Hi, my name is Tommyb92!
Tommyb92
Community member Posts: 73 Contributor
Hi Everyone I’m Tom, I have a Shunt and Hydrocephalus and struggle with Short Term Memory issues where as my long term has not been affected from a Shunt Blockage in 2002, I currently Work at GOSH, Which looked after me as a Patient. On top of this I Volunteer my time with a couple of Charities which include Pride in London and Impulse London. I also run a disability group on Twitter and Facebook
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Hi @Tommyb92 - Welcome to the community. How lovely to read you're now working at the hospital that looked after you, & you do voluntary work too, etc. I think we're lucky you joined us, & I look forward to your further input.I've been to GOSH a few times; the last seeing a geneticist. Later had it confirmed that our family has the hypermobile type of Ehlers-Danlos Syndrome.1
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I’ve also applied to do a bit of community work with Scope too!2
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Tom, that's great, thank you. Pretty sure you'll be most welcome. Hope you get to do a lot, rather than just a bit!
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Great to have you with us @Tommyb92.1
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Thank you Adrian
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chiarieds said:Hi @Tommyb92 - Welcome to the community. How lovely to read you're now working at the hospital that looked after you, & you do voluntary work too, etc. I think we're lucky you joined us, & I look forward to your further input.I've been to GOSH a few times; the last seeing a geneticist. Later had it confirmed that our family has the hypermobile type of Ehlers-Danlos Syndrome.
Thank you for your welcome2 -
Hello @Tommyb92 Pleased to meet you.
Thank you for joining and sharing.
I am one of the Community Champions team.
Please can I thank your contributions in everything you do.
Please look forward to working with you.
Please ask me anything have a vast wealth of knowledge on disability, mental health addiction plus my foodie stuff.
Always putting recipes on here and advising members on all the above mentioned.
Been on here as a volunteer three years this year and done like you lots of volunteering various charities organisations.
Thank you for all your time.
Pleasure to meet you.
@thespiceman
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@thespiceman and @steve51 many thanks for the welcome and I am sure I will be of some use to some people considering I have knowlege of some disabilities and also identifying as LGBT+
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I'd love to find out if there are any more people in the group who have a Shunt/Hydrocephalus - I was born with my condition and dont know that many people who have the same condition it would be great to hear their experiences - Tom Community Champion
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