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Hi, my name is Tommyb92!

Tommyb92Tommyb92 Member Posts: 75 Courageous
Hi Everyone I’m Tom, I have a Shunt and Hydrocephalus and struggle with Short Term Memory issues where as my long term has not been affected from a Shunt Blockage in 2002, I currently Work at GOSH, Which looked after me as a Patient. On top of this I Volunteer my time with a couple of Charities which include Pride in London and Impulse London. I also run a disability group on Twitter and Facebook 

<code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>http://www.twitter.com/lgbtdisability

Replies

  • WestHam06WestHam06 Member, Scope Volunteer Posts: 1,354 Pioneering
    Hi @Tommyb92
                             Welcome to the community, thank you for joining us. 
  • chiariedschiarieds Community Co-Production Group Posts: 9,141 Disability Gamechanger
    Hi @Tommyb92 - Welcome to the community. How lovely to read you're now working at the hospital that looked after you, & you do voluntary work too, etc. I think we're lucky you joined us, & I look forward to your further input.
    I've been to GOSH a few times; the last seeing a geneticist. Later had it confirmed that our family has the hypermobile type of Ehlers-Danlos Syndrome.
  • Tommyb92Tommyb92 Member Posts: 75 Courageous
    I’ve also applied to do a bit of community work with Scope too!

    <code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>http://www.twitter.com/lgbtdisability

  • chiariedschiarieds Community Co-Production Group Posts: 9,141 Disability Gamechanger
    edited November 2019
    Tom, that's great, thank you. Pretty sure you'll be most welcome. Hope you get to do a lot, rather than just a bit!
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,998

    Scope community team

    Great to have you with us @Tommyb92. :smile:
    Community Manager
    Scope
  • Tommyb92Tommyb92 Member Posts: 75 Courageous
    Thank you Adrian :)

    <code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>http://www.twitter.com/lgbtdisability

  • Tommyb92Tommyb92 Member Posts: 75 Courageous
    chiarieds said:
    Hi @Tommyb92 - Welcome to the community. How lovely to read you're now working at the hospital that looked after you, & you do voluntary work too, etc. I think we're lucky you joined us, & I look forward to your further input.
    I've been to GOSH a few times; the last seeing a geneticist. Later had it confirmed that our family has the hypermobile type of Ehlers-Danlos Syndrome.

    Thank you for your welcome :)

    <code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>http://www.twitter.com/lgbtdisability

  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Tommyb92   Pleased to meet you.

    Thank you for joining and sharing.

    I am one of the Community Champions team.

    Please can I thank your contributions in everything you do.

    Please look forward to working with you.

    Please ask me anything have a vast wealth of knowledge on disability, mental health addiction plus my foodie stuff.

    Always putting recipes on here and advising members on all the above mentioned.

    Been on here as a volunteer three years this year and done like you lots of volunteering various charities organisations.

    Thank you for all your time.

    Pleasure to meet you.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @Tommyb92

    Good Afternoon it’s great to meet you today 😃

    I am also one of the Community Champion’s here at Scope.

    Please please let me know if there’s anything that I can help you with???

    @steve51
  • Tommyb92Tommyb92 Member Posts: 75 Courageous
    @thespiceman and @steve51 many thanks for the welcome and I am sure I will be of some use to some people considering I have knowlege of some disabilities and also identifying as LGBT+ :)

    <code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>http://www.twitter.com/lgbtdisability

  • Tommyb92Tommyb92 Member Posts: 75 Courageous
    I'd love to find out if there are any more people in the group who have a Shunt/Hydrocephalus - I was born with my condition and dont know that many people who have the same condition it would be great to hear their experiences - Tom Community Champion

    <code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>http://www.twitter.com/lgbtdisability

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