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Extremely anxious about PIP assessment

Evening all... I have my Pip assessment coming up on December 4th, and I am extremely anxious about it. I was born with Hemiparesis after having a fetul stroke. My right side is very weak and pretty much useless, I have enough strength to hold me up, but I never know when my leg will decide it’s had enough and give way. I am now 46, and the years have taken their toll. My left side has endured numerous problems due to heavy reliance, and my health has deteriorated rapidly. I first claimed DLA in 1997 after the death of my Mother, I was placed on low ( Both ) after claiming again and fighting for it, it was increased to high ( Both ) indefinitely. In the last 5 years, I have developed uncontrolled asthma ( currently awaiting seeing specialists in Hospital ) Hypercalcemia which lead to primary Hyperparathyroidism, which affects lots of important body parts /functions, one being the bones. I have to have a regular course of steroids due to the asthma which also affects the bones. One receipt of my PIP letter /form, in September, I was undergoing blood tests, xrays and having regular DR & Hospital appointments for pain in my lower back and thigh, which developed around early July.. but did not have any results to put on the form. The form was sent back, and a few weeks ago I had the diagnosis of degenerative Scoliosis of my back and Osteoarthritis in my hips. I am in continuous pain and discomfort every moment of the day, I am exhausted for the best part of the day... I can’t take anti inflammatory meds or anything with aspirin because of the asthma, so I have weed in cake & coffee, due to exhaustion, I take a small amount of speed every day. I don’t want to take either, but if I don’t, I am confined to bed, and using incontinence pants 😞 I suffer from depression and I currently take Amitriptyline and mirtazapine for that, I also have panic attacks which lead into asthma attacks. All this, and they want me to go to Swindon when I live in Bristol, I no longer Drive, my career does.. and the journey would be too much pain. I can’t have my carer to be in the room because he will get angry with them which will have negative affect.. I can’t take my Daughter ( also my carer ) as I don’t want her to know I have been resorted to speed, and having weed. I have tried to contact the assessment group by text & email as I wear hearing aids and can’t hear voice calls, but I cannot reach them and had email from them saying they will not discuss my claim over email. I really don’t know what to do, I have been sobbing and vomiting daily since I received my appointment.. 😰
Replies
Good Evening & Welcome 😃
I am one off the Community Champion’s here at Scope.
Sorry to read about your current problems.
Yes I have also had a Stroke that greatly effects my left side.
I have recently had my “Pip Assessment”
unfortunately.
We have got some great info & advice here on our “Online Community”
Please please let me know if there’s anything that I can help/support you with??
@steve51
Sorry I forgot to mention but I did arrange a home visit as I am unable to go outside anymore.
So yes please do contact them tomorrow to request one for you.
I do hope that things go okay !!!!!
@steve51
Did you manage the phone call?
Scope
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