Hi, my name is Doreen143! — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Hi, my name is Doreen143!

Doreen143
Doreen143 Member Posts: 1 Listener
Hello my name is Doreen I've had Chronic brittle asthma for 20 years,in 2015 I couldn't walk after having mri scans xrays and blood test I was diagnosed with psoriatic arthritis Rheumatoid arthritis and fibromyalgia. I'm finding life really difficult at the moment,I've come off Tramadol 50mg×3 three times a day,stop Morphine patches 50mg . I was taking Methotrexate (chemotherapy tablet)but the side effects where very bad,so after lots of visits to Rheumatologist I'm now taking Leflunomide 10mg a day also Sulfasalazine 1500mg morning and night. First tablets I'm getting some relief from But the side effects dizziness and nausea are not good.  Hospital and doctors saying to stick with it because they are common side effects and should pass. I'm on home oxygen for my asthma so really don't have a life.  So just hoping thing are going to get better. I'm 61

Comments

  • Ails
    Ails Member Posts: 2,256 Disability Gamechanger
    Hi @Doreen143 and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  I'm really sorry to hear of your health struggles.  It sounds as though you have been through so much.  Yes, I hope things improve for you soon.  A lot of our members have Fibromyalgia so will relate to what you are going through.  You will receive lots of support and friendship on here as we all look out for one another.  It is a great space for chat!  I have been a member over a year now and it simply changed my life!  I'm sure you will enjoy it too.  

    Please have a look around the website and join in any discussions that you fancy.  A good place to start is the Coffee Lounge, where you will find lots of interesting and fun chat.  If there is anything you need help or support with then please just give us a shout.  I look forward to seeing you on the forum.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,509 Disability Gamechanger
    Hi @Doreen143 - I'd like to add my welcome to the community too. Thank you for joining us all, 'tho I'm sorry to read about the difficulties you've faced, & more recently finding effective medication. It's a difficult one when you have side-effects from new meds, so I hope this passes quickly, & things improve for you.
    As Ails says, people here really do support each other & care. Here's a link to the Coffee Lounge:
    https://community.scope.org.uk/categories/coffee-lounge

Brightness

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.