Fibromyalgia support available?

jamjar

hello jamjar here. Asking if there are members out there who suffer with fibromyalgia. I do and am not currently in touch with other sufferers. I always find that sharing an experience is really helpful. Comparing notes and realising that someone else actually understands your condition and difficulties helps. 
Medical professionals have little interest and offer little or nothing. 

Adrian_Scope

Hi @jamjar. Lots of our members live with fibromyalgia. I hope you'll find someone who you can compare notes with.

Connie00

Chloe_Alumni

Hi @jamjar and a warm welcome to the community! 

I'm tagging @debbiedo49 who also has fibromyalgia. How are you doing today?

jamjar

Hello Chloe.
Thank you for your reply and info. I will certainly be looking into things you told me about. Also will wait to see I Debbie contacts me.Its been a busy day for me today with hospital appointment and a look around Home Sense in Gloucester. My favourite shop to browse in. An hour was enough for me and then I got overwhelmed with so much stuff to see. Bought myself a comfy cushion and some Christmas bits, a diary and calendar for 2020. I then came home and instead of taking my dogs out for a walk I sat down and slept. This happens often to me, how about you? Hope you are ok today.

jamjar

chiarieds

Hi @jamjar - I can so identify. Many with my disorder often have fibromyalgia, &, altho' I don't, my son & I went for our annual echocardiograms, then saw our cardiologist this morning. Glad you were able to do a little shopping. My son & I were too shattered, altho'  his wife suggested some shopping on the way back home. I came home & had a long 'catnap' with my kitten!

Hope tomorrow is a better day for you. Just being in pain is exhausting, & when you do more than 'normal' is unfortunately not at all good as Connie's message also highlights.

jamjar

Hi Chiarieds.
Thank you for messaging me. I hope that your check today has gone well for you and your son. Funnily enough I was returning a heart monitor that I’ve worn for seven days for checks and should have been have some scans but some radioactive items had not arrived so must now wait till mid December before those can be carried out. Precautionary really rather than urgent so I am not too concerned. Getting a bit close to Christmas so may have to be after I expect. What is your kittens name and what colour? I love kittens and cats but now have two dogs that would not be good with them. Have always had a cat or even two but usually around before I had a dog in the house. It didn’t work out that way this time.

chiarieds

Hi @jamjar -Thank you, we both passed our annual MOT. We both have low blood pressure, which can be problematic, but as our cardiologist keeps saying, it's probably helping us both heart-wise with our pre-disposition to our genetic problems.

My kitten's called Shadow, as she does literally follow me everywhere. She's mainly white, but has a Tabby face, black & white colours on part of her back & a black & white bushy tail. So a bit of a mongrel! I have problems with my son's Bedlington terrier, whom I look after a few days a week. He won't stop getting too close to her, & she's unimpressed!

Hope it's not too long before you get your scans, even tho' like my son & I it's precautionary, it's reassuring to have them.