yes a decision was made on the 16/02/2020 on Sunday, would you like me to read the decision over the phone?" I said, "yes please"!!.

    My daughter has been awarded Enhanced payments on both elements of PIP for an ongoing period.
    I am just so happy that my daughter will get what she is entitled to and hopefully my stress levels will now begin to regulate because it's not an easy process to go through.

    I want to thank everyone on here who has shared their stories and also given advice it really has been a really big help to get through this process.

    Thanks, Ketomum

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Great news! :)
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • ketomumketomum Member Posts: 33 Connected
    @poppy123456 Thank you so much for your support and advice. I am just so glad that it's over. 
  • Tommyb92Tommyb92 Member Posts: 75 Courageous
    Hi @ketomum, I just wanted to say thanks for your post, I read right the way through it, and seen some of the other comments that have been posted on this forum. I myself also have a Shunt and Hydrocephalus, so this kind of gives me a bit of hope for my decision. I am still waiting to hear back as to whether a decision has been made or not. I was told I should hear back within the next two weeks (this was the other day of calling). so I just wanted to say I wish your daughter well and hopefully this will continue for you, I’m also hoping I get a similar outcome for my assessment but not sure what they’ll say in my report! 

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  • ketomumketomum Member Posts: 33 Connected
    HI, @Tommyb92 Thanks for taking the time to reply and I hope you will have the same result as my daughter.
     Did you request a copy of your assessment? as that will give you an indication of what the decision may be even though it's not the final decision. From beginning to end this process has taken 28 weeks. This was a new PIP application so I guess the process took a little longer, and is treated differently than someone who is coming from DLA.

  • ketomumketomum Member Posts: 33 Connected
    @Tommyb92 I just read through your post and you said you were contemplating requesting a copy of the report. It really is your decision and for some, it doesn't ease the anxiety once the report arrives. I guess the way I looked at it was let me be prepared in advance if the report didn't go in my daughter's favour. So if I needed to gather more information before the decision was made then I could do so or even plead my case to a decision-maker before they made the final decision.

    But the decision is totally yours. To be honest, the not knowing and knowing shares the same about of anxiety 
    :#
    I hope everything will be alright and you won't have to long to wait for the decision.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    So happy for you and your daughter @ketomum! :)
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  • ketomumketomum Member Posts: 33 Connected
    @Chloe_Scope Thank you so much chole for all the help and support you and others have given over this period. I thought i would've slept like a baby last night as I have had many sleepless nights worrying about this process, but I couldn't sleep I think I fell asleep around 3 am this morning and woke up at 6 am. I think my adrenaline is still on a high knowing the process is over. My mind still hasn't realised its all done with for now. Thanks again

  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    You are most welcome @ketomum! I hope your mind can relax soon so you can get some rest!
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  • ketomumketomum Member Posts: 33 Connected
    I hope so too @Chloe_Scope. Thanks again. :) 

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