Employment and Support Allowance (ESA)
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.

What next ?

neverendingpainneverendingpain Member Posts: 3 Listener
I’ve had 3 back surgeries the last one was December 2018, 3 lots of injections the last one 2 weeks ago all because of a work place injury! 
Nothing has helped with the chronic back pain and nerve pain that takes my breath away and leaves me crying most days. 
I’ve been claiming ESA for the past 3 years and every year I have to go for an assessment and every time they say I’m fit enough for work and stop my benefits. I have had to ask for a mandatory reconsideration every time . 
Luckily they change their minds and reinstate my benefit.

I’ve been told that I will have to go for another ESA assessment in April next year and the worry is so debilitating that I’m so stressed and anxious that they’re going to stop my benefit again and then we’re going to struggle again and again for money when there’s no chance I can get back to work any time soon
I would love to get back to work however this constant pain I’m in sometimes makes me feel that my family would be better if I wasn’t around anymore.
does anyone know what I can say to convince these people that I need their help and not just to get me back into work but to help me live with this pain all the time .
do they ever stop asking the same questions?
 surely they should believe the GPs letters the consultants letters what I’m telling them instead of undermining everything every time
do I have to live the rest of my life fighting to get help?


  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi and welcome,

    With the work capability assessment you can be re-assessed anytime from 3 months. Even though you've been assessed every year for the past 3 years and you say your next one is April 2020, this still isn't guaranteed because the time they give you is just a guide, which is why WCA decision letter never state a timescale.

    Most people are re-assessed regularly, there's very few people that are placed into the severe conditions group. I could be because the criteria for that group is very specific, i really don't know but i've only heard of a few people having life time awards for ESA where they are not re-assessed again in the future. See link for the criteria for this. https://www.disabilityrightsuk.org/news/2017/october/guidance-work-capability-assessment-reassessment-published

    Do you know the reason why you were previously placed into the group that you're currently in? It will be worth knowing this because when you do receive the next forms then you can concentrate on that reason and make sure you fill the form out with as much information as possible about how your conditions affect you.

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,662 Disability Gamechanger
    Welcome to the community @neverendingpain! I'm sorry to hear your pain has had an impact on working. If there is anything else we can do to help then please do let us know!
    Community Partner

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
Sign in or join us to comment.