Hi, my name is Tommyb92!

Tommyb92

Hi Everyone I’m Tom, I have a Shunt and Hydrocephalus and struggle with Short Term Memory issues where as my long term has not been affected from a Shunt Blockage in 2002, I currently Work at GOSH, Which looked after me as a Patient. On top of this I Volunteer my time with a couple of Charities which include Pride in London and Impulse London. I also run a disability group on Twitter and Facebook 

WestHam06

Hi @Tommyb92
                         Welcome to the community, thank you for joining us. 

chiarieds

Hi @Tommyb92 - Welcome to the community. How lovely to read you're now working at the hospital that looked after you, & you do voluntary work too, etc. I think we're lucky you joined us, & I look forward to your further input.

I've been to GOSH a few times; the last seeing a geneticist. Later had it confirmed that our family has the hypermobile type of Ehlers-Danlos Syndrome.

Tommyb92

I’ve also applied to do a bit of community work with Scope too!

chiarieds

Tom, that's great, thank you. Pretty sure you'll be most welcome. Hope you get to do a lot, rather than just a bit!

Adrian_Scope

Great to have you with us @Tommyb92.

Tommyb92

Thank you Adrian

Tommyb92

chiarieds said:

Hi @Tommyb92 - Welcome to the community. How lovely to read you're now working at the hospital that looked after you, & you do voluntary work too, etc. I think we're lucky you joined us, & I look forward to your further input.

I've been to GOSH a few times; the last seeing a geneticist. Later had it confirmed that our family has the hypermobile type of Ehlers-Danlos Syndrome.

Thank you for your welcome

thespiceman

Hello @Tommyb92   Pleased to meet you.

Thank you for joining and sharing.

I am one of the Community Champions team.

Please can I thank your contributions in everything you do.

Please look forward to working with you.

Please ask me anything have a vast wealth of knowledge on disability, mental health addiction plus my foodie stuff.

Always putting recipes on here and advising members on all the above mentioned.

Been on here as a volunteer three years this year and done like you lots of volunteering various charities organisations.

Thank you for all your time.

Pleasure to meet you.

@thespiceman

steve51

Hi @Tommyb92

Good Afternoon it’s great to meet you today ?

I am also one of the Community Champion’s here at Scope.

Please please let me know if there’s anything that I can help you with???

@steve51

Tommyb92

@thespiceman and @steve51 many thanks for the welcome and I am sure I will be of some use to some people considering I have knowlege of some disabilities and also identifying as LGBT+

Tommyb92

I'd love to find out if there are any more people in the group who have a Shunt/Hydrocephalus - I was born with my condition and dont know that many people who have the same condition it would be great to hear their experiences - Tom Community Champion